Not sure what kind of insurance options you have, but it sounds like you need a new doctor. A doctor who know nothing about CH and won't listen to you is a recipe for many painful days and nights. You need either a headache specialist who is familiar with CH, or at LEAST an open minded doctor who will listen to you.

Wishing you luck in your search. Finding a good doctor might take some work, but in our case it's critical.

Joe

Edited to add a link I stole from one of Bob's posts:

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or Look for "Physician Finder" search box.  Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

Welcome, but sorry you're suffering.

Kinda sounds like you may be reluctant to find a new doctor. If that's the case, then print off some of the info you find here and on the OUCH website (link on the left), bring it to him, and discuss it with him. If he STILL doesn't want to look into Cluster Headaches as a possibility, then you really need to do some doctor searching.

Just curious.... Has he ordered any type of MRI or CAT scan to rule out anything like a tumor? If not, then I wouldn't delay in replacing him. That should be one of the first things they do if you're complaining about recurring headaches.

Best of luck to you, and keep us posted, will ya!!??

Adam