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Dana CH.com Alumnus Offline The beast hater Posts: 44 Jacksonville, FL Gender:	OMG the devil has arisen Apr 29^th, 2009 at 1:55pm Hi my fellow sufferers hope your all cluster free. I have had this DEMON for the past 27 years and there can't be a worse feeling. was doing ok then wham at 2:07 AM I woke up in pure horror blind in 1 eye with a little guy inside my head stabbing his way out with an ice pick.
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: OMG the devil has arisen Reply #1 - Apr 29^th, 2009 at 2:42pm Hello Dana, it's nice to meet you. Welcome to the family, sorry you have to be here. hugs, mel
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: OMG the devil has arisen Reply #2 - Apr 29^th, 2009 at 7:15pm Sorry the little shit is back..... Lefty...!
Back to top	"When money's tight and is hard to get And your horse has also ran, When all you have is a heap of debt A PINT OF PLAIN IS YOUR ONLY MAN." — Flann O'Brien IP Logged

Dana CH.com Alumnus Offline The beast hater Posts: 44 Jacksonville, FL Gender:	Re: OMG the devil has arisen Reply #3 - Apr 30^th, 2009 at 12:14am Thanks for the welcome malissa and lefty. Can't say I'm thrilled to be here. Sorry it took me a lil while to get back to you, Azzhead had to make sure I knew he was back.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: OMG the devil has arisen Reply #4 - Apr 30^th, 2009 at 10:43am Welcome to the board, the little prick never seems to lose our addresses..sadly ...do you have an effective treatment program that's working for you? Oxygen? Let us know what you use and how you use it, maybe we can make some suggestions to bring back to your doc! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Dana

CH.com Alumnus

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The beast hater

Posts: 44
Jacksonville, FL
Gender: male

Re: OMG the devil has arisen
Reply #5 - Apr 30^th, 2009 at 4:33pm

Hey Joe hope your pain free. After 28 years of letting docs try and screw me up with their meds. I exercise alot I have gotten to the point where I do some meditation / yoga while sitting inside my closet that I made sound proof because sound makes azzhead (headache) intensify greatly along with any light. I also will chew excedrin migraine 2 tabs really fast and drink an energy drink with taurine down at room temp. only. I only do this when I get the 9 or 10. I have built a strong tolerance for pain at least for an 8. Sorry I cant privide more. Oh yeah what ever you do no alcohol and illegal drugs will make you wish you were dead. Azzhead don't like drugs and alcohol. O2 does not help me anymore. Cry

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BarbaraD

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: OMG the devil has arisen
Reply #6 - Apr 30^th, 2009 at 5:06pm

Dana,

How are you doing the O2? We've found fairly recently that the high flow rate (25liters) works a lot better than what the docs were/are prescribing a couple of years ago. And the mask is really important. Read the oxygen info on the left. It might be worth another try. since I went to the high flow I can kill the beast in a few minutes now without the meds I used to take with the O2.

Too much excedrin will cause rebound headaches, so watch it there.

Melatonin at night has done a lot for me (had to try it three times before I stuck with it and it finally started working, but it works great now) to kill the night hits. I take 15-20mg before bedtime and sleep like a baby most of the time. Gives me the energy to fight the demon in the daylight.

Hope this is a short cycle for you and you're soon PF.

Hugs BD Kiss

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What don't kill ya, Makes ya stronger!

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Dana

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The beast hater

Posts: 44
Jacksonville, FL
Gender: male

Re: OMG the devil has arisen
Reply #7 - Apr 30^th, 2009 at 7:17pm

Hi Barbara, Thanks for the info I'll will definately try the the new mask I was just looking at them last night matter of fact. I remember when I was taking amitryptaline (elavil) it helped me sleep, but it would keep me run down the next day I had to use 2 alarm clocks in the morning. I absolutely hate taking meds, so trying the 02 again with the bigger mask may be the answer thx.

HUGS HUGS AND HUGS Grin

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BarbaraD

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: OMG the devil has arisen
Reply #8 - May 1^st, 2009 at 7:12am

Lordy, when I took the elavil, I couldn't even wake up the next day...

Try the melatonin... We all have a different reaction to meds. And what works for one of us doesn't necessarily work for the next one. Most everything knocks me on my rear or depresses the heck out of me, yet topamax doesn't bother me (and about "most" of the people who've tried it - it does a number on - go figure).

Each of us have to figure out (trial and error) what works for us. But the O2 seems to be the ONE thing that helps the biggest part of us if used properly.

Don't hesitate to ask questions about the usage of it.. We've got a couple of guys here who are "experts" on how to... Chuck and Batch and they're here to help.

Hugs BD Kiss

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What don't kill ya, Makes ya stronger!

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Dana

CH.com Alumnus

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The beast hater

Posts: 44
Jacksonville, FL
Gender: male

Re: OMG the devil has arisen
Reply #9 - May 1^st, 2009 at 9:18pm

Thanks again Barbara. Elavil was the devil huh. I hated them, I have taken so much crap since 1983 from the military docs and some of the specialist. The last time I saw a doctor was like 2000, the first thing he wanted to do was prescribe I just got up and walked out the door. I have been doing my own thing for a while, but thats not even to effective anymore I made an appt to try and get some O2. Its clean and safe, I have high blood press. so i'm limited to the meds that I can take.

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coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: OMG the devil has arisen Reply #10 - May 1^st, 2009 at 9:36pm Welcome Dana, I got one of those little bastard's hiding in my head too. Coach Bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

Dana CH.com Alumnus Offline The beast hater Posts: 44 Jacksonville, FL Gender:	Re: OMG the devil has arisen Reply #11 - May 3^rd, 2009 at 1:52pm Hi Coach certainly feel sorry for you. I hope that lil azzhead leaves you alone.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: OMG the devil has arisen Reply #12 - May 3^rd, 2009 at 7:30pm Dana....print out the info on 02 and take it with you to the doc. They're a little more comfy prescribing it with the literature to back it up. Hope it's the miracle for you it has been for me! Joe
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Dana CH.com Alumnus Offline The beast hater Posts: 44 Jacksonville, FL Gender:	Re: OMG the devil has arisen Reply #13 - May 4^th, 2009 at 8:11pm Thanks joe I will do just that. You my hero.
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