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Needing your help... (Read 10974 times)

Sandy_C CH.com Sponsor Offline There is no such thing as a stupid question. Posts: 3371 Jamestown, NC Gender:	Re: Needing your help... Reply #25 - Jun 26^th, 2009 at 1:52pm You da Man, Jon, you da Man. Next visit, bring breath mints. Keep your chin up, with this family and all their vibes and juju, you know we're covering all the bases for you. Let us know. Prayers and streaming to you. Sandy
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LeLimey Ex Member	Re: Needing your help... Reply #26 - Jun 27^th, 2009 at 9:18am Here's your ((((((HUG)))))) You know we love you Jon Boy xxx
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jon019

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Re: Needing your help...
Reply #27 - Jun 28^th, 2009 at 5:09pm

Hello All,

Maybe I'm just ultra sensitive right now...but listen to this....

On Thursday, after the biopsy, I was so giddy... felt better than I have in years. It was over and almost forgot why it was necessary.

That night I got a msg call from the doctors office, AFTER hours, saying to call and set up a follow up appointment RIGHT away. When I called back, they were gone. Now, I'm not dumb enough to think they could have the results that quick...UNLESS there was something really bad. I went from giddy to crushed the whole night and morning.

When I called the next morning, the same scheduler I had already set up an appt with BEFORE the biopsy said, oh, we didn't know you already had an appt...I'll talk to the doctor and if you don't hear a call, just come in for your scheduled appt. Guess how the rest of THAT day went? They never called back...

Damn... incompetence bordering on cruelty...I thought it couldn't get any worse...

Sorry...I'm venting...it helps...

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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Carl D

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Re: Needing your help...
Reply #28 - Jun 28^th, 2009 at 6:11pm

Deep breaths... DEEEEEEP breaths...

Don't panic. You don't know what the results are yet. Trust, and hope for the best. I've had a Dr's office push that 'panic button' on me before, and it was to follow-up for an explanation that quickly put my mind at ease.

A candle and vibes go out to you with a prayer that it comes back as nothing to worry about.

Peace,
Carl D

Living proof that busting can turn a chronic to episodic!

Live each day as if it were your last because one day, you will be right.

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Linda_Howell

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Re: Needing your help...
Reply #29 - Jun 28^th, 2009 at 6:24pm

Quote:

incompetence bordering on cruelty

Yup, exactly my thoughts. Now you can get angry and let the nitwits in his office get to you, or you can calmly tell the Dr. at the next available moment, that he has nitwits as well as incompetant people working for him and as many qualified people as there are out there looking for work he should have no trouble at all in replacing her/him.

Give me his phone number Jon. I'll make that call for you. Grin

Hurt people.....hurt people. Think about it.

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LeLimey

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Re: Needing your help...
Reply #30 - Jun 28^th, 2009 at 9:16pm

Linda_Howell wrote on Jun 28^th, 2009 at 6:24pm:

Quote:

incompetence bordering on cruelty

Give me his phone number Jon. I'll make that call for you. Grin

Oh Linda - I think I deserve to be the one making that call! I'm so ready to go postal the recipient will still be in orbit when we have an honest government... ANYWHERE!!

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Needing your help... Reply #31 - Jun 28^th, 2009 at 10:53pm Good idea Helen. Jon lives in Washington. so he's closer to me. I'll call first...then about 7 hours later you can call. By the time Jon gets to the Dr. office we'll have that Dr. bowing and scraping, apologizing all over himself. Let's roll Helen... Jon? the phone number please!
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jon019

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Re: Needing your help...
Reply #32 - Jun 28^th, 2009 at 11:09pm

Carl D wrote on Jun 28^th, 2009 at 6:11pm:

Deep breaths... DEEEEEEP breaths...

Carl D

Oh Carl, THANK YOU...almost forgot that, which is strange because my friends and colleagues all know...DEEP breaths...in slow...out slow is my standard advice. Been doing that on drives back and forth to work and doc appts...when I remember...I think I will...NOW

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Needing your help... Reply #33 - Jun 28^th, 2009 at 11:26pm Oh Linder and Bean...I'm 6' 3", but I think I need a ladder to look either of you in the eye. HEART trumps height EVERY time (think Muggsy Bogues).... Am also reminded of an old Texas saying: "one riot...one Ranger"... I would go to battle any day with y'all...we'll find out wednesday if the battle begins... Love Jon
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Cathi_Pierce

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Re: Needing your help...
Reply #34 - Jun 29^th, 2009 at 12:27am

Jon, dear, I'm 3 hrs south.wouldn't be such a big deal if'n ya want company! My cousin lives in Shoreline, I'd just go harass her once the Dr got his whipping from you!
Now, the inhale/exhale, repeat as necessary thing? it's madatory..and, as far as Wed goes, whether I'm sitting next to you, reading an old Readers' Digest, or doing whatever at home, I'll be sending vibes!
maybe Linda and Helen would be the best to call the Dr's ofc...'fraid I can be too nice at times....I know, it's a character flaw........ Undecided

Innnnnnnnnnn........outtttttttttttttttttttttttttttttttttt...innnnnnnnnnnnnn.....
.........outttttttttttttttttttt.......innnnn...you get it, now?

Cathi Wink

Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Needing your help... Reply #35 - Jun 29^th, 2009 at 12:50am Yuuuuuuuuuuuuuuuuuup......Iiiiiiiiiiiiiiiiiiii....geeeeeeeeeeeet .........iiiiiiiiiiiiit...thank you dear! Doin it now. And Readers Digest?..think'n that's how I learned to read...good stuff, WAY good stuff . Wednesday, dang, I always liked that day...let's see if it holds..... Best, Jon
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Needing your help... Reply #36 - Jun 29^th, 2009 at 7:01pm Still praying for you my friend. If you keep listening to us we'll hve you asleep with all that slow breathing! Jerry
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jon019

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Re: Needing your help...
Reply #37 - Jul 1^st, 2009 at 4:24pm

Hello All,

The care, concern, thoughts, vibes, and prayers ALL received and appreciated more than I can express...

Now, I'm a pretty laidback, calm dude...when the poop hits the fan... people I work with turn to me for reassurance and reasoned thoughfulness. Not so easy when it's yourself gettin' rained on...and I have been an emotional mess for 4 weeks now. Between doc appts I have been shaking and nearly barfing...but it was you all that got me through that. The doc has remarked several times on my calmness(that's on the outside doc...you should feel what's going on in the inside)...and today, really surprised him. Could see him tensing with what he was about to tell me...but hey, I had you all...

So, anyway, the diagnosis is cancer (first time I wrote or said THAT word). It has taken or affected many in my family...and it scares the crap out of me. It is lymphoma, as yet not determined exactly what type. He assures me it IS curable...but I just don't know right now as
the oncologists are apparently all on vacation in anticipation of July 4th.

Once again, I have discovered a tiny silver lining to having ch. When I first got it...the "why me" syndrome was a major part of my thought process. After a few years, I finally figured it out...Why NOT me? Same with this...there will be no "why me"..it just is...and I will deal with it as best I can...

In the meantime, your thoughts and prayers...oh my, they are really important and I would appreciate any you could throw my way...

Love,

Jon

PS My mind is swirling right now and I truly regret forgetting who to attribute this to, but the saying "stay stressed...always" really resonates. Have been chronic now for 3 1/2 yrs...high cycles...low cycles...but ALWAYS cycles...Right now, I am in a REALLY LOW cycle that I can only attribute to stress...and it's a blessing not having to battle two beasts at once...

« Last Edit: Jul 1^st, 2009 at 4:32pm by jon019 »

The LARGE print giveth....and the small print taketh away. Tom Waits

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Jimi

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Re: Needing your help...
Reply #38 - Jul 1^st, 2009 at 4:48pm

Jon................there are a lot of cancer survivors on here.......including me. If the doctor says it is curable, it probably is. Just like clusters, when you find out what type of lymphoma, do your research until you know everything there is to know of this particular cancer.

And grab hold to God's hand, he can be a real comfort during these "stressful" times.

I am convinced that life is 10% what happens to me and 90% how I react to it.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Needing your help... Reply #39 - Jul 1^st, 2009 at 5:03pm I'm one of those survivors, too, Jon. Jimi's advice is best. I'm assuming you'll be bringing your family up to speed soon...
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Needing your help... Reply #40 - Jul 1^st, 2009 at 5:15pm Brew wrote on Jul 1^st, 2009 at 5:03pm: I'm one of those survivors, too, Jon. Jimi's advice is best. Yup, got it... I'm assuming you'll be bringing your family up to speed soon... Family knows...
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Callico

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Re: Needing your help...
Reply #41 - Jul 1^st, 2009 at 6:54pm

I'll put you on our church'es prayer list tonight at our prayer service.

Jimi is definitely right. Grab hold of God's hand. He will never let you go, and He has a plan for your life that will amaze you as it unfolds if you allow Him to do it. He doesn't promise easy ways, but He does promise to be with us through them.

Keep that upbeat spirit! A positive attitude toward your treatment will go further than the treatment itself.

Jerry

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Needing your help... Reply #42 - Jul 1^st, 2009 at 7:55pm You are kin Jon, and whatever you need, you got it. As Jimi would say, "lifting you up". love & hugs, mel
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Needing your help... Reply #43 - Jul 1^st, 2009 at 8:17pm Quote: I truly regret forgetting who to attribute this to, but the saying "stay stressed...always" Around here, that would be Bob Gibson who lives in "sin City" Jon, please listen to Jimi...he knows where-of he speaks. You're going to be fine.
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Peppermint CH.com Alumnus Offline Work it out baby! Posts: 2908 New York\|USA Gender:	Re: Needing your help... Reply #44 - Jul 1^st, 2009 at 8:45pm So sorry you have this diagnosis, but as others here have said, if the doc is speaking positively, this is fantastic. You will be in our thoughts and prayers here at my home. At the risk of repeating myself.. stay positive. Pepp & Kiddo
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Needing your help... Reply #45 - Jul 1^st, 2009 at 9:08pm Prayers continuing on the way from Canada Jon. It sounds like you're in good hands right now. Hang in there and keep us posted. Carol
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Cathi_Pierce

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Re: Needing your help...
Reply #46 - Jul 2^nd, 2009 at 9:45am

Jon,
Ohh, how that C words sends chills up our spines......but NOT having a dx would be so much worse! Now you know you and your Dr have a fight on your hands and you know what it is you're fighting! So, overturn every rock, learn all you can, team up with DR to fight this, and keep your faith in God throughout. We'll be here, streaming vibes your way and cheering you on!

Cathi Cheesy

Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Needing your help... Reply #47 - Jul 2^nd, 2009 at 10:42am Rats. Nothing's ever easy, Jon. I agree that when doctors say that it can be cured, it's a good bet. They hem and haw otherwise. (never wrote "hem and haw" before...not sure that's how it looks....) Anyway, we're going to be here every day. Clusterheads stick around.....and these people are right Jon! Charlie
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jon019

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Re: Needing your help...update
Reply #48 - Jul 16^th, 2009 at 11:21am

Hello,

Having involved you all in my own little personal drama (no regrets there, I figured information was way better than surprise) ...I feel it incumbent on me to report my progess...so here it is...

Yesterday, I visited the Seattle Cancer Care Alliance for the first time....must admit many DEEP breathing execises on the way...nobody wants to go there...I sure didn't, and the first nurse I met held my hand (nice touch) and said the only ones who WANT to be here, WORK here! (funny lady).

Excepting the admitting clerk (impersonal and distracted), I found all there to be warm and comforting. The Doc and PA were matter of fact, yet guardedly positive...I'm taking that as a good sign (what else is there?). Several more tests to come...we'll see.

So, anyway, that's as much as I know, and it aint much more than I knew before...but it's not looking REALLY bad. And I am definitely positive. Will keep you updated...

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Needing your help...update Reply #49 - Jul 16^th, 2009 at 2:24pm jon019 wrote on Jul 16^th, 2009 at 11:21am: So, anyway, that's as much as I know, and it aint much more than I knew before...but it's not looking REALLY bad. Here's one thing you didn't know before: The next time you go it won't be half as intimidating.
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