Click this link to read a post I like on the clusterheadaches.com message board...

zeek

CH.com Newbie

Offline

its just a step to the
right

Posts: 14
x0|palmerston north|New_Zealand||0|0|
Gender: male

Bout time I posted
Mar 15^th, 2009 at 7:56pm

quick background im 46 and live in NZ have suffered ch for the last 7 yrs, minimal meds seem to have kept me going altho my energy drink consumption is about 3-4 times recomended dayly intake and rising
i also have asthma that since the age of 2 has been treated with steroids (means I cant be a world class athlete Damn)
my heart goes out to all of you out there that are suffering a lot worse than me altho the memory loss that appears to be setting in is disturbing !!! Undecided

cheers to all

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

cynjeep89

CH.com Alumnus

Offline

Posts: 1626
Delaware|
Gender: female

Re: Bout time I posted
Reply #1 - Mar 15^th, 2009 at 8:20pm

Hi Zeek,

The memory loss during cycles (or as I choose to call them) blonde moments are a bit rough to handle but do thankfully disappear when the cycle ends.

I've never tried the energy drinks but am a bit worried about the amount you are consuming. Hopefully someone who has more experience with the energy drinks will come along and comment.

Welcome to the crazy world of CH.com. We're here to help.

Cyn

Back to top

IP Logged

Linda_Howell

CH.com Moderator
CH.com Alumnus

Offline

Do not feed the Moderators

Posts: 11927
Santa Maria, Ca.
Gender: female

Re: Bout time I posted
Reply #2 - Mar 15^th, 2009 at 8:33pm

Hi Zeek,

Niot knowing what the laws or rules are where you live, can you try pure oxygen? Has anyone ever talked to you about that?

here is something for you to read and talk to your Dr. about.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Oxygen is safe, cheap, and it works for so very many of us to abort a headache.

My son has had severe asthma since the age of 2 also...He was on Steroids for a (short) while also...I would hate to think that you've been on them for such a long time.

I sincerely hope you'll stick around and read all the pertinent information around here. I understand it will take some time for you to do that, but it will be worth it. Wink

Linda

Back to top

Hurt people.....hurt people. Think about it.

IP Logged

zeek

CH.com Newbie

Offline

its just a step to the
right

Posts: 14
x0|palmerston north|New_Zealand||0|0|
Gender: male

Re: Bout time I posted
Reply #3 - Mar 15^th, 2009 at 9:19pm

Hi cyn thanks for your reply unfortunatly in my case the memory loss appears to slowly be getting worse and altho at first it was only during cycles it now appears to be permanent!
and hi linda Im working on the o2 with the doc at the moment
he listens when you tell him things and then goes away and researches it for you (sounds better than some of the US ones )

Back to top

IP Logged

cynjeep89 CH.com Alumnus Offline Posts: 1626 Delaware\| Gender:	Re: Bout time I posted Reply #4 - Mar 15^th, 2009 at 9:25pm Sounds like you have a great doc...cool!! Some of us have had to search through a bunch of them before we found one that would work with us. The seventh neurologist was my lucky charm. O2 is a life saver for many of us here so I hope it also provides you some relief. Keep us posted on your progress, k?
Back to top	IP Logged

AussieBrian

CH.com Hall of Famer

Offline

CH - It's all in your
head!

Posts: 3851
Cairns, Qld, Australia
Gender: male

Re: Bout time I posted
Reply #5 - Mar 15^th, 2009 at 9:28pm

G'day Zeek and welcome to the world's biggest unfenced asylum outside of Canberra. Good to hear your doctor will work with you in fighting the beast so give him this link as well.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

It was put together by a Westralian water-passer along with his parole officer, Mr Happy, and explains O2 in terms down under. Of course the only known cure involves simply sending beer-vouchers to the Rollingstone Hotel, Townsville (Attn: AB) but the oxygen may help in the short term.

Go the Wallabies,

Brian.

Back to top

My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

IP Logged

zeek CH.com Newbie Offline its just a step to the right Posts: 14 x0\|palmerston north\|New_Zealand\|\|0\|0\| Gender:	Re: Bout time I posted Reply #6 - Mar 15^th, 2009 at 9:38pm giday Brian walabies ?? ant they small kangaroos ??and where do you want them to go ?? Kiwis rule raise a cold one for me will ya cheers mate
Back to top	IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Bout time I posted Reply #7 - Mar 15^th, 2009 at 11:41pm Welcome to the board! Keep pushing for the 02. almost 49, 30 years of CH and 02 is STILL my first and most effective abortive. Glad you found us, start reading like a mad man! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Kimmie CH.com Veteran Offline OW!! Posts: 187 US Gender:	Re: Bout time I posted Reply #8 - Mar 16^th, 2009 at 9:00pm [quote author=62786F6B6464713938010 link=1237161383/1#1 date=1237162858]Hi Zeek, The memory loss during cycles (or as I choose to call them) blonde moments are a bit rough to handle but do thankfully disappear when the cycle ends. They do?..........UH-OH
Back to top	To accept the challenge is the destiny of leadership. IP Logged

Click Here to visit the CH.com Facebook page!

zeek CH.com Newbie Offline its just a step to the right Posts: 14 x0\|palmerston north\|New_Zealand\|\|0\|0\| Gender:	Re: Bout time I posted Reply #9 - Mar 17^th, 2009 at 2:33pm Hey maby the ongoing memory loss is just old age catching up with me and not ch damn! apart from Brian is there any one else from down this end of the world?? where the seasons are the right way around
Back to top	IP Logged

LeLimey

Ex Member

Re: Bout time I posted
Reply #10 - Mar 17^th, 2009 at 3:09pm

Oh I have cluster induced CRS too (Can't Remember sh.. something Wink

)

I swear by energy drinks too - the trick as you probably know is chugging them as fast as you can at first twinge.

Do you find cold or heat make a difference for you? I find cold a huge help, as in ice packs etc.

I'm glad you've finally taken the plunge to post - it's not so scary huh?! I knew a guy from Palmerston North many many years ago. He stayed with my family while he was working his way around Europe, he was a lovely bloke, although I do remember him chasing me and my friend up the road yelling blue bloody murder at us after we stuck a sign on his car offering it for sale for £15 or near offer.. We were only 14 at the time. Luckily I've been an absolute model of decorum ever since..

hmm today is turning into a day for remembering far too many misdeeds LOL

Back to top

IP Logged

zeek CH.com Newbie Offline its just a step to the right Posts: 14 x0\|palmerston north\|New_Zealand\|\|0\|0\| Gender:	Re: Bout time I posted Reply #11 - Mar 17^th, 2009 at 6:42pm Hi Lelimey cold does it for me an ice pack to the back of the neck works well for me most of the time did he catch you ?
Back to top	IP Logged

LeLimey

Ex Member

Re: Bout time I posted
Reply #12 - Mar 17^th, 2009 at 6:48pm

Ice packs on the back of the neck as well as on the front of my head really feel like they help. Be sure and wrap them in a cloth though, don't slap 'em on straight against your skin!

No he flippin' didn't catch us LOL I'm not as daft as I look and he was steaming! We did alot of bad things to him come to think of it, Lisa and I saw him walking down the street one day so she ran down and locked the front door so he couldn't get in and I leaned out the window with the shower attachment - soaked him good and proper LOL

That was a big ooops though as we had no escape! The only thing we could do was I covered her by zapping him with more water so he stayed away from the door while she ran down, unlocked it and ran back up so we could lock ourselves in my room!

That man had a serious sense of humour failure I think.. Wink

Back to top

IP Logged

zeek CH.com Newbie Offline its just a step to the right Posts: 14 x0\|palmerston north\|New_Zealand\|\|0\|0\| Gender:	Re: Bout time I posted Reply #13 - Mar 17^th, 2009 at 7:52pm do you remember his name ? he must have had a sence of humour you survived didnt you? we have a touch of the irish down here and even taggers get stabbed by business men and only get minimal jail time !!
Back to top	IP Logged

LeLimey Ex Member	Re: Bout time I posted Reply #14 - Mar 17^th, 2009 at 8:18pm Oh I remember him well - and I don't remember ALL my victims LOL He was called Ivan Hedley, this was back in about 1980 or thereabouts so a long time ago!
Back to top	IP Logged

Barry_T_Coles

CH.com Alumnus

Offline

Posts: 2073
Karratha|,West_Australia
Gender: male

Re: Bout time I posted
Reply #15 - Mar 17^th, 2009 at 9:50pm

G’Day Zeek
Welcome to the nut hut; good to see you got a Doc that will listen, that’s a bonus.

The link Brian give you for the o2 gear should apply in NZ, the laws in NZ may be different to over here & you may have to get a prescription or letter from the Doc to get the o2, if that’s the case make sure the Doc stipulates a regulator that will go over 15 litres per minute, if you are going to use a C size bottle the new medical regulators for those will now go up to 25 litres/min & don’t require the flow controller it’s now built in.

Depending on how hard & for how long you are getting hit will determine the size bottle you are going to need; the C size is only good for about 3 hits & should only be used for a traveller I’d suggest depending on what you can afford & what your medical insurance will cover that you go for at least a D size bottle for home, when in high cycle I can get around a weeks worth of air from a D, if you go for an E bottle you are looking at about 10 to 14 days worth, its going to be a bit of suck it & see but its always good to have one on standby in case you run out.

If you got any ???s feel free to PM me.

O2 rocks

Cheers
Barry

Back to top

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Of all the things i've lost in life the thing i miss most is my mind.

IP Logged

ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Bout time I posted Reply #16 - Mar 18^th, 2009 at 4:52am Quote: Luckily I've been an absolute model of decorum ever since. cough cough BULLSHIT* cough cough* Oh, SO sorry! Got a bit of a tickle in me throat ... Chuck
Back to top	CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

Click Here to visit the CH.com Facebook page!

Barry_T_Coles CH.com Alumnus Offline Posts: 2073 Karratha\|,West_Australia Gender:	Re: Bout time I posted Reply #17 - Mar 18^th, 2009 at 6:50pm ClusterChuck wrote on Mar 18^th, 2009 at 4:52am: Quote: Luckily I've been an absolute model of decorum ever since. cough cough BULLSHIT* cough cough* Oh, SO sorry! Got a bit of a tickle in me throat ... Chuck Chuck You really are a brave man
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Of all the things i've lost in life the thing i miss most is my mind. IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Bout time I posted Reply #18 - Mar 18^th, 2009 at 6:57pm brave.....foolish.......such a thin....often indistinguishable line.... Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: Bout time I posted Reply #19 - Mar 18^th, 2009 at 7:58pm zeek could the lack of sleep be a contributor to the memory loss........i hope
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!