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jesbri

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I Know You'll Understand Me
May 5^th, 2009 at 6:24pm

I walked outside this morning and noticed that the grass was a little greener, and the sky a little bluer. I listened to the radio on the way to work and hummed along to the songs as I went. I wasn't until I went on my first break the I realized "DUH" NO HEADACHE!!!!! Yeah, you would think I would have noticed before then, but they are there all the time I work really hard at ignoring them if they are below a level 4.

Anyway back to my story. I was so excited, and kinda giddy. I have been in a cycle starting my fourth month. This is the first day in over a month and a half that I have not woken up with at least the shadow haunting me. I turned my neck around, looked around, felt my forhead and nope...no shadow following me. the people at work looked at me funny as I started giggling. I told them I didn't have a headache, they just said good, maybe it's gone..........they just didn't understand the level of emotion running through me when I said it, but how could they.

Around 3 I sent an email to a friend "$%(*(#$@&$ eyelid droop", I text the same to my partner and started taking hits of the monster energy drink I keep handy to try and hold the beast at bay. I got funny looks again as I acted like a little kid pouting because he was back again.

All well, I got part of a day out of it anyway...now I keep taking my hits of the energy drink, and wait for the WHAM to come tonight. Shocked

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: I Know You'll Understand Me Reply #1 - May 5^th, 2009 at 6:26pm Those poor souls without CH....they'll never understand the euphoria of simply not being in pain! Hoping beasty is on his way out! Joe
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chrisw CH.com Old Timer Offline Posts: 315 x0\|turnersville\|NJ,USA Gender:	Re: I Know You'll Understand Me Reply #2 - May 5^th, 2009 at 10:11pm think positive, maybe you wont get hit tonight!!! But even if you do, congrats on the PF night and morning. Good luck chrisw
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McGee

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Re: I Know You'll Understand Me
Reply #3 - May 6^th, 2009 at 12:43am

been in cycle since march hadn´t had a hit for a week last sunday, things where looking rosy and i thanked the gods for every nights undesturbed sleep untill yesterday came home from night shift at 06:20 bed by 7 and woke up at 08:15 gues who´s back? well back to the old drawing board Sad

mark (going to bed in 40 minutes be back in around 2 hours Cry

)

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: I Know You'll Understand Me Reply #4 - May 6^th, 2009 at 12:51am There is no more important question I can ask than this: [quote I listened to the radio on the way to work and hummed along to the songs as I went. ] [/quote] which songs? Linda
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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: I Know You'll Understand Me Reply #5 - May 6^th, 2009 at 3:12am Those days are the best! It's always a bit amusing to me that it actually does take me some time to figure out why life feels so great and the reason behind that euforia is, naturally, being PF. It's important to enjoy each PF moment as they come. I do hope that lots of more are on their way for you! PF wishes, Sanna
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jesbri

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Re: I Know You'll Understand Me
Reply #6 - May 6^th, 2009 at 7:17am

Thanks everyone. I got hit last night, but did manage to abort it until late so I was able to go to the bar (watching them drink Roll Eyes

) and hang out with some friends for an hour before I felt the shadow decending too fast to abort it. I made it home in time to hit level six. I take each day at a time, and am learning very quickly to appreciate each PF day or even each 1/2 a PF day. Grin

ohh...and I was humming to Poker Face by Lady GaGa Tongue

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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: I Know You'll Understand Me Reply #7 - May 6^th, 2009 at 1:54pm Glad to hear you are living life to the fullest between the hits. It's all we can do. pf wishes to you, Beth
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: I Know You'll Understand Me Reply #8 - May 6^th, 2009 at 4:41pm It's kind of like the guy who would run across the room and kick the wall as hard as he could, then fall to the floor and cry. He was asked why he did it, and said, "Because it feels so good when it quits hurting!" There is no better feeling than when you realize you don't hurt! Jerry
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jesbri

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Re: I Know You'll Understand Me
Reply #9 - May 6^th, 2009 at 6:20pm

It amazes me the difference between one day and the next. If you asked me today if yesterday was worth what I'm going through now I would say no. I'd rather have everyday be a 4-5 level day then have any days with no pain and have to face the day after flirting with level 9. Today is murder, and my happy go lucky chin up attitude is gone. I wanted to be really bitchy to a person at work who asked if I was having "one of those headaches" because my "eye was doing that thing".....I made a snide remark later that I needed a DUH sign to post...no I just make it droop so I can get the attention that I DO NOT WANT.

I saw the doc again today, and my topomax is being increased again, so is the anti-depressent that he says will help, but also makes me feel hung over in the morning....so will I not only have to live the headaches each day, but I get to be a zombie too....OH YIPP Angry

I see a new neurologist in a little over a week. Sorry to rant, I definately at the level 9 "why me" stage and have been having my little pitty party off and on all day as the beast spikes through my head.

Thanks for letting me vent, I know by tomorrow I'll be better, just having a really bad/painful/frustrating day today.

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