Hi Casey you are of course right in the aspect that its not right for us to expect people to understand what we go through and getting angry with them doesn´t help however on the other side after reading what others have experienced with loved ones, familly and friends also work collegues i can understand how anger can rise inside all of us.

luckilly my family have been great about this and very suportive and my wife is one of the best however in work when i talked to my boss and collegues to try to explain that if they see me having an attack to just leave me alone untill its over i got some of the stupidest responses eg one guy didn´t talk to me for nearly 2 months because after i explaind about this condition he then thought i was being miserable and looking for sympathy then decided that i was having hits 24/7 so stopped coming near me. My boss who on a good day is a full idiot didn´t want to know anything about this problem and if i have an attack in work wich would affect my production then i had to inform my shift leader so he could testify that i wasn´t bullshitting him.
things like these can bring you down to a level where i no longer tell anyone if im in cycle at work and when asked i repeat the same thing over and over when people say put a smile on your face it will get better i reply with When!!!

mostly i bight my tongue and after ive explained to people who either dont understand or care then i stop explaining especially when asked why im not going for a drink with friends or to partys.

Normally i laugh myself silly about CH as i still find it rediculous that all that pain and it doesnt do any damage to my body and i have a pretty sick humour but on my bad days when everything looks black and a bullet starts to look good any stupid comments from familly friends or collegues would send me over the edge.

apart from that i pretty much have this in control (at the moment) the sun is shining, the birds are singing and i havent been hit since last saturday.

wishing you lots of PF days and nights, keep the sunny side up, stiff upper lip, bull dog spirit, remember the alamo, keep your friends close but your enemys closer and don´t let the gits get you down.


Mark (optimistic to the point of stupidity)

There are some more than twice your age who feel a need to stick their pain in the face of others. Some who even denigrate sufferers of other headache types. I don't know exactly what it is they hope to accomplish, but they sure do look foolish in the process.

You, Casey, are wise beyond your years.

I’m afraid I get angry sometimes,
Not that it’s got anything to do with wanting people to understand what we go through but more about the loved ones that have to watch and for them to explain it.
I didn’t realise until unfortunately I had a bout while visiting my Mum

“I’m glad she saw that now perhaps she’ll know what we both go through”.

It must be pretty difficult for them as well,
It’s a shame it has a tag of (headache)

Good for you kid!!!!

I totally agree and know that pain is relative and individualized