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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › something is different this time

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something is different this time (Read 853 times)

red ryder

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something is different this time
Aug 10^th, 2009 at 2:53pm

Hi all, I am a 15 year clusterhead who found this site last year towards the end of my cycle, this is truely an awesome site with the best knowledge possible. I am a 35 year old male and as stated have dealt with the beast for 15 years. Usualy starting in June-July and going for 6 weeks. Well this year it started on the summer solstice June 21st (imagine that). But it is different it is dull and only seems to go up to about kip 3 - 4. Didn't do anything different in between cycles. I can even have a beer or two and it just stuffs me up but does not slam me like usual. Just feels like bad sinus type pressure with the tender scalp issue. I am into the 7th week here and like I said I am not complaining by all means I am familiar with kip 9 -10, I've put my fist through drywall! Just wanted to know if any of you vets out there have had a cycle like this. Just worried that it is lasting longer than the others. Thanks. Jay

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: something is different this time Reply #1 - Aug 10^th, 2009 at 4:58pm "...worried..." Why? You can't do anything about it; you don't know what will be the outcome. Just appreciate that you're back among buds!.......
Back to top	« Last Edit: Aug 10^th, 2009 at 4:58pm by Bob Johnson » Bob Johnson IP Logged

jim murphy

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Re: something is different this time
Reply #2 - Aug 10^th, 2009 at 6:04pm

It's interesting to find someone going through the same sort of episode that I am. I've danced with the beast for over 40 years but started my current cycle 5 weeks ago after a break of 10 years.
I've had a couple of KIP 6 or 7's in that time but the majority have, like you been 3 and 4's that are more a pain in the ass than anything else.
Previous episodes always included at least one 8 or 9 a day so I'm not complaining. Beer is my poison of choice but I've laid off since the clusters returned because I remember what used to happen if I had one. I'd get an 8 or 9 within 10 minutes of having one so I'm not tempting fate. You mention tender scalp and that's interesting because I'm having that but I don't honestly recall ever having it before this episode. I guess that's what makes clusters so great. They always find a way to surprise you. Hang in there.

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red ryder

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Re: something is different this time
Reply #3 - Aug 10^th, 2009 at 6:10pm

True, I guess I should listen to my wife and not worry about the future. I guess what I am wondering is if I should temp the beast and try my migranol spray to try and be done with these kip 3-4 or just ride it out. God knows I don't want the usual kip 7-8 that wake me up from sleep like the last cycles. All I am doing right now is redbull, coffee, I have O2 but it is only at a flow rate of 8lpm and I suck it straight from the hose basicly to not let in any other air in. Jay

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Skyhawk5

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Re: something is different this time
Reply #4 - Aug 10^th, 2009 at 10:07pm

At one time most of us could set our Calenders and watches by our CH. Most often it will at some point change the game plan.

I have had at least one mild cycle. And I have used O2 @ 8lpm. Today we've found this to be too low for most of us. 15lpm with a NON-REBREATHER (with the bag) is the new minimum. If less works you can turn it down. Most of us need even more, 25lpm+.

Read the "oxygen info" link on the left of this screen for up to date O2 use. I know you may not need it now but being prepared is just wise.

Enjoy the PF time and good luck.

Don

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: something is different this time Reply #5 - Aug 10^th, 2009 at 11:32pm What Don (Skyhawk) said. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

red ryder

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Re: something is different this time
Reply #6 - Aug 11^th, 2009 at 9:03am

Thanks for the advice guys its nice to know that some of you have gone through similar cycles. I guess what I wanted to hear was (yeah thats what mine did before my cycles stopped for 5 -10 years)

I will just be glad it has been an overall very mild cycle and just hope it comes to an end soon. Much PF vibes out to you guys. Jay

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