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queenofpain CH.com Junior Offline I Love CH.com! Posts: 38 Bend, Oregon Gender:	Honestly! May 16^th, 2009 at 5:15am This sh*t sucks! In 24 hrs I was hit 15x . Just trying to sleep. Like I have said before, I am a strong woman, but this shit wants to kick my ever lovin ass! My husband, god bless his soul, is a saint for not leaving me. I know ch will end... I think. Someday, maybe. Thank you to all of the people who talk back to me.,it means alot,really!
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McGee

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Re: Honestly!
Reply #1 - May 16^th, 2009 at 5:26am

jesus your being put through the mill, sending you a suportive arm to hold you up, a shoulder to cry on and an ear to talk to. You know the Drill, one step at a time and you know your not alone Smiley

take the minutes, hours to recharge your strength get your armour on and your weapons handy and take the fight to the beast. Smiley

Mark (my heart is with you, but don´t tell the wife Wink

)

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Inventive_Mind

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Ahhhhhh Better

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Portland, OR
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Re: Honestly!
Reply #2 - May 16^th, 2009 at 5:40am

My heart goes out to you and your husband. My wife was with me today to see my GP. I felt I knew how she was feeling but hearing her explain to another person really made me realize how draining it is to her as well. I thank god for her daily and I will put you in my prayers as well.

I pray for all of us to have pain free times, strength to keep up the battle, and victory over this disease.

In the trenches with you ..........

~James

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There are no new ideas, just moments of divine clarity

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Val_ CH.com Sponsor Offline There is nothing permanent except change. Posts: 252 Bay Area, CA Gender:	Re: Honestly! Reply #3 - May 16^th, 2009 at 8:32am Hang In There Laaady! You Do have the strength, and the people here for ya!!! Glad you have your husband there for you too!! I know that makes the difference here for me (though he Does through many night hits haha.) Take care, and hoping for LOTS of PFDAN for you to come Very SOON!!! Val
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coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: Honestly! Reply #4 - May 16^th, 2009 at 9:51am 15 times, OMG!!!!! These were aborted with 02?? If so maybe trying staying on the 02 a little longer. Most i ever got was 4. Coach Bill
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paul e

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new haven, connecticut
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Re: Honestly!
Reply #5 - May 16^th, 2009 at 1:38pm

omg i couldn't not imagine 15 in one day. how long do they last? the most i've had was 6... i thought thats was hell. i've been with my girlfriend for 4 years and this is her first time dealing with this nonsense i can only hope she'll be as supportive as your husband. well i can only say goodluck and stay strong! i know i refuse to let this beat me

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how will i laugh tomorrow, when i can't even smile today

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Lottie CH.com Veteran Offline Posts: 112 Gender:	Re: Honestly! Reply #6 - May 16^th, 2009 at 4:59pm Sending all the PF-vibes I've got! I hope the Beast will turn his back on you very soon. Hang in there... Lottie
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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: Honestly! Reply #7 - May 16^th, 2009 at 7:37pm Wishing you all the positive vibes I can muster. Glad to hear that you have the support of a loving husband. Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Lenny CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 642 Los Angeles,CA Gender:	Re: Honestly! Reply #8 - May 17^th, 2009 at 2:46am queenofpain wrote on May 16^th, 2009 at 5:15am: I know ch will end... I think. Someday, maybe. ! Like you said above "THEY WILL LEAVE" and hopefully very soon.....Wishing you PFDAN.....Lenny
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ellenjoanne

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Greenfield, WI
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Re: Honestly!
Reply #9 - May 18^th, 2009 at 10:25am

15 times in a day?! Whoah! That's waaayyy more than is normal for CH. Are you sure you don't possibly have Paroxysmal Hemicrania? Those can have the same kind of pain as CH, but usually don't last as long. BUT, unlike CH, you can have a lot of headache attacks per day from Paroxysmal Hemicrania - as much as 40 attacks a day, due to the fact that the attacks are a maximum of 45 minutes in length. Here's some info on it:

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« Last Edit: May 18^th, 2009 at 10:27am by ellenjoanne »

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