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Needing your help... (Read 10971 times)

catlind

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Re: Needing your help...
Reply #100 - Oct 6^th, 2009 at 7:48am

Not only should you continue to blog your status, whether it's status quo or change, but you should do so as frequently as you can!

We read this of our own volition. No one forces us to open this thread Jon. We read it because we WANT to, we are interested, we have invested support for a dear friend and family member and are anxious for any word from you.

You are not a whiner, but yes you are allowed to whine, scream, yell, cry, throw temper tantrums and anything else you want to do. Just be sure to let us help you stand back up and dust off when you are done

I can't imagine the nightmare you are dealing with, and with the beast acting up on top - you are a strong man. Let us draw strength from your example, and use that to in turn return the favour back to you.

Cat

A true friend is someone who reaches for your hand and touches your heart.

If yer gonna be stupid, ya gotta be tough

Who is John Galt?

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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Needing your help... Reply #101 - Oct 6^th, 2009 at 10:48am Jon: Keep up the blogging and keep us posted. That posting here is more than important for your outlook.........and ours too. You'd think damn beast could give you a break though. More thoughts and prayers for you. Charlie
Back to top	« Last Edit: Oct 6^th, 2009 at 10:49am by Charlie » There is nothing more satisfying than being shot at without result---Winston Churchill IP Logged

Cathi_Pierce

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Re: Needing your help...
Reply #102 - Oct 6^th, 2009 at 12:29pm

Jon!
Standing you upright in front of me, making you look me right in the eyes...so I know you hear me when I say.."listen, now, and listen good! Whatever you need/desire to tell us IS IMPORTANT! Use this as a blog, let us know when you need help getting through a day, we are in this WITH you, and wish we could physically carry you through the tough times, as well as celebrate with you the good times! Those who care are watching and waiting for updates of any kind..........are you hearing me??"
Truth, Jon, every word of it!
I was thrilled to read about your time with family, enjoying some r&r. It feeds your soul and gives you great pleasure...and that is certainly good for your well-being!
Each day, as you awaken, greet the day, and then look and see all of us right there with you....we'll try to be quiet, but nonetheless, we ARE there! Maybe then you'll know you can say anything you need to get off your chest.
I'm not into lighting candles(the cats get their tails in the flame and run thru the house with flaming tails)....but I sure can listen, and encourage and fervently hope for each day to be a good one for you!

I could ramble on....normally would, but I hope it's not necessary. Blog, report, ask, rant, express-KEEP us involved.....why?? Because soo many people here care!
Nuff said, so I'm gonna dust off your shoulders and give you a big hug and send you on your way, hopefully knowing now, CHville is watching and waiting for more of your story any time you choose to share it.
Sending you light and love and encouragement, always,
Cathi Cheesy

PS-and if you are silent for TOO long, SEATTLE is not so big that I cannot track your sorry arse down and squeeze an update out of you! (hehe-I'm tough!)

Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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jon019

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Re: Needing your help...
Reply #103 - Oct 13^th, 2009 at 9:09pm

Hello folks,

Just checkin' in...have been TOLD that's what family does...and not only this family, but my niece too, who gently but FIRMLY told me her Mom (my sister) loves this knothead and REQUIRES regular updates (sigh, guess it's a guy thing...I don't usually tell nobody nothin', but I'm gettin' it!).

So, anyway:

I am holding my own...definitely don't feel "normal"... but pretty darn good considering. Attributing that to the following:

A recent wonderful vacation where I did not think about this crap unless it was brought up....

A realization...finally...that, ok Jon, crap sandwiches happen...you can choose to be miserable and chow down, or you can choose to move on and make the best of it. It's no fun being miserable...that may come...but why accept it when there is a choice???

Acupucture...yup....and nope, it don't help with ch. BUT, what it does do is provide an otherwise unattainable relaxation and sense of well-being that is oh so treasured. It worked so well on a 20 year back problem I figured it could help (that, and research that showed it helped with the fatigue chemo patients undergo). Believe I have found a good one who is totally upfront re what he thinks he can do vs what he can't. In other words, honest...I trust him...which is NOT to say I don't trust my oncologist...different areas doncha know.

AND...the support from family (includes y'all), friends, and colleagues that is a neverending DAILY amazement and solice to me.....I'm back to working 8 hrs per day vs the previous 6!

Next appt 10-26...blood and CT tests....we'll see where that leads....

My absolute best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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Melissa

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Re: Needing your help...
Reply #104 - Oct 13^th, 2009 at 9:22pm

Jon, I totally agree with your sister, LOL!

SO very glad to hear you found a good accupuncturist. I would love to try one out for my anxiety, but cannot afford it right now.

Sounds like you're slowly coming to terms with the unfortunate cards you've been dealt. I really, really wish this hadn't of happened to you, but I believe you have the mind and strength to see it through.

All my best to you,
Smiley

mel

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Needing your help... Reply #105 - Oct 13^th, 2009 at 9:33pm Jon - glad you are continuing to keep us posted as we keep you in thought and prayer. Carol
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jon019

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Re: Needing your help...
Reply #106 - Oct 13^th, 2009 at 9:54pm

Melissa wrote on Oct 13^th, 2009 at 9:22pm:

Yo Mel,

Jon, I totally agree with your sister, LOL!

She is the family ROCK (Deb)...comes from a long line of strong women (Grandmas, Aunts, Moms, Sisters, Nieces)....aint NOBODY can tell me about the "weaker" sex (actually it's MEN)....I am (and have been) humbled by these women... who have more heart, soul, strength, character, and LOVE than ANY man I have EVER met...shoot, I could tell you stories....

SO very glad to hear you found a good accupuncturist. I would love to try one out for my anxiety, but cannot afford it right now.

And that's too bad and I understand...when you can, be sure to ask for a cash discount. Insurance (like mine, don't usually cover)...but they do discount!

Sounds like you're slowly coming to terms with the unfortunate cards you've been dealt. I really, really wish this hadn't of happened to you, but I believe you have the mind and strength to see it through.

Thank you....like ch, there are some positives...."adversity doesn't build character, it reveals it"...that's what I'm counting on.

My best, always...

Jon

All my best to you,
Smiley

mel

The LARGE print giveth....and the small print taketh away. Tom Waits

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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Needing your help... Reply #107 - Oct 13^th, 2009 at 10:03pm Grandma_Sweet_Boy wrote on Oct 13^th, 2009 at 9:33pm: Jon - glad you are continuing to keep us posted as we keep you in thought and prayer. Carol Carol, That's what I'm talkin' 'bout....oh my...
Back to top	The LARGE print giveth....and the small print taketh away. Tom Waits IP Logged

Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Needing your help... Reply #108 - Oct 14^th, 2009 at 12:11am Thanks for the update Bro. You know we're praying, and my church is too. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

jon019

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Re: Needing your help...
Reply #109 - Oct 14^th, 2009 at 1:03am

Callico wrote on Oct 14^th, 2009 at 12:11am:

Thanks for the update Bro. You know we're praying, and my church is too.

Jerry

Thank you Jer'...when I was young and invincible my Mom and Nanno (especially Nanno) would go to church and pray for me. While I WAS appreciative and recognized I NEEDED it...I did not FEEL it.

Well, I SURE feel it now...it is truly humbling and appreciated beyond what I can describe. For whatever reason, I find it hard to pray for myself....seems selfish when there are so many in need. Just makes it that more important that you'all would pray for me.

Now, when I go to the cancer care center...I enter with a prayer for those I am about to enter with and meet...and for the staff especially. To see what they see...day after day...and to continue their good work...with remarkable good humor...that's a blessing.... don't think I could do it...so I pray for
them too.

AND...you and yours...you and yours...

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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jon019

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Re: Needing your help...
Reply #110 - Oct 26^th, 2009 at 7:58pm

Hello All,

Update after today's appointment. I report as a duty...
since I started this "blog". It is getting harder....

What I get from you all is beyond priceless...you are my second family, and I don't say that lightly. Asking for help, for a guy...at least this guy... is really hard, seems a weakness. One of the things I am learning is that that is false thinking. It has been said you know your friends when YOU need help vs when they need help...I have learned that lesson. Been doing a lot of deep breathing lately...thanks for the reminders...it helps.

As for today...good news and bad news. The GOOD is that there is no change...not better...but NOT worse. The BAD is that they have found another "growth" that will require futher testing. Can't a fella catch a break?...seems not.

I continue to remain positive....it's got to turn around someday....

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Needing your help... Reply #111 - Oct 26^th, 2009 at 9:19pm Rats Jon, but at least you are in the right place and you are being tested NOW rather than later. This is at least one good thing. Because they are on top of things, they should be able to deal with it the right way and in time. Thanks for the update and all my prayers and vibes. Charlie
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jon019

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Re: Needing your help...
Reply #112 - Oct 26^th, 2009 at 9:44pm

Hiya Charlie,

Rats?...yup...but it does bring a smile. My Father told me countless times..."Jon, you may use "street" language if you choose, just NOT in my house. Just bear in mind, it doesn't make you seem, appear, or BE smarter...in fact, the opposite". I never did in his house...and after he was gone and it was me and Ma...I chose "rats" as an alternate. She once asked me why I always said "rats" in times of stress...told her...Ma, you wouldn't appreciate the alternative.....

So yeah..."rats"...says it all...

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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catlind

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Re: Needing your help...
Reply #113 - Oct 26^th, 2009 at 10:32pm

Thanks for the update Jon. Will send out a bit extra for you with them finding another growth. Can't hurt

Your strength amazes me. This has been a lesson in the learning process all the way along it seems. This cat will continue to send up all the good vibes, juju and prayers I can for you. Your attitude is the tops, you continue to remain positive and that strength is showing through and being returned to you. I kno w this hard for you, but rest assured we are reading, following and sending all the positive energy we can your way. We appreciate your updates in a huge way and are very thankful you have chosen to include this family in your life and report as instructed.

Keep your chin up and keep smilin, we have your back.

*hugs*
Cat

A true friend is someone who reaches for your hand and touches your heart.

If yer gonna be stupid, ya gotta be tough

Who is John Galt?

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jon019

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Re: Needing your help...
Reply #114 - Oct 26^th, 2009 at 11:02pm

catlind wrote on Oct 26^th, 2009 at 10:32pm:

Thanks for the update Jon.

I really want to be able to tell y'all....Jon's ok, no worries...and I really agonize over these "updates"...sheesh...oh sheesh....my regrets for the drama...

Will send out a bit extra for you with them finding another growth. Can't hurt

Will take all I can get...sometimes I wonder if it's better not knowing...

Your strength amazes me. This has been a lesson in the learning process all the way along it seems.

Any strength I have is because of family...this one, blood, and colleagues. Cannot contemplate disappointing any of 'em.....and what I have learned is well, amazing to me....

This cat will continue to send up all the good vibes, juju and prayers I can for you. Your attitude is the tops, you continue to remain positive and that strength is showing through and being returned to you. I kno w this hard for you, but rest assured we are reading, following and sending all the positive energy we can your way. We appreciate your updates in a huge way and are very thankful you have chosen to include this family in your life and report as instructed.

Oh my...you gonna make me cry...................ahhh, there it goes....

Keep your chin up and keep smilin, we have your back.

Bowed but not broken...I put up a good front no matter what....

THANKS Cat....dang.....THANKS!

Best,

jon

*hugs*
Cat

The LARGE print giveth....and the small print taketh away. Tom Waits

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Needing your help... Reply #115 - Oct 27^th, 2009 at 10:43am My friend, I know the temptation to expect the worst is always there, but there are two outcomes to any test. It is not necessarily bad. Keep your confidence level up. (Easy for me to say) You have a lot of friends behind you, and a lot of prayers supporting you. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Linda_Howell

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Re: Needing your help...
Reply #116 - Oct 27^th, 2009 at 12:10pm

Besides what I said to you earlier in a PM, I wanted to say this too.

Cathi may not be lighting a candle because her cats tails will set her house on fire...but most people around these parts know that I DO light my candles whenever I pray for someone. I've been lighting them since you first told us the news.

I don't think for one second that God hears my prayers any better whether I light one or not...but lighting them in a room where I am by myself, and watching the flame as I pray...helps ME to pray deeper or more thoughtfully. . Just thought I'd share that with you. Kiss

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Blog away Jon. We all want/need to hear your updates and thoughts.

Hurt people.....hurt people. Think about it.

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BigMatt

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Re: Needing your help...
Reply #117 - Oct 27^th, 2009 at 2:21pm

Wow, sorry about all this Jon I just got caught up on it since I just returned to the site and had no idea what was going on with you. Well my prayers and positive vibes are here with everyone else’s for you.
Hang in there I am sure things will turn around for you soon, it shows real strength when you can reach out for support when you really need it not weakness so keep asking and you will keep receiving my friend.

Matt

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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: Needing your help... Reply #118 - Oct 27^th, 2009 at 2:40pm Keeping the prayers and all the good juju I have going your way Jon. Look at the views on this thread......we all care very much. Thanks for the update. Hugs, Beth
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: Needing your help... Reply #119 - Oct 27^th, 2009 at 4:14pm jon019 wrote on Oct 26^th, 2009 at 7:58pm: I continue to remain positive. I know it can be very difficult but it is very important that you continue in the above frame of mind Jon. Hang in there buddy... Lefty..!
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Needing your help... Reply #120 - Oct 27^th, 2009 at 4:40pm Still thinking about and praying for you my brother. Let me know if you need anything.
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Needing your help... Reply #121 - Oct 27^th, 2009 at 4:47pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or 1500+ year old Angel Oak Tree Thought of you right away.
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: Needing your help... Reply #122 - Oct 27^th, 2009 at 4:54pm Wow! Stunning! It almost seems it is from beyond this world.
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jon019

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Re: Needing your help...(update)
Reply #123 - Nov 19^th, 2009 at 8:03pm

Hello All,

A couple weeks ago, at my “regular” lube and oil change check up for the lymphoma…I was told, “and by the way” we’ve found something else that needs to be checked. A potential unrelated cancer (yikes).

Today, I completed testing for that…and while it is definitely “something”… which I will have to deal with…it’s NOT cancer! (YOW!!!).

The relief is immense…and allows me to concentrate on a couple of other battles. Like this brutal high cycle I'm in that reminds me of the days in the wilderness.....verap not working (900+ mg fergawdsake), O2 only 50%, blasting thru WAY too much Zomig....hits all night long and even during the day....same times like the old days. Shoot, I thought stress was supposed to be protective!!!

I (ALMOST) don't care though...livin between the hits...first good medical news in 6 months.

Anyway, your thoughts, prayers, concern, and support mean more to me than I can possibly express. I just wanted to at least say THANK YOU! I'm STILL a lucky man......

Best always,

Jon

Edit to add: lymphoma "stable"...not better, but NOT worse.

« Last Edit: Nov 19^th, 2009 at 8:05pm by jon019 »

The LARGE print giveth....and the small print taketh away. Tom Waits

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Needing your help... Reply #124 - Nov 19^th, 2009 at 8:08pm Jon, that is great news and I sit here with tears in my eyes. Are you taking Imitrex by any chance? Let me know if you are.
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