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maalstroom CH.com Old Timer Offline ''Dance to my tune''.... the hell I will! Posts: 491 the Netherlands Gender:	One hit wonder. Aug 27^th, 2009 at 4:59pm Two nights ago I was awakened by a CH attack. Clearly I was expecting more after that, but 48 hours orso later nothing else has happened. What do you all make of this?
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Pixie-elf CH.com Hall of Famer Offline I've tried the rest, and busting is the best! Posts: 517 Beaumont,Tx Gender:	Re: One hit wonder. Reply #1 - Aug 27^th, 2009 at 7:26pm Well, if it's outside of your normal cycle, I've seen people post about having rogue hits... Some here and there between cycles.
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: One hit wonder. Reply #2 - Aug 27^th, 2009 at 7:46pm Same thing happened to me the morning of August 2. Nothing since. I've been out of cycle for 8 months. Scared me a little and I did have to use the O2. Just a friendly reminder I guess. Good Luck, Don
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: One hit wonder. Reply #3 - Aug 27^th, 2009 at 8:23pm It is just the beast swinging by to remind you that he has not forgotten you ... The BA$TARD!!!
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: One hit wonder. Reply #4 - Aug 28^th, 2009 at 1:28am Rogue hit, for sure. I used to get them more often when I was younger. Not so much anymore. Best, George
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Sandy_C CH.com Sponsor Offline There is no such thing as a stupid question. Posts: 3371 Jamestown, NC Gender:	Re: One hit wonder. Reply #5 - Aug 28^th, 2009 at 11:48am I've been pain free for over three years but have had four one-hit-wonders. I ain't complainin! Just enjoy your PF time and don't worry about the next hit. Live life! Sandy
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: One hit wonder. Reply #6 - Aug 28^th, 2009 at 12:31pm That happens to me now and then. Once this summer, in fact.
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Lawrence CH.com Veteran Offline There WILL be a cure Posts: 163 Merrillville, Indiana Gender:	Re: One hit wonder. Reply #7 - Aug 28^th, 2009 at 12:38pm ClusterChuck wrote on Aug 27^th, 2009 at 8:23pm: It is just the beast swinging by to remind you that he has not forgotten you ... The BA$TARD!!!
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maalstroom CH.com Old Timer Offline ''Dance to my tune''.... the hell I will! Posts: 491 the Netherlands Gender:	Re: One hit wonder. Reply #8 - Aug 30^th, 2009 at 5:14am It has till now not developped into a cycle. I guess you guys are right, it was a rogue hit. Never experienced one before that wasn't part of a whole bunch. Still scary, lol.
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bejeeber

CH.com Hall of Famer

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Posts: 1359
Gnashville
Gender: male

Re: One hit wonder.
Reply #9 - Aug 30^th, 2009 at 1:32pm

Have never experienced a rogue hit. Does sound pretty unnerving!

Have had plenty of rogue shadows though.....wondering how many of you rogue hit experiencers had it get to the point of being a high kip level attack, as opposed to it being more a case of feeling something coming on and having an abortive on hand to deal with it without waiting around to see whether it was destined to be more of a half or full intensity hit?

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« Last Edit: Aug 30^th, 2009 at 1:35pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Lawrence CH.com Veteran Offline There WILL be a cure Posts: 163 Merrillville, Indiana Gender:	Re: One hit wonder. Reply #10 - Aug 30^th, 2009 at 2:37pm bejeeber wrote on Aug 30^th, 2009 at 1:32pm: Have never experienced a rogue hit. Does sound pretty unnerving! Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.
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BobG CH.com Hall of Famer Offline Posts: 6422 St. George, UT Gender:	Re: One hit wonder. Reply #11 - Aug 30^th, 2009 at 3:06pm Rogue hits are not uncommon for me. Happens about once a month. Been happening for years. Taking an afternoon nap is a sure way to trigger one.
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jon019

CH.com Alumnus

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"Ya gotta believe!"

Posts: 1656
USA
Gender: male

Re: One hit wonder.
Reply #12 - Aug 30^th, 2009 at 7:08pm

[/quote]

Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds. [/quote]

Ok then....I went 3 yrs undiagnosed with no meds...and later 7 yrs no meds by choice...so, 10 yrs here too...

making a statement like the above REQUIRES more info...PLEASE. Sounds like you were undiagnosed...but we don't know that...

Best,

Jon

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The LARGE print giveth....and the small print taketh away. Tom Waits

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bejeeber

CH.com Hall of Famer

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Posts: 1359
Gnashville
Gender: male

Re: One hit wonder.
Reply #13 - Aug 30^th, 2009 at 10:14pm

Lawrence wrote on Aug 30^th, 2009 at 2:37pm:

bejeeber wrote on Aug 30^th, 2009 at 1:32pm:

Have never experienced a rogue hit. Does sound pretty unnerving!

Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.

Clusters without meds or any other relief are much more than unnerving, there's no doubt about that!! Shocked

My no meds "career" Cheesy

lasted for my first 5 years or so, so you got twice as many points as me.

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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NickO CH.com Newbie Offline I Love CH.com! Posts: 3	Re: One hit wonder. Reply #14 - Sep 2^nd, 2009 at 12:49pm I was almost CH free for 5 years, till this summer I started a cycle. I do remember having one rogue attack once three or four summers ago. They are strange indeed.
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Jay F

CH.com Newbie

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I Love CH.com!

Posts: 10

Re: One hit wonder.
Reply #15 - Sep 2^nd, 2009 at 8:48pm

I got a "rogue" hit back in April...my usual cycle was pre-Thanksgiving to just after New Years...so it was a complete shock. Unfortunately, the shock has turned to horror, as I'm still in this "new cycle" four+ months later... I'm fearful that I've gone "chronic". Doc now has me on 480mg of Verapamil a day... I have alternating battles with my insurance company over Imitrex vs Zomig nasal...although now there's a NEW Imitrex generic that's a WHOLE lot cheaper.
No, I haven't gotten the O2 yet...but if this keeps up, I surely will.
And to share in everyone's historic agony, went 7 years with no meds...how did I, how did WE survive?

Posted earlier....would a Facebook group make sense to attract more sufferers and to help the world know and understand?

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Lefty

CH.com Alumnus

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Posts: 759
Gender: male

Re: One hit wonder.
Reply #16 - Sep 3^rd, 2009 at 6:06am

Lawrence wrote on Aug 30^th, 2009 at 2:37pm:

bejeeber wrote on Aug 30^th, 2009 at 1:32pm:

Have never experienced a rogue hit. Does sound pretty unnerving!

Quote:

Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.

10 years? thats NOTHING....! You want to try 20.. Tongue

I suppose being a hobo didn't help my cause. Try locating a headaches specialistist when you can barely locate yourself.. Cheesy

Lefty..!

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"When money's tight and is hard to get
And your horse has also ran,
When all you have is a heap of debt
A PINT OF PLAIN IS YOUR ONLY MAN."
— Flann O'Brien

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Weatherman

CH.com Veteran

Offline

Beat the Beast!

Posts: 159
Charlotte, NC
Gender: male

Re: One hit wonder.
Reply #17 - Sep 4^th, 2009 at 3:45pm

This is interesting. I just returned to this site yesterday after 3 CH free years. I got hit hard yesterday with a 7-8 and thought, hell! Here we go again. Just when I thought I might be done with these things. Well now, 24 hours later I have not had another hit. Very strange to me. Never had a rogue hit before but I'm hoping that's all it was. I guess we'll see! Undecided

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The point of the journey is not to arrive.

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