Click this link to read a post I like on the clusterheadaches.com message board...

May 24^th, 2025 at 6:05am

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New to the forum...

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

New to the forum... (Read 988 times)

jazzman172

CH.com Newbie

Offline

I Love CH.com!

Posts: 4
Powell River, BC - Canada
Gender: male

New to the forum...
Jul 13^th, 2009 at 9:53am

...but not new to CH. Started getting them at 20, Dr. said I'd probably outgrow them but now I'm 50 and still going strong. Have been on all sorts of drugs but none other than abortives (Imitrix inhalers work well) have helped. I am now trying Kudzu thanks to this forum! I did NOT have a second episode last night. What a relief to not wake up after an hour in pain! Hopefully the Kudzu is helping.

How nice to find a group of people who GET what I'm going through. Of course, I wish that there was no need for this group but I'm relieved to see that I am not the only 'special' person in the world.

IP Logged

Click Here to visit the CH.com Facebook page!

Bob Johnson

CH.com Alumnus

Offline

"Only the educated are
free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: New to the forum...
Reply #1 - Jul 13^th, 2009 at 12:30pm

Here is current thinking re. therapy:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
================
Michigan Headache & Neurological Institute for another list of treatments and other articles:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Bob Johnson

IP Logged

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: New to the forum... Reply #2 - Jul 13^th, 2009 at 1:13pm Welcome, Bob has you off to a good start. Drop in anytime Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

jazzman172 CH.com Newbie Offline I Love CH.com! Posts: 4 Powell River, BC - Canada Gender:	Re: New to the forum... Reply #3 - Jul 13^th, 2009 at 2:44pm Thanks Bob and Iddy!
Back to top	IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: New to the forum... Reply #4 - Jul 13^th, 2009 at 6:26pm Damn glad you found us jazz, hoping the Kudzu holds up for you. If not, do check back in and we'll chat about all the different prevents and abortives currently enjoying a decent success rate. Here's hoping the Kudzu kicks it for you. I'm 49, about 31 years of CH, still waiting patiently to outgrow the damned things! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: New to the forum...
Reply #5 - Jul 14^th, 2009 at 12:03am

Hi Jazzman, I'm 55, been dealing with them since at least age 23. Maybe they are waiting for me to grow up before outgrowing them. Cheesy

Glad to hear the Kudzu might be working for you. It will probably take a little time for it to build up in your system to be most effective, and yo might have to play around with the dosage a bit before you find what is optimal for you. I know I was taking 3 a day until just recently I upped mine to 4, and I think upping it helped. With CH though you are never sure. It seems to morph on you to fast. All I'm saying with this is be flexible. Don't think if it quits working that nothing will. You just need to change up with it.

Keep us posted! Keep reading. You will find a great deal of knowledge here that is for your taking and usage. All we ask in return is for you to help someone else in turn.

Jerryu

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

jazzman172 CH.com Newbie Offline I Love CH.com! Posts: 4 Powell River, BC - Canada Gender:	Re: New to the forum... Reply #6 - Jul 21^st, 2009 at 10:20am Not sure if it's the Kudzu, though I'd like to, but went without meeting the Beast at all yesterday. That's the first day in about a month. Woo-hoo! Hopefully there will be more to follow. Thanks to everyone who responded. This site is a tremendous resource!!
Back to top	IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: New to the forum... Reply #7 - Jul 21^st, 2009 at 1:24pm Hey Jazzman, Dig the name...Jazz is in my blood too lol. Do ya know joe Lovano....He's my cousin Wishing you PF times. E
Back to top	I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again. IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!