Cathi_Pierce wrote on Aug 22nd, 2009 at 7:37pm:Hi Mastiff! I am thrilled that your CH is in remission. I don't like to hear anyone is getting hit.
I will, however, make a few statements, not intended to offend, but, perhaps help you understand us, while we can better understand you!
Sleep Apnea seems to be the affliction du jour. Plenty of Apnics here who have not found relief from CH.That being said, I'm thinking the 02 delivery while you are asleep seems to be doing you some good..and I can accept that completely...BUT I never thought about the connection between CH and CPAP-which is a constant delivery of 02, I believe.
I guess I should ask, Mastiff, have you been diagnosed with CH? Have you answered the quiz on the left here? CH is said to be caused by a malfunction of the Hypothalamus, but a hit CAN be successfully aborted by a high delivery of 02.
Overall, PF is PF, and that is a wonderful thing. I hope you continue to be PF.
Please keep us posted.
Cathi
Edited to qadd. HAPPY BIRTHDAY!
You are correct, I have some symptoms of migraines and my doctor diagnosed me with both. My pain is stabbing rather than throbbing and always in the temple. I have very red weeping eyes (my brother says it looks like I lost a fight) and a lot of drainage from my nose. However I also experience severe nausea. If I eat anything with MSG or am around a lot of tobacco smoke the headache has throbbing with the sharp stabbing pain. Most of the time they seemed to get better and wham I was down again, sometimes 3 or 4 times in a 24 hour period. Occasionally I would get a warning of up to an hour that hell was going to break loose, most of the time they happened in 10 minutes or less. I was a mess and caused my family a lot of stress. I was sure that when I died it would be from one of these headaches. Another trigger I have is the weather, I could always tell 8-10 hours before a storm would hit. But flying or elevators never set it them off that I can remember.
I was also recently diagnosed with Protactinoma - which is a tumor around my pituitary gland the put a lot of pressure on my optic channel and my hypothalamus. That is also under control now. My doctor found that 'interesting' but we are unable to determine if that was affecting the headaches I had. All I can tell you is that for me the severe stabbing headaches with the runny nose and boxers eyes have all but subsided. A good dose of MSG or smoke will still give me the more classic migraine which is alleviated with Midrin.
Brew is also correct on the Bi-Pap or CPAP - only clean air forced in, the mask has ports for oxygen which adds more relief. I did use the ports initially, but found that I no longer needed the O2 boost after a few years.
Kilroy - what can I say - you have my prayers and hopes that it gets better. Have you tried adding O2 to the mask ports? I think it helped for a while.
You are also right about the affliction du jour. However 60% blood oxygen and 40 episodes an hour were pretty convincing that I have the real thing. A real sleep study is critical, the first I did was an at home study. WASTE of time and money. That caused a one year delay in effective treatment which included O2 added to the mask. The difference is the ability to get a good brain scan and O2 readings. My first machine was a CPAP - wrong machine for me - important - for me. I needed the Bi-PAP and O2. If you suspect you have apnea get a hospital study that takes 12 hours and has direct supervision.
I don't think there is a silver bullet for any malady, my hope was to share my story and if I helped just one person, then at least I have helped.
PS
I looked for the "quiz on the left" and did not find it. Where should I be looking?
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I found serious help - I had sleep apnea (Read 1173 times)
