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paul e

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new haven, connecticut
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just a few questions
May 18^th, 2009 at 7:15pm

first i am well past the start of my normal cycle it's usaully around feburary they start and end around this time. they have just started last week coincidently i had just gotten over the flu and a sinus infection i'm pretty sure that triggered them but i guess my question is does anyone think my cycle will be cut short or is my summer ruined i know no one knows for sure i'm just looking for someone else's experience. has this happened to anyone else? my second question is heat seems to be helping me at the first sign i take a heating pad put it on high and wrap it around the back of my neck so far out of about 20 ch's about 2 have broken through is this odd i never heard anyone mention heat before and i'm wondering if something else could be causing this....and lastly didn't this website used to have a chat room? are there any chat rooms for us anywhere

thanks,
paul

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Guiseppi

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Re: just a few questions
Reply #1 - May 18^th, 2009 at 8:08pm

We have a chat room but I haven't been in it in a while so I'm not sure how active it's been. Good luck predicting the lengths of cycles. As soon as you think you have a handle on what your cycles will do, they morph again. I've been going strong for 31 years.....long cycles, short cycles, easy ones, tough ones....I've never been able to establish what starts a cycle or how long it'll last.

There are a lot of people who respond well to heat. Seems people respond well to either heat...or cold! Never both!

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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paul e CH.com Junior Offline Posts: 25 new haven, connecticut Gender:	Re: just a few questions Reply #2 - May 18^th, 2009 at 8:10pm cold is no good for me it actually hurts
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: just a few questions Reply #3 - May 18^th, 2009 at 8:14pm How funny...heat will send me for a loop but gallon freezer bags full of ice, wrapped around my head, were my only relief before oxygen!!! Joe
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chrisw

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Re: just a few questions
Reply #4 - May 19^th, 2009 at 10:51am

the beast changes for almost all of us. What used to constitute a cycle for me, no longer applies, Now they come twice a year, every two years, or whenever they feel like showing up.
I think after going throug this for many years, CH changes into many different forms. What used to help me, no longer works, etc.

I used to get great relief from heat. During the first 5 years or so, when I still didnt know what I had, I would drink boiling hot tea at the first signs of an attack. Blowing into the cup and letting the warm steam cover my face would help alot. Heat wraps etc also helped.

You cant think that you have a cycle of CH, and that is the way it is going to be for the rest of your life. It more than likely will change in its severity, length of cycles, and time of year.

Good luck
Christine

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ocnprl

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Awakening is true Freedom!

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Indy, IN
Gender: male

Re: just a few questions
Reply #5 - May 19^th, 2009 at 11:06am

Paul, what part are you from? They seem to have a mind of their own I think. I always started mine around the start of winter, but I lived in the pacific northwest and the weather didn't fluctuate that much. Then I moved back to the midwest where it's freezing in the winter and hot as hell in the summer. I've been back here almost 2 years and they didn't start until late April/early May. And in the NW, I ALWAYS got them at night, but here, they became more frequent during the afternoon and evening. So who knows? Is it because of the change in weather conditions, or because I'm getting older, have had them for decades, and their just changing on their own? Could be many reasons. Who knows. I'm afraid one day I'll end up like Chuck and other's...over time I end up chronic! One good lesson I've learned here though, I thought I was going through total HELL until I heard other's stories. Now I'm happy with a few KIP 6-8's a day or every other day.
Some things just can't be explained without the one missing condition...time.
Good luck with it.
Steve

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"During the darkness of the night, you transformed yourself into a lion king and let out a powerful roar...but fearlessly, you never stepped back, even with so many layers of dangers." Thich Nhat Hanh

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DennisM1045

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One wave at a time!

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Re: just a few questions
Reply #6 - May 19^th, 2009 at 12:20pm

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

There you go Wink

The one thing you can depend on is that the beast morphs. Is your summer gone? No one knows. You'll soon find out. Don't dwell on it. Just get your weapons in order and kick his ass to the curb whenever he shows up.

-Dennis-

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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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paul e

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new haven, connecticut
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Re: just a few questions
Reply #7 - May 19^th, 2009 at 4:08pm

i'm in connecticut like i said they almost always start in february and end about now....i got my first ch at 17...i'm 35 now and this is the first time time they changed on me although the very first one i got was the middle of the summer and it was only one then i had 2 years off and then the pattern started. back in 2001 i got into a bad car accident broke my collar bone and got my headaches that was the last time i got them until now i guess i had a good run 8 years off isn't to bad...lol. today at work i got 3 of them between 8am and 3pm but they were a piece of cake maybe 10 minutes of very mild pain....i'm just confused but i guess i shouldn't sweat it because they are pretty tame right now. i'm just scared i dont want them back i wish they would just go away...lol...not that anybody here doesn't feel the same way. i'm just glad i found this site the biggest thing was the feeling of being alone. thank you everybody for your feedback and support!!!!

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how will i laugh tomorrow, when i can't even smile today

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Callico

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Aurora IL
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Re: just a few questions
Reply #8 - May 19^th, 2009 at 7:34pm

The only thing constant about the beast is that it is never constant.

I used to get in the shower and put it on as hot as I could stand on the back of my neck. I covered over the top of it to retain as much of the steam as I could, and would stay in there until the water got cold. That was 20 yrs ago. Now I occasionally use ice, and if the AC is on put it on high with my face right in the vent. Heat will now trigger me.

jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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paul e CH.com Junior Offline Posts: 25 new haven, connecticut Gender:	Re: just a few questions Reply #9 - May 20^th, 2009 at 4:37pm i just don't get it. why do they change on us? it's bad enough they make existence miserable but it's not enough for the beast he's got to make a game of it someone or something is laughing there ass off at us
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ocnprl CH.com Junior Offline Awakening is true Freedom! Posts: 53 Indy, IN Gender:	Re: just a few questions Reply #10 - May 20^th, 2009 at 4:45pm Take a look around, it's not just the beast that makes games of things, it's everywhere unfortunately.
Back to top	"During the darkness of the night, you transformed yourself into a lion king and let out a powerful roar...but fearlessly, you never stepped back, even with so many layers of dangers." Thich Nhat Hanh IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: just a few questions Reply #11 - May 20^th, 2009 at 4:49pm Why even ask why? It is what it is, and unfortunately those of us on this board have been gifted with it. The only thing to do is try to stay one step ahead of it so it will have as little impact on your well-being as possible.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

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