Click this link to read a post I like on the clusterheadaches.com message board...

Jun 6^th, 2025 at 12:51am

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › oh my, i'm glad ive found you

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

oh my, i'm glad ive found you (Read 719 times)

onepfday

CH.com Newbie

Offline

I Love CH.com!

Posts: 16
Payne, Ohio
Gender: female

oh my, i'm glad ive found you
Apr 16^th, 2009 at 3:09pm

i have had "headaches" since '00. I was diagnosed with intercranial hypertention and had 2 shunts placed. Now i still have PAIN and cant get rid of it. I am only looking to tolerate it not annhilate it because it wont ever go completely, ive given that thought up. any suggestions would be nice! I fit with the ch tests and all, just saw a new neuro today, hopefully he is nicer than all the others!! i know i am not crazy, ive had 3 psych consults! lol. anywho thats me in a nut shell.

IP Logged

Click Here to visit the CH.com Facebook page!

Potter

CH.com Alumnus

Offline

Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff

Posts: 3600
Blgs.Mt.
Gender: male

Re: oh my, i'm glad ive found you
Reply #1 - Apr 16^th, 2009 at 3:25pm

onepfday wrote on Apr 16^th, 2009 at 3:09pm:

Where are the shunts placed?

Kinder gentler Potter

IP Logged

Bob Johnson

CH.com Alumnus

Offline

"Only the educated are
free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: oh my, i'm glad ive found you
Reply #2 - Apr 16^th, 2009 at 7:28pm

This tastes like a diagnosis where you may have cluster-LIKE pain but not have Cluster Headache--as a primary disorder ( that is, a headache which is NOT caused by another problem.)

Under thse conditions, I think it would be inappropriate, if not a medical threat, for you to treat yourself as if you had cluster headache.

Working with the doctors who are treating your primary disorder is, in my judgment, the best route for you.

Best wishes for a good outcome.

Bob Johnson

IP Logged

onepfday

CH.com Newbie

Offline

I Love CH.com!

Posts: 16
Payne, Ohio
Gender: female

Re: oh my, i'm glad ive found you
Reply #3 - Apr 16^th, 2009 at 9:27pm

i have a LP and VP shunt. I am under the care of yet another neuro!! I honestly thought i was crazy until i came here so dont crush it, please! I have had the thing where my nose cart feels like it is growing and pressure right before a bad "headache". The only thing i dont have is the droopy eye. I get flush on the side of the headache, my nose stuffs and then runs etc, but whatever, i may not have all the answers, but asking for o2 is a whole lot easier than asking for narcs!! i hate taking drugs and at one time was on over 20 at a time, and now reading some of this they were interacting with eachother and making things worse.

i was diagnosed with the pressure thing in my head, but am now realizing that putting the shunts in may have helped because they took the extra pressure off of my nerve ends.

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!