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Stacey

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Hi, Im new to this support group.
Jun 10^th, 2009 at 1:40pm

My name is David. Im 45 yrs old and have had cluster headaches for over 12 years. Mine are cronic. I have a bad episode every week, on the day, on the hour. In between this, I have the on coming symptoms. This site is new to me, my fiancee found it for me. She is learning more about clusters than I ever have. It is nice to see Im not alone out there. Doctors sometimes make me feel that way, and its frustrating.

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Hi, Im new to this support group. Reply #1 - Jun 10^th, 2009 at 1:46pm Glad you have joined us! This bunch appreciates: a bit of history; present treatments; specific issues or questions you have. Gives us something to bite into....
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Guiseppi

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Re: Hi, Im new to this support group.
Reply #2 - Jun 10^th, 2009 at 2:14pm

Bob said it nicely...we're a damned nosey bunch! Grin

Seriously, the biggest strength of this board is it's collective experience in dealing with CH. When you have second, let us know about your treatment regimen. Do you have a decent preventative medication, good abortives, have you tried oxygen yet? You may drop a new pearl on us, we might be able to tweak your regimen a little to make it more effective.

Smiley

To your fiance for finding the site. My wife found this site for me and saved my sanity! Hoping you find some pain free time soon. Welcome to the board.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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Em CH.com Alumnus Offline I wanna go... Posts: 830 St Peter Port, Guernsey. Gender:	Re: Hi, Im new to this support group. Reply #3 - Jun 10^th, 2009 at 2:32pm Welcome to the madhouse David! Sorry you're here, but glad you found us. Read, read and read more. There's so much info here. It can take a while to get your head around it. As the others have said, let us know what you've tried and what has/hasn't worked for you. Em x
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Hi, Im new to this support group. Reply #4 - Jun 10^th, 2009 at 4:38pm Hiya David! Glad you found us..... Sorry you had to though. Tell us more about yourself! Jeannie
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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

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Re: Hi, Im new to this support group.
Reply #5 - Jun 10^th, 2009 at 11:01pm

Welcome, David!!!

Glad you have joined us! Welcome to the ~~insane asylum~~ family!

As other have said, tell us ~~nosy ba$tards~~ curious individuals what treatments you are using, and have used in the past.

Guiseppi wrote on Jun 10^th, 2009 at 2:14pm:

My wife found this site for me and saved my sanity!

OMG, Joe!!

YOU have sanity?

Will wonders never cease?! Wink

Chuck

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CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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Linda_Howell

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Re: Hi, Im new to this support group.
Reply #6 - Jun 10^th, 2009 at 11:52pm

No, we're not nosy at all. We just want to help in any way we can, but need to know more info about what you've tried and what has worked and hasn't in order to maybe steer you in the right direction.

If you stick around and read a lot of our posts as well as the links to the left you will educate yourself to a lot of info, as well as realizing that you'll never find a more caring and empathetic group of people. Folks who will bend over back-wards to help.

Linda

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Hurt people.....hurt people. Think about it.

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chrisw

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Re: Hi, Im new to this support group.
Reply #7 - Jun 11^th, 2009 at 10:52pm

thats true, ive never come across a more caring group Keep on posting and let us know how you are making out. Give your girl a big hug, because she found you a great support group

One of the most depressing things about CH is how alone you can feel, well, you dont need to feel that way anymore Kiss

Good luck,
Christine

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BarbaraD

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Hugs to ya

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Re: Hi, Im new to this support group.
Reply #8 - Jun 14^th, 2009 at 7:45am

David,

You're definitely not alone with this bunch. And we Do UNDERSTAND what you're going thru cause most of us are going thru the same thing. I've been chronic since 97 so I doubt anything you can say would shock or surprise me (Before Chuck says it -- I'm also OLD!)

Tell us about yourself and what you're taking. Do you have a good neuro? What's worked for you and what hasn't.

Pull up a chair and sit a spell.... we're here to help and we do CARE.

Hugs BD Kiss

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What don't kill ya, Makes ya stronger!

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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: Hi, Im new to this support group. Reply #9 - Jun 14^th, 2009 at 4:13pm David Welcome to the site, your fiancee has done you a great service finding this site. Now you can begin to discuss your infliction with friends who totally get what you are going through....! lefty...!
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JOEY B.

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Re: Hi, Im new to this support group.
Reply #10 - Jun 15^th, 2009 at 5:04pm

Hi David,

I am new to this as well, and I wish someone had steered me here years ago. From what I have read so far this site is the BOMB. It always helps to talk to people that understand exactly what you are going through.

Find a Great Neurologist. It may take you many, many doctors before you find "The One", but stay on them, ask questions and don't settle for anything that wont help you deal with these. Kiss your fiance every chance you get for being so supportive and proactive in getting you help and relief.

Welcome to the group and sorry that the headaches led you here.

Joe

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