I have had the worst night ever. I was watching TV about 9pm and got hit with a KIP 7. Got on the O2 and Nasal Sumo (after 15l O2 failed to shift it after an hour) and went to bed.

Hour later, devil shoves me out of bed with a KIP 8.

I get up, time myself 30 mins with the O2 which shifts it enough to try and get back to sleep.

I get back into bed to discover I have the worst stomach ache ever (takes the piss with the pain!) , my bf is snoring like a rhino. I eventualy nod off due to exhaustion... hour later... devil shoves me out of bed... repeat, repeat, repeat all bloody night long.

9am I get up and chug 2 pints of taurine/caffine drink. I have been avoid doing it all night because I wanted sleep and my stomach hurts like hell. I hate te stuff it's like drinking petrol.

If I wrote down I have a KIP 7/8 seven times since I went to bed and I've not even had breakfast yet, no doc in the land would believe me.

I'm maxed out on my 24 hour sumo dosage  too so if I have such a hardcore day it's going to be character building getting through it.

Does anyone else suffer with this frequency? How on god's earth do you cope?

Fingers crossed for a PF few hours. Thanks for listening xx

We don't have pain clinics in the UK, but I am going to my docs on Monday morning. The tapered dose of steriods is what aggregated the beast in the first place so I thought. My bf has just helped me do some drug research on the net and I now think I might benefit from having a high dosage blast of peresidone again while I wait for the Topimax to settle in.

Sorry to hear you are getting such an as kicking

Hoping you find some pfds

First of all, I could not deal with the snoring thing and the head demon at the same time, but I can understand you have to do what you have to do. My husband's voice kills me when he is speaking in a normal tone,  and if he were snoring I would leave the room, because it is toooo much for me. One of us would be in the other room, plus I WOULD rather be alone anyways. I had a bad one this morning kip8-9 and my husband dropped a quarter on the floor and it sounded like a 4 pound hammer hit the floor. It sounds like you need to eat or coat your stomach because these meds alone a killer on the gut, but again we do what we do. I have had to ask the dr for things for my stomach. For everything good about these meds there is something bad too.