Hi,

been a while since I have been on here, been a cronic suffer for 2 yrs now with no break. I have now had nerve block done for  the last 4 months which is heaven! stops my attacks for about 3 weeks but my question is to anybody else who has had  or has nerve block done is do you have any other problems after.

I also suffer with ankylosing spondylitis amoungs other things (how lucky am I lol) and evry time I have had the block I have had a major AS attack, has anybody else found problems or is it just me?

I would also love to hear from anybody that CH and AS or anybody heard of any link between the 2 the docs just say I am very unlucky but I wonder.

Thanks

AS, (won't even try to spell it!!!) haven't ever heard of that! Glad the block is providing you some relief, I remember the heaven I felt when we first discovered lithium was an effective prevent for me. It's really something to not feel helpless against this stuff. Welcome to the family.

Joe

If you are going to choose minority disorders, well, you have really gone all the way!!

Yes, I've had AS since I was  ???? 13 or so. Fortunately, not a severe case but it was not diagnosed until I was about 35. Used Indocin with great success for many years until my gut finally started to rebel. Shifted to Celebrex (which is useless!) but always holding Indocin in reserve. Now that I'm 73, the AS has quieted very much but, to your question, I have never thought of any association between the two, never any experiences which would have triggered the thought.

(If you don't know it, there is an AS Association in California which would be worth supporting. Small group but tryng hard to foster research and education. Can find them on the web.)

I've also aged out of CH although, the last several years of active attacks, were perfectly aborted with Zyprexa. (It was my pleasure to introduce it to the group and we have several folks who have had excellent success with it.)