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clavers CH.com Veteran Offline I love YaBB 1G - SP1! Posts: 142	CHRONIC TO EPISODIC May 5^th, 2009 at 4:54pm I think that I have gone from being chronic to episodic. It has been nearly two months since I have had to inject myself with anything. I have been chronic for eight years and being episodic again is a wonderful thing. If it is actually true...
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: CHRONIC TO EPISODIC Reply #1 - May 5^th, 2009 at 5:11pm Drink it in, baby! Enjoy the calm!
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: CHRONIC TO EPISODIC Reply #2 - May 5^th, 2009 at 5:48pm What Brew said!!! Keep everything ready to do battle....but enjoy the heck outta the good times. Maybe the beast will never find his way back! Joe
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j0hnglist CH.com Junior Offline I Love CH.com! Posts: 40	Re: CHRONIC TO EPISODIC Reply #3 - May 5^th, 2009 at 5:56pm good news. I am interested if you changed anything in your routine. Better sleeping pattern? Quit smoking/drinking? Perhaps used less abortives? I think any of these can cause rebounds
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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: CHRONIC TO EPISODIC Reply #4 - May 6^th, 2009 at 1:56pm Great news! Fingers crossed that the beast stays away! Beth
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Lottie CH.com Veteran Offline Posts: 112 Gender:	Re: CHRONIC TO EPISODIC Reply #5 - May 6^th, 2009 at 2:24pm I'm very happy for you! Hope this break lasts forever. Lottie
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clavers CH.com Veteran Offline I love YaBB 1G - SP1! Posts: 142	Re: CHRONIC TO EPISODIC Reply #6 - May 7^th, 2009 at 12:39pm THANKS EVERYONE. To JOhnglist, I increased my verapamil from 400 mg a day to 480. I don't know if that made the difference.
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ellenjoanne CH.com Junior Offline Posts: 77 Greenfield, WI Gender:	Re: CHRONIC TO EPISODIC Reply #7 - May 9^th, 2009 at 11:12am Hmmm, that's hard to say. It's possible - everybody reacts differently to meds. For you it was possibly enough to stop the CH beast. Mojo sent your way to keep CH away from you.
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coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: CHRONIC TO EPISODIC Reply #8 - May 9^th, 2009 at 8:12pm YES!!!!!!!!!!!! Please tell us is there anything you may have done different to knock the beast on his ass?? Something you ate or did?? or somewhere went?? If you got a gut feeling about something please let us know. But if not just go with the flow... Coach Bill
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clavers CH.com Veteran Offline I love YaBB 1G - SP1! Posts: 142	Re: CHRONIC TO EPISODIC Reply #9 - May 10^th, 2009 at 1:09pm coach_bill see above. I increased verapamil.
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j0hnglist CH.com Junior Offline I Love CH.com! Posts: 40	Re: CHRONIC TO EPISODIC Reply #10 - May 13^th, 2009 at 11:27am are you still taking Verapomil? Or did you get off it? I am wondering if I should try to get off it and see if I am CH Free.
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Guiseppi

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Re: CHRONIC TO EPISODIC
Reply #11 - May 13^th, 2009 at 12:43pm

Johng, I have a 31 year history of CH so I have a good feeling of when to start backing down my prevent. It's an "educated guessing game" as to when you go off your prevent. Verapamil is one of the meds you do want to work with your doc going on or off of it. Both need to be done gradually. As you wean off, if you feel the beast breaking through, you know it's not quite time yet. But do work with the doc.

Wishing you some beer drinking, verapamil free, and PAIN FREE time in your near future! Wink

joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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Bob Johnson

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Re: CHRONIC TO EPISODIC
Reply #12 - May 13^th, 2009 at 12:46pm

J Headache Pain. 2005 Feb;6(1):3-9. Epub 2005 Jan 25.

Chronic cluster headache: a review.

Favier I, Haan J, Ferrari MD.

Department of Neurology, K5-Q Leiden University Medical Centre, 9600, 2300 RC Leiden, The Netherlands.

Cluster headache (CH) is a rare but severe headache disorder characterised by repeated unilateral head pain attacks accompanied by ipsilateral autonomic features. In episodic CH, there are periods of headache attacks with pain-free intervals of weeks, months or years in between. A minority of patients have the chronic form, without pain-free intervals between the headache attacks. Chronic CH can occur as primary or secondary chronic CH; the rarest form is episodic CH arising from chronic CH. In this article, we give a review of the chronic forms of CH and focus on demographics, clinical manifestations, social habits, predictive factors, head injury, genetics, neuroimaging and therapy. IT IS REMARKABLE THAT LITTLE IS KNOWN ABOUT RISK FACTORS THAT MAKE CH CHRONIC. [Or that reverse them. --bj]

Publication Types:
Review

PMID: 16362185 [PubMed]

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Bob Johnson

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j0hnglist

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Re: CHRONIC TO EPISODIC
Reply #13 - May 13^th, 2009 at 2:19pm

Guiseppi wrote on May 13^th, 2009 at 12:43pm:

Johng, I have a 31 year history of CH so I have a good feeling of when to start backing down my prevent. It's an "educated guessing game" as to when you go off your prevent. Verapamil is one of the meds you do want to work with your doc going on or off of it. Both need to be done gradually. As you wean off, if you feel the beast breaking through, you know it's not quite time yet. But do work with the doc.

Wishing you some beer drinking, verapamil free, and PAIN FREE time in your near future! Wink

joe

cept my Neuro told me to get off Verapamil ASAP. I have another month wait list for another Neuro so in the meantime, I am going solo by using this board and research I have reach as guidance. Sticking to my verap for now. But wondering when to test weaning off it. I am not on a super high dose either. I take 4 80mg pills each day spread out and Melatonin at nite. I am clusterfree 11 days now. I hope its gone for now but afraid to wane off Verap jsut yet.

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clavers CH.com Veteran Offline I love YaBB 1G - SP1! Posts: 142	Re: CHRONIC TO EPISODIC Reply #14 - May 13^th, 2009 at 3:31pm to jOhnglist; I am still taking it, I have no intention of changing anything that I am presently doing.
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