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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New Dr. and HOPE

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New Dr. and HOPE (Read 965 times)

Timelost

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New Dr. and HOPE
Mar 7^th, 2009 at 11:45am

Hey gang I want to update from my last post about my Dr. appt yesterday. I was seen by a very good Neurologist at the Cleveland Clinic and now I have a new plan of treatment. My doctor put me back on O2 with the correct type of mask recommended to me by several of you; my meds are Depakote 500 ER, Zomig 5MG nasal spray and Melatonin OTC. I go for a MRI next Tuesday and have a follow up appt with my Dr. The Clinic has a research trial that is going very well with stimulators and I look like a good canidate for this study. I'll find out more after the MRI and follow up visit with the Dr. and I'll post again with an update.
Rick

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on my knees Ex Member	Re: New Dr. and HOPE Reply #1 - Mar 7^th, 2009 at 12:05pm I am happy for you , a good doctor and a good supporter will make all the difference in the dance we all do. would like to hear more about the stimulator study.
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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: New Dr. and HOPE Reply #2 - Mar 8^th, 2009 at 9:04pm Best of luck in the coming days Hope you have good and possitive things to post in your fight with the beast. All the best, Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

DennisM1045

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One wave at a time!

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Re: New Dr. and HOPE
Reply #3 - Mar 9^th, 2009 at 5:19pm

Hi Rick,

I'm glad you found some Drs that know what they're doing.

For me, I'd only view the stimulator as an absolute last resort. It is brain surgery after all.

If you really are in that place then you have my sympathy and support. While we all share a funky hypothalamus, the road we each take to find relief is different.

Lizzie2 has gone through this procedure twice. Search for her threads and read about her experience. The first surgery was unsuccessful due to lead site infection. From what I understand the 2nd surgery went better.

-Dennis-

Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: New Dr. and HOPE Reply #4 - Mar 9^th, 2009 at 8:01pm That's great news, sounds like you're on a good road now. 30 years of this and the 02 is still my best friend. Hope it works as well for you. Joe
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: New Dr. and HOPE Reply #5 - Mar 12^th, 2009 at 11:09am Rick, You may want to read through wildhaus's (Michael Berger's) experiences with ONS at Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Take care, V/R, Batch
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