Not sure if this has been discussed but I am wondering on people's severity of CH and how it possibly correlates with their circadian rhythm.

I, for one, have horrible sleeping habits, I stay up late all the time, I take random naps, and my lifestyle is just flat out unhealthy. I write music and record it on my computer into the wee hours of the morning sometimes. I wonder if this has something to do with my condition.  A disruption of one's circadian rhythm tends to lead to all sorts of problems concerning the hypothalamus.  Also, notice how the studies say that napping during the day is really bad for CH sufferers.  

So, has anybody tried cutting off pc monitors and tv at late hours? Have you guys tried sleeping consistently at the same time every nite? Or stopping  other things that disrupt circadian rhythm?
Can we poll the board members here? What is your lifestyle like and what severity is your CH? I have a theory here I wish to explore. Thanks.

wow Barb,
What a wild, crazy out of control, mama you are.  I had no idea you were such a party animal!!!!!!!

Seriously though,  the older I get the more I love my routine of bedtime at 11:30.  up at 7am.  If I sleep too much later than that it will always give me either a HA,during cycles, or bad shadows if I am not.  that is one reason that having teenage children is so hard, because I cant stand having to stay up late waiting for him to get homeat night.

Maybe my teenage, and yound adult habits are what started the whole thing though.  never really thought about it though.   something to think about.

chrisw

hi still relativelly new to this, been having hits for about 3 years but only recently (8 weeks ago(start of cycle)) did i move my sorry arse.
i work shift work 1week early, 1week nights, 1 week lates. i tend to stay in a routine each shift of when i go to bed and as ive been keeping a headache diary i now know when im going to get hit on each shift (more or less). even saying that i have had a couple of visits during work and i do tend to do daytime naps after the early shift (yes i get hit during my nap) but since i get woke up at 01:30 with sharon (my name for the beast) then get up at 04:30 i tend to say sod it i need to get some sleep. I work on the theory that i will control this not the other way round of course sharon has other ideas and slaps me silly. luckilly enough i get 53 days holidays a year and my boss is unerstanding more or less but the lack of sleep gets to me after a while.

anyway as i said im still learning
mark (hopefully coming out of cycle) hoping for pf days for us all

I'm with Chuck and Joe on this one, although I get a bit more sleep than Chuck can.  I can never go to bed before I know I am done for the night.  That might be at 11:30, but usually not before 2.  I'm fortunate in that I'm not one who gets the REM hits, although last night I got to bed at 2, and was awakened at 3:30.  I've learned to deal with the hits that come when I'm awake, but when they awaken me they are to far gone to deal with.  I hate that!

I've had family members tell me that if I would "just go to bed and get a good nights rest I wouldn't get 'those headaches'".  If you see me without a tongue one day you will know why!

Jerry

Sleep ummm sleep let me see that is that thing that happens when most people goto that room with a big rectangle fluffy thing and lay on it. Then they close there eyes for 6 to 8 hours and get up feeling great, is this the sleep your refering to? I've heard of it but I'm not very good at it  

Ok so I have a 1 and 4 year old son I suffer with chronic pain from past  surgeries, then add the beast into the equation just for a bit of spice and you get the idea.

When out of cycle I usually get down around 10 or 11 and get up a 6:30 or 7:00 depending on how nice I am to my alarm clock. During that time I will get up 3 to 4 times or about every 2 hours, have a smoke and go back to bed. There are the other wake-up moments from my youngest since he is still breast feeding and occasionally my 4 year old will need some sort of assistance during the night. On bad night's I will sleep walk and have found the anti-depressants make it even worse. (anti- dep were for a preventative for CH's) Then if I get a chance I will nap during the day usually with my youngest during his nap time, we make great snooze partners.

During cycle all bets are off my attacks start between 6:30 and 7:30 pm daily, if I abort the first one I setup on a 1 hour cycle between attacks. this will continue until 3 or 4 in the morning and I can usually get to sleep around 5:30 or 6:00 then I will get another hit at 8 or 9 in the morning. At least my beast is punctual   then I sleep whenever I can get it, usually the middle of the day. Thank god I have my own business otherwise I would probably be out of work. If I do not abort the first attack I will get my second around 9 then through out the evening until about 1 or 2 in the morning. I will try to sleep but it is hard to come by because I know the beast is waiting for me, I will get a sleep attack anywhere from 45 min to 1 1/2 hours after I finally fall to sleep.

Hope this helps with your theory.

~James