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DJ YaBB Administrator Offline Boyz Rule! Posts: 7480456 Wichita, KS Gender:	O2ptimask Kits Now Available! Feb 9^th, 2009 at 12:26am O₂ptimask^TM kits from LifeGas are now available through the CH.com store! A limited number of the "standard" O₂ptimask^TM kits are currently available and an expanded line of products and individual parts will be added to the store soon. Follow the link to the CH.com store on the left menu to order!
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: O2ptimask Kits Now Available! Reply #1 - Feb 9^th, 2009 at 5:57am Thanks, DJ. Those are good masks. We bought one in St. Louis. Having them available here will make it so much easier for those needing them.
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: O2ptimask Kits Now Available! Reply #2 - Feb 9^th, 2009 at 6:42am Thanks Deej, I will be ordering one and I think I need a couple of new coffee cups also!
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: O2ptimask Kits Now Available! Reply #3 - Feb 9^th, 2009 at 7:53am WOOHOO!!! WTG, Deej! You are AWESOME!!! My first order has been placed! BTW, can I order one, and have it sent to a different address than my own? (For future reference) Chuck
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Mrs Deej YaBB Administrator Offline My life is what I make it, and it's beautiful! Posts: 1348 Tornado Alley Gender:	Re: O2ptimask Kits Now Available! Reply #4 - Feb 9^th, 2009 at 9:25am ClusterChuck wrote on Feb 9^th, 2009 at 7:53am: BTW, can I order one, and have it sent to a different address than my own? (For future reference) Yes! edit to add: when you create your online store profile you will be able to add a shipping address and a billing address. If you have problems let us know!
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Jeannie

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Re: O2ptimask Kits Now Available!
Reply #5 - Feb 9^th, 2009 at 9:37am

Okay, I am an 02 dummy. I have not used it before and plan to get a script for it at my upcoming appt with the Ryan HA clinic here in St. Louis. Will the script get me the proper mask that I need or would it be better to purchase this one? Also, I hear lots of people referring to the "Clustermask". Is this the same thing?

Thanks for the help!

Jeannie

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Peppermint CH.com Alumnus Offline Work it out baby! Posts: 2908 New York\|USA Gender:	Re: O2ptimask Kits Now Available! Reply #6 - Feb 9^th, 2009 at 9:49am Hey can you stickie this at least for a short while so it doesn't get lost? I've heard a lot of people say these masks are so much more comfortable - I'm glad you added it for the same reason Jax said.
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Mrs Deej

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Re: O2ptimask Kits Now Available!
Reply #7 - Feb 9^th, 2009 at 9:50am

Jeannie,

This is very similar to the "clustermask" (designed around the idea), and many people are having good results witht this. Your script will probably just be for the O2, I would suggest getting one of these masks to try out.

Check out this link for O2 info. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Hope this helps!

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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: O2ptimask Kits Now Available! Reply #8 - Feb 9^th, 2009 at 9:52am Thank you, Steph! Jeannie
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ClusterChuck

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Re: O2ptimask Kits Now Available!
Reply #9 - Feb 9^th, 2009 at 10:00am

Jeannie wrote on Feb 9^th, 2009 at 9:37am:

Okay, I am an 02 dummy.

First of all, you aren't a dummy ... Just new to it!

Jeannie wrote on Feb 9^th, 2009 at 9:37am:

Will the script get me the proper mask that I need or would it be better to purchase this one?

Hopefully the script will specify a non-rebreather mask. THAT is what you need! BUT, the non-rebreather mask that you would get is no where near as good as the one that Deej now has in his store! It is the difference of night and day!

Jeannie wrote on Feb 9^th, 2009 at 9:37am:

Also, I hear lots of people referring to the "Clustermask". Is this the same thing?

The Clustermasx^TM was put together by a fellow sufferer in the UK, Ben. He did an awesome job of it, and it was well needed! Ben ran into problems, and had to stop selling them. Life Gas now assembles the mask that Deej has on his site. It is at least as good as Ben's mask. In some ways it is better than Ben's.

You will get much better results using the O2PTIMASK^TM than you will get with the mask that should be supplied to you. I strongly recommend buying an O2PTIMASK^TM.

Don't be afraid to ask more questions, if you have them, about the oxygen. We WANT to see you succeed with this method!

Chuck

Edited to add this, that I stole from another thread. It may help you in getting your prescription:
Batch wrote on Feb 8^th, 2009 at 12:48am:

Here's a good sample Rx for oxygen therapy to print it out and take along when you go to see your doc/neurologist. You'll be in great shape if he writes the Rx as written below:

"Oxygen therapy with a non-rebreather mask as an abortive for the pain of acute cluster headaches. Administer at the onset of attacks at a flow rate of 12 to 15 liters/minute for up to 20 minutes per hour up to 12 times a day. Refills as needed for one year."

The wording in the above Rx is very important and it's also in accordance with the MEDICARE Handbook.

If your doc/neurologist balks at the 12 to 15 liter/minute flow rate and wants to specify a lower flow rate... tell him that's the flow rate specified to treat acute cluster headache attacks in the National Guideline Clearing House at Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Standards of Care under the GUIDELINE TITLE:

EFNS guidelines on the treatment of cluster headache and other trigeminal-autonomic cephalalgias..

If he still balks, hand him a copy of the following web page at:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

If he still balks, go with the flow.

Once you have an Rx for oxygen therapy at any flow rate, there are a lot more options available to abort your cluster headache attacks even faster.

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« Last Edit: Feb 9^th, 2009 at 10:09am by ClusterChuck »

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: O2ptimask Kits Now Available! Reply #10 - Feb 9^th, 2009 at 10:15am I'm glad to see you added them through this site. I hope they serve the store better than they served me individually. I ordered directly from LifeGas (for Christmas presents) on December 4th and I'm STILL having trouble with my order.
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: O2ptimask Kits Now Available! Reply #11 - Feb 9^th, 2009 at 11:18am Thank you, Chuck!!!! Jeannie
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DJ

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Re: O2ptimask Kits Now Available!
Reply #12 - Feb 9^th, 2009 at 7:57pm

Mosaicwench wrote on Feb 9^th, 2009 at 10:15am:

I'm glad to see you added them through this site. I hope they serve the store better than they served me individually.

I ordered directly from LifeGas (for Christmas presents) on December 4th and I'm STILL having trouble with my order.

Pat,

Sorry to hear you're having trouble getting your order filled. This is EXACTLY the reason we worked out getting them on the CH.com store. Canx the second one through them and order through the store. I'll get one out to you tomorrow! Wink

We've only got three kits left on hand so you better hurry! Not exactly sure when our re-supply shipment will be here.

DJ

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FramCire CH.com Alumnus Offline Life like a froward child must be humored a little Posts: 1710 Bolivar, MO USA Gender:	Re: O2ptimask Kits Now Available! Reply #13 - Feb 9^th, 2009 at 8:26pm ClusterChuck wrote on Feb 9^th, 2009 at 7:53am: WOOHOO!!! WTG, Deej! You are AWESOME!!! My first order has been placed! BTW, can I order one, and have it sent to a different address than my own? (For future reference) Chuck Can we order them and have them billed to Chuck??? Just wondering.
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: O2ptimask Kits Now Available! Reply #14 - Feb 9^th, 2009 at 9:09pm Deej - already got both of the masks I ordered but not before . . . .nevermind, I already went into my order horror with Steph. She's got the details. If we need more, we'll order through CH.com instead.
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Carl D

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Re: O2ptimask Kits Now Available!
Reply #15 - Feb 9^th, 2009 at 9:11pm

I was gifted with one of these masks at LouCon and all I can say is: It has made a HUGE difference in aborting attacks! I'm getting the full benefit of the o2 without having most of it seep out of a non-rebreather bag.

Even when I used it at only 15 lpm, it still aborted alot quicker than I'd expect, so I'm glad to see these in the store in the event I should need a spare.

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DJ YaBB Administrator Offline Boyz Rule! Posts: 7480456 Wichita, KS Gender:	Re: O2ptimask Kits Now Available! Reply #16 - Feb 9^th, 2009 at 10:27pm Off-Topic replies have been moved to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or .
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Mrs Deej YaBB Administrator Offline My life is what I make it, and it's beautiful! Posts: 1348 Tornado Alley Gender:	Re: O2ptimask Kits Now Available! Reply #17 - Feb 23^rd, 2009 at 1:50pm We have just recieved MORE masks!!! They are now available through the clusterheadaches.com store!!! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ; CHECK IT OUT!!!
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LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: O2ptimask Kits Now Available! Reply #18 - Feb 23^rd, 2010 at 9:00pm for those who tested both masks, is the huge price difference really that much more worth it?
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Beth E CH.com Junior Offline Thanks for understanding CH.com! Posts: 88 Union City (Erie) PA Gender:	Re: O2ptimask Kits Now Available! Reply #19 - Aug 19^th, 2011 at 1:53pm Just ordered one for my CHer. I'm gonna insist he try O2 again. Your excitment brings hope for me and I want to help him in any way I can.
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Re: O2ptimask Kits Now Available!
Reply #20 - Aug 19^th, 2011 at 2:04pm

Beth E wrote on Aug 19^th, 2011 at 1:53pm:

Just ordered one for my CHer. I'm gonna insist he try O2 again. Your excitment brings hope for me and I want to help him in any way I can.

Make sure you also have a regulator that will enable him to hyperventilate. It needs to go up to 25 liters per minute, minimum. Less than that does not support hyperventilation.

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Beth E CH.com Junior Offline Thanks for understanding CH.com! Posts: 88 Union City (Erie) PA Gender:	Re: O2ptimask Kits Now Available! Reply #21 - Aug 19^th, 2011 at 4:20pm I know these are more. I am in EMS so I understand how they work. Just need to make sure I get one that goes that high. But I am excited for him to try it....if he will. I think that once everything is in place to do it, he might try it!
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