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Farzad CH.com Junior Offline I Love CH.com! Posts: 27 Iran - Tehran Gender:	hi to everybody Feb 6^th, 2009 at 2:22am I am a new member from Iran, this is very interesting to me that I can share my CH to the other friends around the world Imy attacks has began from two days agothree times a day, anyway i thin i a m the first member from Iran. I am an Indistrial engineer and work as a project manager, its hard to deal with this CH having many works to do
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maalstroom

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''Dance to my tune''....
the hell I will!

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Re: hi to everybody
Reply #1 - Feb 6^th, 2009 at 2:31am

Hi Farzad and welcome here,

Could you tell us a little about what treatments work for you? Maybe there are some things that can be improved, there are a lot of knowledgeable people here who'll come out with great advice.

Please read as much as you can to educate yourself, we have all done that when arriving here. Especially the menu to the left.

Hope you will feel better soon.

Greetings, Pascal.

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...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: hi to everybody Reply #2 - Feb 6^th, 2009 at 2:42am Welcome to the board Farzad! I'll repeat what Pascal said. Let us know what you have tried in the past that has and hasn't worked. Maybe we can make some suggestions you can take back to your doctor, maybe you will teach us a new trick to battle the beast with. Glad you found us, welcome to the board! Joe
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Ellick CH.com Veteran Offline ET found here. Posts: 200 x1\|Aylesbury\|UK Gender:	Re: hi to everybody Reply #3 - Feb 6^th, 2009 at 7:15am Hi Farzad, Good that you found here. I have had some good pain free times as a result of what I have read on here. Had some great advice too. Doesn't stop it happening but it is so good to know you are not alone. Best wishes, Ellick.
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snickers CH.com Junior Offline I Love CH.com! Posts: 29 California Gender:	Re: hi to everybody Reply #4 - Feb 6^th, 2009 at 9:35am Welcome! You'll find good support and answers here.
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rodoepig CH.com Newbie Offline I Love CH.com! Posts: 17	Re: hi to everybody Reply #5 - Feb 10^th, 2009 at 11:48pm salam Farzad, I have been a chronic CH sufferer for over 5 years now, and work long hours, which can be very difficult. Don't take a nap, but read this site instead when you are tired, it will be less painful. Good Luck
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Farzad

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Posts: 27
Iran - Tehran
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Re: hi to everybody
Reply #6 - Feb 17^th, 2009 at 11:35am

Hi to all my Dear Friends
many thanks for your welcome messages and i am very glad to have such new friends.
I will tell all my treatments to you and will share all my experiences. actually I am episodic, and every one year my attacks comes. like you all it is very painfull, normally at the mid night around 1:30. for preventive medicine i am now taking prednisolone 100mg per day, and now after 7 days i am decreasing the amount, during this seven days i had two attacks which I used ergotamine for aborting. seems not bad comparing with others. one attack on the middle of day was teribble, I came to home from work and despite taking the ergotmaine it took around 3 hours to abort. I hate prednisolone due to side effects and last year i promised not to use it, but comparing the attack pain, I forgot my promise and i saw the only way to use prednisolone!!!
I saw and read most of articles in the wb site for CH. about the foods I dont have the idea, since during the absence of my attackes i used to have choclate,nusts, even alchole but the attackes didnt come until its episodice due time !! but during attacks i just preventeating and drinking the triggers.
i use oxygen but seems not too useful, or i dont know the result because using it in parallel with abortive medicines.
sorry ,too much writing !! I just wanna say I understand you all.

it is 8:00 PM now, I afraid from sleeping!! thinking about the attack in mid night!
I read about melatonine , and would like to test it before going to sleep i will let you all know the result after testing.

Farzad , male , 40 Yrs Old

Iran - Tehran

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Farzad

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UnderTheRadar CH.com Old Timer Offline Literally Posts: 383 Texas Gender:	Re: hi to everybody Reply #7 - Feb 17^th, 2009 at 2:05pm Welcome to the family, Farzad! No one understands like a fellow clusterhead. I'd love to see a world map of all the countries represented here on the board...maybe I'll make one myself and post it! Isn't it funny, with all the unrest and fighting in the world, that this lovely disorder can bring us all together...
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: hi to everybody Reply #8 - Feb 17^th, 2009 at 2:25pm Just wanted to say hello. I'm glad you found us but sorry for the reason. Welcome to the boards! Pain free wishes, Jeannie
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Guiseppi

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San Diego to Florida 05-16-2011

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Re: hi to everybody
Reply #9 - Feb 17^th, 2009 at 3:50pm

I use ergotamine also....but I use it in combination with my oxygen. I take the pill and then fire up the oxygen. The oxygen beats it down in about 6-8 minutes, the cafergot chases it away for up to 12 hours.

Did you read the oxygen link on the left? In yellow, "Oxygen Info?" It's critical oxygen be used correctly for it to be effective. Worth a read to make sure you have the proper set up.

Wishing you some peace and pain free time soon.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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Farzad

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Posts: 27
Iran - Tehran
Gender: male

Re: hi to everybody
Reply #10 - Feb 17^th, 2009 at 11:08pm

joe ,jeannie, undertheradar
thanks for your messages indeed.

Dear joe, i think you are correct, the use of oxygen and the procedure is important, may be i shall correct and use according to the instruction and required volume of O2. may be i shall buy one big O2 cylynder. oh my god my little son will explode it!!

one another thing i would like to share with you is that:

i sometimes see my little son (3yrs old) has some nose gripe. i hope this will not be the base or any start of CH for him. sometimes i just pray that nobdey else be a CH sufferer.

I am new to the site, but do we have any neurologist that suffers from CH?
may his experience also wil help evrybody.also i would like to suggest to have the names of the doctors who found main medicines like ergotamine,imitrex,etc,..... to have at least appreciation from them for bringing pain free times for us.

wish all you dears pain free times.

thanks to the founder of this site, and you all who are the members.

keep in touch

Farzad

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Farzad

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