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Not this again (Read 1316 times)

tigerman

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WDE Anybody but#48

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x0|anniston|USA||0|0|AL,Alabama
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Not this again
Aug 26^th, 2009 at 8:59pm

Well its been almost 2 years and the bitch is back Angry

I still have some Verap and prednisone(8 months out of date)
Been taking for 1.5 weeks
It has only woke me up a few times once I fall asleep

I am getting hit between 600pm and 1000 pm.
The last 3 days my head has not stopped throbbing in between the hits.My jaw is killing me too.
All this is on the same side of my head.
I almost forgot how annoying this CH is
I am off work Friday and will go to the neuro to get some up to date meds.
Only 3 of the hits have been a 9 and the rest a 6 or 7.
I know I am having Chs but it seems weird this time.The severity not as bad and the not getting hit 2 hours after I fall asleep.

Any feedback is much appreciated .

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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Not this again Reply #1 - Aug 26^th, 2009 at 9:05pm Sorry to hear the B--itch is back. Hope your doc appointment goes well. You may be ramping up on the CH hits, I've heard some people say that after a remission period they start out less intense then go for broke on them. I hope they stay mild until you can get them under control as much as that is possible anyway.
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JeffB CH.com Alumnus Offline Wide open till you see God, then brake Posts: 2888 Raleigh, N.C. USA Gender:	Re: Not this again Reply #2 - Aug 26^th, 2009 at 9:15pm Watch how you take the prednisone. As a matter of I wouldn't take it myself with talking to a Dr. And for the Verapamil, it's a preventative, I made sure I never ran out and I never would stop taking it.
Back to top	" It's been my experience that people who have no vices have very little virtues." IP Logged

tigerman

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WDE Anybody but#48

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x0|anniston|USA||0|0|AL,Alabama
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Re: Not this again
Reply #3 - Aug 26^th, 2009 at 9:16pm

The last time Dec 2007 was the 1st time to go to the doc for this problem and I had been in cycle for I think 5 weeks .Then she told me I would be in no more pain and I had a few shadows and it was over.

Up till then I just suffered with the cold and hot compress which I could deal with unless it went on for more than an hour.

As the years have gone by I think my cycles have been longer and the pain worse

I know the cycle will end along with the debilitating pain and I always try not to get to excited that surely makes it worse

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JeffB

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Wide open till you see
God, then brake

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Re: Not this again
Reply #4 - Aug 26^th, 2009 at 9:38pm

My first time at the Dr. with this, they gave me Indocin, Pred, and some other bullshit. The Dr. said it "should shorten the cycle" which I was in for about 5 weeks also.
The pred has to be tapered down, the indocin made me crap like a dog at a chili eating contest. The other stuff, to be honest, I can't remember.
But my cycle was ALWAYS 3-4 hits a day and at 2am, without fail. I went thru this for about 5-8 weeks 3 times a year for about 5 years. Then a few years PF, then it started all over again. Since I've been on verap constantly, I haven't been hit since fall of 05. Go to your Dr. and ask questions and see about a second opinion also.
Now, everyone may not be the same and have different lengths and times of hits so really make an effort to ask Dr's and the folks here!

« Last Edit: Aug 26^th, 2009 at 9:42pm by JeffB »

" It's been my experience that people who have no vices have very little virtues."

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Not this again Reply #5 - Aug 26^th, 2009 at 10:03pm Quote: ...made me crap like a dog at a chili eating contest. Dude. Too much information.
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flyinfree

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Re: Not this again
Reply #6 - Aug 27^th, 2009 at 10:47am

JustNotRight wrote on Aug 26^th, 2009 at 9:05pm:

Sorry to hear the B--itch is back.
Hope your doc appointment goes well.

You may be ramping up on the CH hits, I've heard some people say that after a remission period they start out less intense then go for broke on them.

I hope they stay mild until you can get them under control as much as that is possible anyway.

Wink

that is just not right!

to the OP- mine just came back too. For me it has been years of no attack from the @%%@$^E&#$%%T^@T% dont even get me started.

feeling yer pain.
and if Ginger is right we will have to pinch her - really hard

Todd

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tigerman

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WDE Anybody but#48

Posts: 45
x0|anniston|USA||0|0|AL,Alabama
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Re: Not this again
Reply #7 - Aug 27^th, 2009 at 6:48pm

I slept through another night with no hits just that same pain that will not go away.I did get hit at 10:00 when I was out surveying and took a Zomig nasal spray and it was gone within 15 minutes.

You should have seen me holding the rod in 1 hand and pushing on my temple with the other.The spray was 1 1/2 years out of date and still worked.

Sleeping through the night without a hit seems odd and I believe the Verap is helping that??

Its like I have a combo of cluster,The flu,and a tension headache

Not sure what in the world is going on

I don't know why taking the pred is any different than the Verap without the doc knowing.They are only 10mg pills at 3 a day for a week.I am on 2 a day now,but will be at the doc tomorrow and get some up 2 date meds.

Pred is nothing new to me.I get bad poison ivy every summer and the doc will put me on it if I go in to get that cortisone shot

Hope all is well with my fellow sufferers Shocked

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