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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hello, New guy here!

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Hello, New guy here! (Read 1097 times)

Gixxercat

CH.com Newbie

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Country Boy

Posts: 4
Jefferson, NC
Gender: male

Hello, New guy here!
May 3^rd, 2009 at 1:22am

Just wanted to say hi, and looking forward to being part of this group of pain suffering people..... as far as my CH, had them for about 6 years or longer, just diagnosed last year, before that I pretty much just assumed i had a tumor or was dying

my passion is motorcycles(sportbikes) here's a pic of me on my previous bike(didnt have one of me on the latest bike on this PC)

« Last Edit: May 3^rd, 2009 at 1:24am by Gixxercat »

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Guiseppi

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Hello, New guy here!
Reply #1 - May 3^rd, 2009 at 3:17am

Welcome to the board, sorry you had to find us but glad you did. When you get a second, please let us know what you've tried and how you tried it, what has and hasn't worked etc. The strength of this board is the combined experience of 10,000 sufferers! maybe you'll throw a new idea our way, maybe we can tweak your routine a bit to make it more effective.

And have you tried oxygen! Wink

That'll sound like a recording after a while, it's enjoying tremendous success as an abortive!

Welcome home, let's see if we can work at reducing your pain a bit!

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Gixxercat CH.com Newbie Offline Country Boy Posts: 4 Jefferson, NC Gender:	Re: Hello, New guy here! Reply #2 - May 3^rd, 2009 at 11:28am i've not tried oxygen, only thing i've found that helps is Sinus Buster nasal spray, it's pretty intense feeling but better than that pain
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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Hello, New guy here! Reply #3 - May 3^rd, 2009 at 12:03pm Welcome to the board. Do investigate O2, many of us swear by it. Bill Edited to add: I see you are in Jefferson, NC.....I'm about 1.5 hours away.
Back to top	« Last Edit: May 3^rd, 2009 at 12:08pm by Racer1_NC » “We see what we believe, not the other way around." — Varga IP Logged

Guiseppi

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Hello, New guy here!
Reply #4 - May 3^rd, 2009 at 7:28pm

Okay get thee to a headache doc who has some knowledge of CH and look into a 2 pronged approach:

1: a decent prevent. A med you take daily while on cycle, to reduce the number and strength of your hits. I use lithium. Verapamil and topomax are other high percentage prevents. They'll reduce your dependance on your abortives....

2: a decent abortive strategy. Your first line abortive should be oxygen. Breathing pure oxygen, I can STOP an attack in 6-8 minutes, that's completely pain free, Read the oxygen info link on the left as it has to be used correctly or its worthless. Imitrex injectables and nasal spray are also popular prevents.

A 2 pronged approach is not a cure but it beats staying curled up in a ball waiting for beasty to come beat you up! Wishing you some pain free time soon!

Joe

(who is about to turn 50 so he just sold his last street bike......sigh....the ravages of aging! Grin

)

"Somebody had to say it" is usually a piss poor excuse to be mean.

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BarbaraD

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: Hello, New guy here!
Reply #5 - May 4^th, 2009 at 7:20am

Tisk Tisk -- you boys and your bikes...

Now get your fanny to the doc and get some O2 -- It's the greatest thing since sliced bread (Granny has spoken!!!). I've about quit (except VERY occasionally) using any meds to abort except the O2 - it just whips the demon's rear in no time flat.

If you feel one coming on when you're out on that bike, pull into a 7-11 and grab a Red Bull and chug it - that will "sometimes" kill it before it gets started.

But get on the O2 ASAP - In the past year, I've become a BIG PUSHER for that stuff -- Read the info on the left and do it RIGHT - it doesn't work worth a darn if not done properly and with the RIGHT mask.

Welcome to Clusterville....

Hugs BD Kiss

What don't kill ya, Makes ya stronger!

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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Hello, New guy here! Reply #6 - May 4^th, 2009 at 9:16am Granny has *SPOKEN!!!* And if you ever get to meet her, you will find out, you BETTER listen to her!!! She gits a tetch annoyed, iffen y'all don't do what she says, bless her lil heart ... Welcome to the site, from a fellow Tar Heeler! Chuck
Back to top	CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: Hello, New guy here! Reply #7 - May 4^th, 2009 at 11:15am Sorry what's the this post about again I got distracted by the bike...! What's your new bike by the way.... Lefty...!
Back to top	"When money's tight and is hard to get And your horse has also ran, When all you have is a heap of debt A PINT OF PLAIN IS YOUR ONLY MAN." — Flann O'Brien IP Logged

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