Click this link to read a post I like on the clusterheadaches.com message board...

May 18^th, 2025 at 4:02pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hi new here

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1 2

Hi new here (Read 4120 times)

campergal CH.com Junior Offline I Love CH.com! Posts: 50 ks Gender:	Re: Hi new here Reply #25 - Jul 22^nd, 2009 at 12:09pm That was my family doc, not a neuro. He said he'd send me to one if I wanted. Going to try an open MRI and 02 for starters, I guess. Hope Open MRI is ok.
Back to top	Love is the answer. Love IS. IP Logged

campergal CH.com Junior Offline I Love CH.com! Posts: 50 ks Gender:	Re: Hi new here Reply #26 - Jul 25^th, 2009 at 5:18pm I've checked out the few docs recommended here but found 2 of them had low ratings, and one other doc recommend by someone my reg doc didn't like. So not sure what to do about 'a specialist'. My reg doc seems knowledgeable. How much I don't know. He did order a MRI that I had Friday, and 02 will get next week.
Back to top	Love is the answer. Love IS. IP Logged

campergal CH.com Junior Offline I Love CH.com! Posts: 50 ks Gender:	Re: Hi new here Reply #27 - Jul 30^th, 2009 at 6:20pm MRI is normal. So I guess that is good, not surprised, but nice to know.
Back to top	Love is the answer. Love IS. IP Logged

Val_ CH.com Sponsor Offline There is nothing permanent except change. Posts: 252 Bay Area, CA Gender:	Re: Hi new here Reply #28 - Jul 30^th, 2009 at 6:41pm GReaT!! Still a good thing. How was the open MRI experience? Easier to handle?
Back to top	IP Logged

BarbaraD

CH.com Alumnus

Offline

Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: Hi new here
Reply #29 - Jul 31^st, 2009 at 12:14pm

Nuther thing with the O2 -- Make sure you have the RIGHT mask. On this site is the CH.com store -- the Op2tx (or whatever it's called) mask is great. But be SURE you have a non-rebreather mask or you're not getting what you need with the 02.

I'm an O2 pusher like a lot of others here. I use the demand valve and very seldom have to use another abort.

If you happen to be out (away from your O2) you might try a can of Red Bull (or another energy drink with at LEAST 1000mg of taurine in it). I carry one with me (just in case). Chug it at the first sign of CH - helps in a pinch.

Welcome to Clusterville. It's the best place to be if you're a Clusterhead. We KNOW how you feel = believe me WE KNOW!!

Hugs BD Kiss

What don't kill ya, Makes ya stronger!

IP Logged

campergal CH.com Junior Offline I Love CH.com! Posts: 50 ks Gender:	Re: Hi new here Reply #30 - Jul 31^st, 2009 at 3:51pm Val, The open MRI was great. They did give me med but my system doesn't respond to pills. What they gave me should put someone out, but only once did I feel a little sleepy. They covered my face and I think that really helped!! So over all it was a good experience!
Back to top	Love is the answer. Love IS. IP Logged

campergal CH.com Junior Offline I Love CH.com! Posts: 50 ks Gender:	Re: Hi new here Reply #31 - Jul 31^st, 2009 at 3:54pm BD, My last cycle I used a non-rebreather mask and it worked for me most of the time if I got it early.
Back to top	Love is the answer. Love IS. IP Logged

Pages: 1 2

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!