Hey CHers! Has anyone had major changes, not just the clusters, but in sleeping, eating etc. as well before?
Forever, when they started I would get them around 2am every night but nothing else really changed.
But this time, not only am I getting them mostly during the day, I'm getting either more or less of them, and they are all more severe. And what's weirder, is my sleeping habits. I used to always be asleep by 10pm or so and up by 4am, but over the last couple weeks, I've either been bouncing off the walls and up for a couple days, or staying up late like 2 or 3am and up by 5 or 6am, or like the last couple days, I've been sleeping 7-9 hours and waking up completely exhausted. Just run down all to hell. And I usually eat something semi-small 2 or 3 times a day, but the last week or so, I'm finding myself eating maybe once a day and just living off shitload amounts of coffee and water and orange juice.
Anyone ever experience changes like this? I know the hypothalamus is the body's "clock," but this is truly strange.
much metta
Steve

I don't know. I haven't been on anything out of my normal Adderall, clonazepam, morphine etc. since my doctor went out of town. I see my neuro on Wednesday...maybe I'll ask him.
I HATED prednisone, but it helped. I gained so much weight, bloated, felt like styrofoam or something like that. Hard to describe unless you've taken it for some time. A couple decades ago, they wanted to try ergostat (I think that was the name), but I took it a few days (I remember it was low doses), but didn't help much, then I read about it (before computers were around much), and it said you had to be very careful with it because it could cause gangrene. So I said screw that, put me back on the pred.
Steve

yep....oxygen is something we push around here because it works, it's safe, it's inexpensive, no side-effects....did I mention it works!!!!!!!


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