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Brew

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Re: mad and hurt
Reply #25 - Mar 15^th, 2009 at 12:10pm

Potter wrote on Mar 15^th, 2009 at 11:26am:

Brew wrote on Mar 15^th, 2009 at 11:20am:

Melissa wrote on Mar 15^th, 2009 at 7:47am:

The tears have been flowing since reading everyone's posts and I am glad. I need this. I am crying because I am releasing the sadness, the anger and the hurt.

It's the only way - the only way - to cleanse the soul.

Laugh Melly Laugh.

Potter

Yep, Potter and Linda are right - Once it's cleansed, it's then time to feed the soul with laughter.

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: mad and hurt Reply #26 - Mar 15^th, 2009 at 1:41pm Thanks everybody. I'm feeling much better now about it all, and once again you've helped! I hope I do the same for you all here, and if I'm lacking in that department, I plan to step up more. LYG!
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

andrewjb CH.com Hall of Famer Offline when the love of power becomes the power of love ! Posts: 1612 x1\|london\|England\|europe\|185\|238\| Gender:	Re: mad and hurt Reply #27 - Mar 15^th, 2009 at 3:07pm , Don't waste your energies. Smile at them when you can, It'll drive em bonkers. Andrew.
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Callico

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Re: mad and hurt
Reply #28 - Mar 16^th, 2009 at 12:58am

Now I KNOW I have to make it to convention this year! I've been wanting to meet you for the longest! Bring Jesse too! I want to meet the man who had the sense to choose you, CH and all.

I know they are family and all, but I have had to forgo some of the family get togethers that I used to look forward to. Since going chronic it just is not worth the hassle of dealing with them. I love them very much, but I don't have the time and energy to deal with their willful lack of understanding. My closest friend is a Viet Nam vet who was terribly wounded in Nam. He is one of the few who has ever seen me get a bad hit. He had the sense to just keep his mouth shut and give me space, but then he has been through his own share of Hell on earth. Other than him I have no real friends other than on this board. Until I can meet you in person to give you the hugs you have earned from me you will have to settle for this: Smiley

They may have the blood ties, but here you've got FAMILY!

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: mad and hurt Reply #29 - Mar 16^th, 2009 at 6:55am Well, Sweetie.....there is no explaining some people's ignorance. You know, Jesse knows and we know. We understand......to heck with them. Hard as it may be, take them with a grain of salt. We love you, Melly...a bunch. Jackie
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: mad and hurt Reply #30 - Mar 16^th, 2009 at 9:43am Love you, MELLY! Jeannie
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black CH.com Old Timer Offline I Love CH.com! Posts: 347 Greece,Athens Gender:	Re: mad and hurt Reply #31 - Mar 16^th, 2009 at 9:51am So sorry to hear this Melissa I couldnt agree more.Ch reveals who are our true friends. hope you are better now
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sandie99

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Re: mad and hurt
Reply #32 - Mar 16^th, 2009 at 2:32pm

Mel,

I've thought myself on a few occasions that ch is a great way to find out which friends (and potential partners) are your true friends.

I'm so sorry about what you had to face. Family is always harder, because they stick around. I wish I had some wise words and advice to share, but this time I'll just send you lots of good thoughts and hugs and I'm so glad that your last posts revealed that you're already feeling better about it all.

Lots of hugs,
Sanna

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lashultz CH.com Veteran Offline Posts: 237 x0\|Milton\|USA\|\|0\|0\|WI,Wisconsin Gender:	Re: mad and hurt Reply #33 - Mar 16^th, 2009 at 5:14pm No one in my family, other than, my son, daughter, and my wife have ever understood these headaches. I have 3 brothers and a sister, I have tried to educated them, but I have given up. That is probably why I ended up here. Which is the best move I ever made. Lee
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MITYRARE

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Re: mad and hurt
Reply #34 - Mar 16^th, 2009 at 10:32pm

It makes me sad and angry reading this Mel. People can be so clueless.

Recently I had someone that knows me well ask how the headaches were doing... I told them my hormone deal and he shot back quickly that having belief in the hormone treatment is what makes it work because most headaches are psychological.... dumb ass jerk!

I no longer have any respect for this person, but i realize that so many people are just clueless and stupid when it comes to health issues. I now keep my mouth shut about my treatment to everyone except other CH patients and doctors.

Paul

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Paul
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Melissa

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Re: mad and hurt
Reply #35 - Mar 17^th, 2009 at 7:32am

Oh Paul, one thing that grates on my nerves is the whole "hormone" thing! I get that too. Sad

To all: I was able to get over my hurt and anger about the whole thing by the end of Sunday due to you fine people. I think if I didn't have the support of each and every one of you, I would have probably stewed about it for quite some time (and I'm usually not one to hold a grudge!).

Hubby's relatives were being jerks at my expense. No matter. They have many more problems in their own lives to the point where thier own happiness is in question. Unfortunately for them, when they try to pick apart someone else to not deal with their own shit, they picked the wrong person. Idiots.

Anyway, love you guys SO SO much! Thank you again! Smiley

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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: mad and hurt Reply #36 - Mar 17^th, 2009 at 7:40am Melissa wrote on Mar 17^th, 2009 at 7:32am: They have many more problems in their own lives to the point where thier own happiness is in question. Misery loves company, and they were - consciously or subconsciously - trying to suck you down into their abyss of despair. You wouldn't let 'em. Good on ya, Mel.
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-johnny-

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Re: mad and hurt
Reply #37 - Mar 17^th, 2009 at 8:30am

Melissa wrote on Mar 15^th, 2009 at 12:24am:

Fuck em. Fuck them all!

thats right honey fuck 'em. if they don't understand what a ch feels like hit 'em in the face with a fuckin baseball bat then ask how it feels. then on the way to the hospital you can comment about what big pussies they are because a concussion isn't that big a deal.

i really don't understand how somebody can watch someone go through that much pain and make jokes about it, especially family. anytime you see a grown man cry like that you should concerned if not totally scared shitless.

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« Last Edit: Mar 17^th, 2009 at 8:31am by -johnny- »

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Carl D

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Re: mad and hurt
Reply #38 - Mar 18^th, 2009 at 3:19am

I'm so sorry Mel. It sucks when your own family doesn't "get it." For them to joke about clusters shows that they need to get on that fukken yellow brick road and go find a heart! That's just beyond callous and shameful. I'll never understand those who mock other's sufferings. Just know you're not alone.

My brothers are very... well, I never hear from one, and the other... it's not his problem so he shouldn't have to deal with it, and doesn't want to hear about it. It's got old after 21 years.
For years everyone thought I was exaggerating the pain... and then 10 years ago next month, a friend found this site. I went to my brother's house, brought it up - and back then it was pretty much straight cluster talk since the board was fairly new. My sis in law started reading posts, and then starting crying. I asked her what was wrong and she said, "If I didn't know any better, I'd think you wrote every one of these posts." That was when she 'got it.' She's been the only real supporter in my family.

For them to joke about clusters shows that they need to get on that fukken yellow brick road and go find a heart!

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