Click this link to read a post I like on the clusterheadaches.com message board...

Artonio CH.com Alumnus Offline I Love Posts: 604 New Castle, Pa Gender:	Clusters get a mention on Today Mar 24^th, 2009 at 7:54pm They actually said "Cluster headaches" on the today show... too brief. Doctor Nancy is planning on talking about it at a later date. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or It might be a good idea to do an email campaign. with warm regards. Tony
Back to top	For in our hands lies the ability to shape our world for good or for ill. President Barack Obama IP Logged

Click Here to visit the CH.com Facebook page!

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Clusters get a mention on Today Reply #1 - Mar 24^th, 2009 at 8:32pm I agree about an e-mail campaign, but this is the only address I could find on there. videoplayer@msnbc.com Does anyone know if this is the correct one to send it to?
Back to top	Hurt people.....hurt people. Think about it. IP Logged

cluster kween

CH.com Newbie

Offline

I Love CH.com!

Posts: 2

Re: Clusters get a mention on Today
Reply #2 - Mar 25^th, 2009 at 8:50am

I actually wrote an email to Dr. Nancy Sniderman to say thanks for mentioning Clusters but it was too little and inaccurate. She said that only men get these headaches. Well, I beg to differ. I have chronic clusters and I am female. I asked her to get the word about Alliance for Headache Disorders Advocacy's petition to the House to support fair funding for Headache Disorder Research. Although much of the research will probably for Migraines, but perhaps it will get us closer to better treatments for Clusters. Hope everyone has signed the petition!

Back to top

IP Logged

BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Clusters get a mention on Today Reply #3 - Mar 25^th, 2009 at 10:04am What e-mail address did you use? I beg to differ with her on women not getting CH also. Or maybe my neuro just doesn't know what he's talking about . Hugs BD
Back to top	What don't kill ya, Makes ya stronger! IP Logged

Mrs Deej

YaBB Administrator

Offline

My life is what I make
it, and it's beautiful!

Posts: 1348
Tornado Alley
Gender: female

Re: Clusters get a mention on Today
Reply #4 - Mar 25^th, 2009 at 10:31am

Contact us
Have questions or comments?
E-mail TODAY at: TODAY@nbcuni.com

Want to send us a story idea?
Please send story ideas to Noah Kotch, Senior Producer, 379E-1, 30 Rockefeller Plaza, New York, NY 10112. If your story idea is accepted, we will notify you. We do not have a general fax number.

Want to call or write to us?
If you have questions that need to be answered right away, or want to write to NBC News personnel, our address and phone number are:

30 Rockefeller Plaza
New York, NY 10112
(212) 664-4602

Want to purchase archive video?
Video tapes: TODAY videotapes are available for purchase through NBC News archives (212) 664-3797 . Please fax your request to: (21.... There is a minimum charge of $150.00 for up to five minutes of tape. Please include the date, subject and any other information that might help with your request. Once your letter is received, you will be sent an agreement form. Once the form is signed and returned to NBC with payment, your request will be filled.

Back to top

"I don't know the key to success, but the key to failure is trying to please everybody" - Bill Cosby

IP Logged

ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Clusters get a mention on Today Reply #5 - Mar 25^th, 2009 at 3:27pm *WDGCH !!!!!!*
Back to top	CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

KJ

CH.com Alumnus

Offline

Posts: 596
Indianapolis, IN
Gender: male

Re: Clusters get a mention on Today
Reply #6 - Mar 25^th, 2009 at 6:31pm

I've been thinking lately about contacting 'The Doctors' show on CBS about clusters. I think it is a great show, even though Dr. friggin' Phil created it. They seem to take all kinds of "real people's" questions about conditions, afflictions, whatever, and do a short piece about them. I would almost guarantee that they would do one about us crack minded folks.

Question is, who wants to step up, and be on TV? I am personally on hiatus (shhhhh), and would not be a good candidate. Anybody want to volunteer?

Back to top

Quit smoking March 6th, 2008

IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Clusters get a mention on Today Reply #7 - Mar 25^th, 2009 at 7:14pm Can you provide a link? Several people have done this in the past...Mike Day our OUCH president, for instance. His was local though I believe.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

KJ CH.com Alumnus Offline Posts: 596 Indianapolis, IN Gender:	Re: Clusters get a mention on Today Reply #8 - Mar 25^th, 2009 at 8:06pm Yep...and I REALLY hope someone is brave enough Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	Quit smoking March 6th, 2008 IP Logged

Click Here to visit the CH.com Facebook page!

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Clusters get a mention on Today Reply #9 - Mar 25^th, 2009 at 8:42pm Thanks. Now this... Quote: Ask Our Doctors your question here: got to me for some reason. What would you or I or anyone want to ask? The rest of it is easy. Coming up a very pertinent question isn't so easy. What we want is exposure. We have most of the answers that medical science has thus far produced.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

KJ

CH.com Alumnus

Offline

Posts: 596
Indianapolis, IN
Gender: male

Re: Clusters get a mention on Today
Reply #10 - Mar 25^th, 2009 at 8:59pm

Yes, I get your point. The goal is to get ON the show, and get the word out....get lots of words out. And you know the questionaire is being viewed by some producer's flunky, who may or may not send it up the line to the second flunky, who may pigeonhole it for that headache show in 2010. So, yep, there needs to be a compelling story to get their attention.

Also, if someone DOES manage to get on, they have to be knowledgable, articulate, and photogenic. Hey, it's tv.

So......any cute, smart, passionate people want to fill out the form, and be our spokesperson on national TV?

Back to top

Quit smoking March 6th, 2008

IP Logged

MITYRARE CH.com Old Timer Offline autocross racer Posts: 361 Ontario, Canada Gender:	Re: Clusters get a mention on Today Reply #11 - Mar 26^th, 2009 at 6:08pm I have sent a request to "The Doctors" show. Paul
Back to top	« Last Edit: Mar 26^th, 2009 at 6:09pm by MITYRARE » Paul "car crazy" IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!