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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › new guy

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new guy (Read 1065 times)

trapper rich

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new guy
Jul 12^th, 2009 at 6:11am

hi im richie,54, 13yrs sober, got my first ch 6 yrs ago, thought i had a tumer,lol, had an episode each yr till o7, i quit smoking in 07 after 2pks a day 4 35yr Sad

didnt get any ch last yr,woot,i really thouht i beat it, but, this month same time as in 07 BAM!!!! thier back, dam, the timeing confuse me, i had the first at 930pm the first 2 days then on day 3 730 n 9 fourth day 330,6,730 then none, yesterday i felt one coming but in less then 5min it was gone??? could it be its over? has anyone had this happen?? idk, in the past they ALWAYS hit at the ''same'' time EVERYDAY?? thank you, and may you have a cluster free day

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JustNotRight

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Re: new guy
Reply #1 - Jul 12^th, 2009 at 9:26am

Hi Trapper Rich and Welcome!

Many of us do have certain times of the day that we get hit with a CH attack. Mine are at night after an hour to an hour and a half of sleep sometimes longer, then I'm awake with a screaming beast of a CH attack. I also tend to get hit between 1pm and 5pm if I'm going to get a CH Attack during the day, this especially sucks when at work.

Have you seen a Neuro ? My suggestion is to see one as soon as possible to rule out any other causes, but due to timing an schedule of re-occurrence they do sound like episodic cluster headaches. See a Neurologist as soon as you can.

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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: new guy Reply #2 - Jul 12^th, 2009 at 10:27am Hi Rich - welcome to the group, sorry to meet you this way. I'm a supporter, my husband also suffers from CH. Our experience, as others will likely share, is that CH changes over time. What do you use as preventives and headache abortives? Christy
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trapper rich

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Re: new guy
Reply #3 - Jul 12^th, 2009 at 1:50pm

thank you, i have an o2 tank i use when i feel one coming (LIKE NOW!!) IV'E USED IMITREX 50MG BUT I SUFFER FROM ANXIETY, SO I WONT TAKE ONE FOR FEAR OF HEART ATTACK-- UNLESS MY CH IS A 10, THEN IVE TAKEN IT,LOL,SOUNDS DUMB BUT , RECENTLY I FOUND IF I TURN MY HEAD A LILL to the left and use my right hand to pinch the back of my neck it helps?? Undecided

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Skyhawk5

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Re: new guy
Reply #4 - Jul 13^th, 2009 at 11:56pm

Welcome to CH.com Richie,

Check out the "oxygen info" tab on the left of this screen. With the right equipment and use, O2 aborts up to 99% of my attacks.

Imitrex pills are considered too slow reacting for CH. The inhalers or injections are much better. With the right O2 gear you may not even need it, or very rarely.

Wishing you the best, Don

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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trapper rich CH.com Junior Offline I Love CH.com! Posts: 31 Gender:	Re: new guy Reply #5 - Jul 18^th, 2009 at 3:56am thanks don, i tryed the inhalers once but didnt seem to help? i never heard of the injections, although i dont like the idea of needles,lol,i have cosidered a 380 to the temple,lol, but thats TOO permanent,lol, i just wish i can remember how long they lasted in 07? i know it was july but cant remember when they stopped
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Re: new guy
Reply #6 - Jul 18^th, 2009 at 6:03am

Hi Richie,

Welcome, and sorry you are going through this too! Embarrassed

I just wanted to reiterate a few things - clusters can change any time, so having them at the same time one cycle doesn't mean they'll always be that way. Mine are no longer predictable.

Check into the Oxygen info as a primary abort for your headaches - take the info to your headache specialist (and get one if you don't have a good specialist) - The Oxygen works well without side effects and you don't have to worry about the issues of heart probs like you do for anxiety with imitrex.
As for the imitrex shots, I do keep those for backup for when I'm not by the oxygen - they work Much better than pills which take WAY too long. The shot is in a pen - it's in an injector. It's called a statdose Kit. You don't even see the needle. You can probably look it up if you're nervous. Or ask your specialist, once again. Much better than pills for CH. Wink

Val

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Re: new guy
Reply #7 - Jul 18^th, 2009 at 12:24pm

Welcome to the board Rich! For the first 20 years I joked they set the atomic clock by my cycles. The start and end dates, the attacks themselves, like a well oiled machine!!! I hit my 40's and the cycles went all over the board, got my first introductions to the wake up at 2:00 am with a screamer attack. Point is, yeah, the beast morphs like a son of a gun!

Glad you have oxygen. 31 years and it's still my first line of defense. Do read the oxygen info on the left to make sure you're getting the full advantage of 02. The critical points are a non re beather mask, and a high flow regulator. Have you ever been put on any prevent meds? A med you take daily, while on cycle, to lessen the number and intensity of your attacks? I use lithium, Vreapamil is currently a front runner for your first try. Certainly worth talking to the doc about. Can really reduce your dependance on the 02 while on cycle.

Danged glad you found us.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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