If your Doctor is giving you just Lortabs to treat Cluster Headaches, I would suggest finding a Doctor with Cluster Headache experience - fast.

Do you realize that they are an addictive narcotic and that they are not normally used for Cluster Headaches?

Depending upon the strength of the pills you are taking, the symptoms you describe could be caused by the narcotics and could be dangerous signs. Better safe than sorry - see your doctor (or a new one)

One more very important word: OXYGEN. See the "oxygen info" tab on the left side of your screen.

Marc

Hello
Thanks for the input I had decided to stop the ambein and on the loritabs i had taken like 2 or 3 during the day and the other night a few they are the 5/500 ones nothing strong below is a log for them for the past week they seem to be getting worser I had been to a nero last year and the only thing he does is scratch the top of my hands pull them and make me touch my nose and been perscribed floricete not  the codine one 60mg elival paxel I had already had 2 MRI's in the past 3 years and been to a sleep study I had even had the HA during it at around 3am and it went off the chart the O2 level was down to 92% so they gave me the cpap machine and i had been useing it but they still come so i gave up on that I have had oxygen back in 2003-2004 it works on the ay ones just fine but then they wern't as bad as now Usely they had been on my left side but since last week they are on my right side Only one other time they wer their that was back in 2005 but only for a few weeks but not this bad the day one really aren't that bad but times they are like 3 or 4 times a week but these dam night one's are 3-4 time's a night always after i fall asleep I have also noticed that I'm unable to do things that i know i can do and look for something and can't find it just only to find it where it should be at a later time I'm a machinist and this is really fustrating because i repeat the same process over & over if you know what i mean is this from the headaches I haven't done any work for the past week because of this Its an odd thing which i dislike luckly i'm self employed but it can't continue I'm already behind on 8 jobs. Iknow this probly sounds crazy but would electric shock work i have an old quack shock machine the type with tubes from the 1920s at least i could be in control of the pain but the only problem is not letting go of the button be low is a diary of them for the past week if you can make heads or tails of it please let me know also I had used to drink red bull on a daily basic last year when i had them on my left side it it does seem to calm the day ones so tonight i try it again thanks Austin KS

This time I will keep track of the night ones I have them on a daily basic but they are not as severe though on the really  bad ones I will the day one are constant pain like with sharp jolts like the night headaches. The night headaches had been gone for the past  6 months not totally gone but not as often and they were on the left side these are on my right side now and much worse then 5 years ago when they were their 

3/3  went to bed around 10 got woken  up around 1200 am put ice on head took loritabs lasted until 130 went back to sleep was awoken again at 354 or about that time again put ice on my head lasted for about 15 min went back to bed again then was awoken again at 715 that one lasted for a long time like an hour the ice packs were not froze yet The headaches were on the right side of my head this time they are not the throbbing ones just constant pain behind the eye temple and on top of my head.


3/4  Went to bed after the news about 9 or so and took 4 tyanol and a loritab PM got woken up around 1230 with the same side having constant pain again the ice and it lasted for about an hour took a while to get back to sleep I guess It was around 4 I was awoken again around 530 with another headache but that one lasted like 15 min

4/5 went to bed around   1030 this time I took 6 TPM and the last loritab but that didn’t work either I was awaken around 100 but the headache only lasted about a half hour but is was worse than the ones before and after it was gone I was so tired I just went out but then I was again awoken around 330 and that one lasted for about ½ hour and again I went back to sleep like I ran marathon but around 700 I got another one which wasn’t so bad but its really making me agitated and I had called my Dr. Bruce Labes at comcare   and made an appointment it was for 3 that afternoon

I had explained to him that about the headaches and pressure in my chest and how when I have the headaches my pulse is like 40-45 beats and how they are on my right side now I had one of the daytime headaches then in his office but not like the night ones I asked him for something to sleep he had prescribed ambein 10mg and zantact 150 for the heart burn I told him about the yahoo and I haven’t drank any alcohol for the past month and I haven’t drank coffee either because I had a bad headache then during the day and those are the triggers for them and told him I take Centrum and drink plenty of juices  like V8 fusion and ocean spray cranberry juice and such. So now I thought I could have a decent nights sleep with the sleeping pill But no

Last night 4/6 I had taken the ambein at around 9 went to bed and watched the news and then Raymond came on and it was a repeat so I turned it off and I guess I went to sleep soon after but only to be awaken at 1239 I went to get the ice but I had forgot to put in back in the freezer earlier so it lasted for about an hour and I had went back to sleep like before really tired not from the sleeping pill but exhausted and again around 330 or so I was again awaken and this one wasn’t really that long but just as bad and it took me until 5 or so to fall back asleep only to be awaken again at 720 and that one was really short and I just stayed up and doing this  to keep track of them I hadn’t taken any of the loritabs because I had ran out and I’ll call the pharmacy and see if I can take 2 of the sleeping pills and the TPM Also I will keep track of  what I eat & drink.

4/7 had 2 lean ham & cheese subs drank probly a gallon of juice 1 cream soda some cookies pecan and a kielbasa sandwich. Took 1 ½ ambein around 10 went to bed around 1030 fell asleep around 1130 or so woke up a little after 7 and had a minor headache and laid in bed then the headache got worse and lasted until 946 which is 1046 because daylight savings time. This headaches was a real bad one the ice wouldn’t work it was just constant pain my right eye was watering a lot and I could barely find my pulse which was slow and a thumping in my chest If this continues tonight I’m making another appointment with my Dr. to see if I can have that sleep monitor put on or what ever the heck it is.

Well its 6/9 and the date this is for is 6/8 day and 6/9 morning well last night I took 1 ½ ambein and went to bed at 10 or so only again to be awaken at close to 2 in the morning and this one was bad I used the ice to no avail and lasted like 2 hours and had been unable to get back to sleep. I had yesterday cereal for breakfast cookies again juice to drink cranberry pomegranate & apple like a gallon had baked chicken for supper cottage cheese & apple sauce But I did have coffee that morning but I hadn’t it for the past couple of  months 

4/8 for 4/9 tool 1 ½  ambein and went to bed at 1000 woke up shortly after 200 with another headache that lasted  for about an ½ hour the ice worked a little went back to sleep around 230 300 only to be awaken again around 600 with a really bad one I mean really bad I couldn’t even touch the area and I couldn’t even open my eye that much and it was tearing bad the pain was shooting down my neck however this one only lasted for around 15 minutes which seemed like hours then I guess I went back to sleep and around 930 I was awaken again with another bad HA not as bad as the earlier one but close and lasted unit a little past 1000 I’m not even going to keep track of my diet anymore doesn’t make sense.

I had been taken picture’s with the digital camera for the past day when I have them for a reference and the time they occurred but I didn’t change the time until for daylight until now so the time is an hour behind.

Well the Dr. never called back I had called and faxed him the record of them yesterday and that the ambein doesn’t work I’m not going to take them anymore no use in doing so. Its quit obvious he doesn’t believe me about the headaches or he has run out of treatments for them any how I’m pissed off  this is not right their should be something to lessen them!      

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Austin,

I read what you wrote about O2 only working on the milder hits. I would suggest that you need to revisit Oxygen therapy at very high flow rates with the right kind of mask.

I'm not going to claim that it's the answer for everyone, but I will say that I used to think that it didn't work until I found a better way to use it.

Using lots of O2 at high flow rates, my whole outlook on dealing with Clusters has changed - it's really that dramatic for me.

Where are you located?

Austin,

Yes, my pulse drops to 48-50 bpm during the peak of a really bad hit. It's called Bradycardia and is known to be a component of CH's for some people. It's always been that way for me after being chronic for well over 12 years.

I would make a point of discussing this with a NEW doctor who more fully understands CH's. Anytime your heart doesn't feel "right" you should be SURE that your Doc is aware of it!

Hi Marc
Thanks for the reply.As to your other question on where i live. I live in north central Kansas I had moved here for the clean air and a better way of life. I had read a lot of post and the a few cought by eye. 1 was about stuttering when these episode's come i have a problem stuttering. Also other suffer's that are engineer's also get them I'm a machinist and these really stop me from doing anything because my mind just goes blank when i go to start something.
Does that happen to you after a few nignts if ha

Well i'll end this now and let me know what you think Thanks Austin