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cash5542

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CH and brusing question
Jul 8^th, 2009 at 10:43pm

Lisa had her check up with her neurologist today. As usual, he asked if she had any brusing. And as usual she said yes and he continued the appt. with no comment. Today, I asked why he always asks this and just goes on and he said that it is pretty common that brusing occurs pretty easily with CH patients yet they don't really know why. He didn't seem to concerned, just checking in. Blood tests have been fine so maybe he's right. She climbs out of the pool and her shin is bruised! Has anyone else found this to be true? He's a great doctor from one of the top CH programs (Jefferson Hospital) so I doubt he's wrong. I'd love to hear others experience. Yes or no to bruising???

Charlotte

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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: CH and brusing question Reply #1 - Jul 8^th, 2009 at 10:48pm This is the first time I have heard that. IF that is true, then this is just another CH rule that I break. I am VERY difficult to bruise ... Chuck (But as her Mom, you probably DON'T want to hear that those bruises are really from the wild and kinky sex that she has ... )
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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: CH and brusing question Reply #2 - Jul 8^th, 2009 at 10:50pm I don't recall Joe bruising easily either. That is except when he closes his thumb in his door but that is a story for a different thread or over cocktails some day.
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: CH and brusing question Reply #3 - Jul 8^th, 2009 at 11:08pm It's new to me too. I wonder how many clusterheads take Warfarin? You people are still young and don't need blood thinners though. Tell Lisa to stop banging her shins on the side of the pool Charlie
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: CH and brusing question Reply #4 - Jul 8^th, 2009 at 11:29pm I think I bruise less easily than Joe Average. And my neuro has never asked me about it.
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: CH and brusing question Reply #5 - Jul 9^th, 2009 at 2:12am I don't bruise at all easily. But I'm also heterozygous for Factor V Leiden, and Factor V individuals seldom bruise. Best, George
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Charlotte CH.com Alumnus Offline Posts: 2385 Patterson,California Gender:	Re: CH and brusing question Reply #6 - Jul 9^th, 2009 at 5:37am I bruise frequently but I bump into things. Charlotte
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: CH and brusing question Reply #7 - Jul 9^th, 2009 at 6:42am No bruising for me. I should have some pretty bad one's from biking but if I am bruised they don't show up on me
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monty

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Re: CH and brusing question
Reply #8 - Jul 9^th, 2009 at 7:59am

It's good that a doctor would ask that - there have been several discussions here and in the research about people that have coagulation disorders like thrombosis and cluster headaches. Some people that have been put on blood thinners like warfarin claim these drugs help them.

At this point, I don't think we can say all clusterheads have these type of blood/circulation disorders, but it is one avenue to think about. There have been a few people that had far fewer cluster headaches after treating moya-moya disease, which also reduces blood flow to the brain (it involves bone narrowing the arteries, not a blood clot, but the result is the same - less blood flow).

Quote:

Warfarin as a therapeutic option in the control of chronic cluster headache: a report of three cases.
Kowacs PA, Piovesan EJ, et al.
J Headache Pain. 2005 Oct;6(5):417-9. Epub 2005 Aug 1.
PMID: 16362716 [PubMed - indexed for MEDLINE]

Remission of refractory chronic cluster headache after warfarin administrations: case report.
Souza JA, Moreira Filho PF, et al.
Arq Neuropsiquiatr. 2004 Dec;62(4):1090-1. Epub 2004 Dec 15.
PMID: 15608975 [PubMed - indexed for MEDLINE]

Images from headache: cluster-like headache associated with intra-cavernous carotid artery thrombosis.
Ashkenazi A, Brown F.
Headache. 2008 Sep;48(8):1214-5.
PMID: 18808501 [PubMed - indexed for MEDLINE]

Cluster-like headache heralding cerebral venous thrombosis.
Rodríguez S, Calleja S, Morís G.
Cephalalgia. 2008 Aug;28(8):906-7. Epub 2008 Jun 6.
PMID: 18540872 [PubMed - indexed for MEDLINE]

Cerebral sinus thrombosis presenting with cluster-like headache.
Georgiadis G, Tsitouridis I, Paspali D, Rudolf J.
Cephalalgia. 2007 Jan;27(1):79-82.
PMID: 17212688 [PubMed - indexed for MEDLINE]

Secondary cluster headache: a presentation of cerebral venous thrombosis.
Peterlin BL, Levin M, Cohen JA, Ward TN.
Cephalalgia. 2006 Aug;26(8):1022-4.
PMID: 16886941 [PubMed - indexed for MEDLINE]

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: CH and bruising question Reply #9 - Jul 9^th, 2009 at 8:47am I bruise more easily also. Perhaps it's more of a female tendency than a male one....
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Batch

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Re: CH and brusing question
Reply #10 - Jul 9^th, 2009 at 9:24am

Charlotte,

This may or may not have any direct relationship to bruising associated with Lisa's cluster headaches... but bruising is listed as side effects from verapamil...

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Take care,

V/R, Batch

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: CH and brusing question Reply #11 - Jul 9^th, 2009 at 9:19pm Melissa, Melissa, Melissa, . . . Wimminz don't GET CH! I'm outta here! Jerry
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: CH and brusing question Reply #12 - Jul 9^th, 2009 at 9:28pm Callico wrote on Jul 9^th, 2009 at 9:19pm: Melissa, Melissa, Melissa, . . . Wimminz don't GET CH! I'm outta here! Jerry
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: CH and bruising question Reply #13 - Jul 10^th, 2009 at 7:02am Melissa wrote on Jul 9^th, 2009 at 8:47am: Quote: I bruise more easily also. Perhaps it's more of a female tendency than a male one.... I think I would agree with you on that one Mel.... My little one Ceara is covered in bruises from just playing about, whilst Shane hardly got any. Lefty..!
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cash5542

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Re: CH and brusing question
Reply #14 - Jul 10^th, 2009 at 9:58pm

Thanks for your input. First off, Chuck I doubt Lisa is having kinky wild sex. Huh

She has very little time and most of her days are spent in the pool with a ton of little kids. I think possibly it may be from the verapamil although she is on a really low dose (240mg). The same thing happened when she was on prednisone. We'lll keep and eye on it. Thanks again!

Charlotte

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Kirk CH.com Alumnus Offline VINIMUS, VIDIMUS, DOLAVIMUS Posts: 2393 Harts Lake, WA Gender:	Re: CH and brusing question Reply #15 - Jul 11^th, 2009 at 7:12am *I've had a lot of bruises and broken bones. But I don't think that CH had a thing to do with it. In fact the last time I got hit by a car I did'nt get one bruise out of it.*
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