My husband is a ch sufferer and has been in cycle now for 11 weeks. He had a remission period of 3 years before this, his longest ever. We have been married 6 years and this is the third cycle that I have been through with him.

He is using O2 to abort and is having extremely good luck with it. This is the first cycle that he has actually been relatively "pain free".  When I say pain free I mean that he hasn't banged his head off the floor once in 11 weeks. It's a wonderful thing.

Regardless, this is still a trying time for us. Making sure that his O2 is always in place, not attending certain functions because it would be too difficult to reach his O2 when he needs it....lot's of lifestyle changes.

We both start the day hoping for the beast to go back where he came from. I can see that my husband is starting to become more short tempered and discouraged. I've been reminding him that this will pass....it always does. We just need to take it one day at a time.

Friends and family try to be understanding but they truly don't get it. That's why I'm here now. You guys always get it.

Thanks for listening and letting me vent.

We're always here to listen so vent away.

Sounds like you both have a good handle on things, so keep hanging tough.

Jen

I know what you mean - it's great his O2 is so effective as an abortive but it's so stressful having to worry if it will be there when he gets his next hit. We've been at so many things over the years where Joe has disapeared to the car to get to his O2. Do you have the E-size tanks that you can take with you places? I know alot of people have the M-size at home....we always just go with the E-size, I think we have 8 of them in the garage right now. That way he's not confined to the house.

Hang in there, I know Joe gets cranky in cycle, and I can understand why. I just do my best to remember it's not him talking. Glad you feel comfortable reaching out to us, we're all in this together.
Christy

Does he take any kind of a preventative med? 02 works great for me as an abortive, but when I'm in cycle I also take lithium daily, it blocks about 70-80% of my attacks. Other popular preventatives are verapamil and topomax. Some end up combining lithium and verapamil before they find success.

If this cycle drags on much longer, might be worth talking to the neuro. By the way,  for being a supporter, I'd have lost my mind long ago without mine.

Joe

B, if the Sansert works really well, are you in a position to consider or have you tried "cluster busting," with alternative meds?  (Psilocybin or seeds with LSA, most use Rivea Corymbosa (RC) seeds).

And unlike with the Sansert, you don't have to worry about your lungs becoming fibrous.

Info is available here:  Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

The doses involved are sub-hallucinogenic (usually) - and there's actually quite a number of threads in the Meds forum here about the treatment.  It is getting wider and wider media coverage, especially as it seems to be the most effective treatment actually out there, despite its technically illegal status.  Harvard published their study in Neurology in 2006.  RC seeds are easy to order, easy to use, and magic mushroom are also easy to grow.

Just something to consider after you've done your research.

Laurie