Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Question about sugar and CH (Read 2916 times)
Layla328
CH.com Hall of Famer
*****
Offline




Posts: 804
Boston
Gender: female
Question about sugar and CH
Aug 28th, 2009 at 2:31pm
 
I posted a few days ago about skipping my "regularly scheduled cycle" this summer and trying to figure out what I had done differently.
I mentioned moderate exercise and vitamins and didn't feel I had done anything else differently.  But when I thought about it further I realized (that for a totally different reason--the reason being weight maintenance) I had greatly reduced my intake of sugar (at the advice of my sister)--what I did was stop putting sugar in my coffee, stop drinking juice, stop eating jam, sugary cereal, etc.  During the day/evening I pretty much eat no sugar except for after dinner I do eat one desert (usually ice cream--my weakness).  Anyway, does anyone know if there is any connection between sugar and CH?  Just curious.
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Question about sugar and CH
Reply #1 - Aug 28th, 2009 at 4:03pm
 
Layla328 wrote on Aug 28th, 2009 at 2:31pm:
Anyway, does anyone know if there is any connection between sugar and CH?  Just curious. 

My non-medical opinion: I doubt it.

There's a definite connection to diabetes, weight gain, certain cancers, and who knows what else.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Marc
Ex Member
****




Gender: male
Re: Question about sugar and CH
Reply #2 - Aug 28th, 2009 at 4:29pm
 
I can tell you that in my case: No.

That's after rigorously testing the idea (sugar and countless other things, one at a time) for the past 13+ years.

Marc
Back to top
  
 
IP Logged
 
JustNotRight
CH.com Sponsor
***
Offline


CH version 15.0.8 member
since 2005 aka GingerS224


Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female
Re: Question about sugar and CH
Reply #3 - Aug 28th, 2009 at 5:19pm
 
Not in my case.  I have to have sugar or at least eat fairly often due to mild hypoglycemia.

Cheesy
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going
WWW JustNotRight gngr.stewart GingerS224  
IP Logged
 
Callico
CH.com Hall of Famer
*****
Offline


Author of "Stranded at
Romson's Lodge


Posts: 4916
Aurora IL
Gender: male
Re: Question about sugar and CH
Reply #4 - Aug 28th, 2009 at 5:38pm
 
When I started with clusters back in the dark ages I had no trouble with sugar, became hypoglycemic for about 6 yrs, then turned diabetic about 10 yrs ago.  Went chronic about 6 yrs ago.  Wish I could find a connection, but there isn't one there that I can put a finger on.

Jerry

Edit to add:  I can't find any difference in the way the head behaves based on my sugar count either.
Back to top
« Last Edit: Aug 28th, 2009 at 5:39pm by Callico »  

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
Jerry Callison  
IP Logged
 
monty
CH.com Hall of Famer
*****
Offline




Posts: 1056
The Swamp, Florida
Re: Question about sugar and CH
Reply #5 - Aug 28th, 2009 at 5:44pm
 
If you have hypoglycemia or related conditions, then a high sugar diet could make things worse. I am not convinced this is a fundamental factor for most clusterheads, but wouldn't be surprised if it was a big factor for 10-20% of us.

Sugar metabolism is connected to serotonin via the inositol pathway - if that is messed up for a person, then various serotonin regulation glitches are created or amplified.

Also, if you have a fructose intolerance issue (and fructose is in most sugary things in the US these days), that will screw up your gut and your serotonin levels.  Lactose works the same way - with intolerance of either, tryptophan is not absorbed, and serotonin levels go way low.

Within 2 days of going low carb, I felt remarkably better - no more fructose problems, no more stomach upset (which the doc thought was psychological), mood improved.  Going into a prolonged remission roughly corresponds to me changing my diet to eat less carbs, but I am not convinced that was the thing that did it - maybe it was, but maybe not. That was also around the time I changed the type of job I have, started to enforce regular sleep schedules (with melatonin, when needed), upped my magnesium intake, hit manopause, and did a few other things.
Back to top
  

The outer boundary of what we currently believe is feasible is far short of what we actually must do.
 
IP Logged
 
JustNotRight
CH.com Sponsor
***
Offline


CH version 15.0.8 member
since 2005 aka GingerS224


Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female
Re: Question about sugar and CH
Reply #6 - Aug 28th, 2009 at 9:52pm
 
Quote:
Monty
:  hit manopause
   Grin

I am Lactose intolerant too, needless to say milk products are not high on my menu. 

As far as my sugar intake I have about 4 cups of coffee per day (large ones) with 1 to 1/2 teaspoons of sugar per cup(large one) aside from that I don't eat sweets very often maybe a piece of cake or brownie now and then, but definitely not daily.  I try to eat right without adding sugars or fats to my diet.  Mostly because I prefer my love handles to be on my chest not my waist.   Grin 
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going
WWW JustNotRight gngr.stewart GingerS224  
IP Logged
 
JeffB
CH.com Alumnus
***
Offline


Wide open till you see
God, then brake


Posts: 2888
Raleigh, N.C. USA
Gender: male
Re: Question about sugar and CH
Reply #7 - Aug 28th, 2009 at 11:09pm
 
JustNotRight wrote on Aug 28th, 2009 at 9:52pm:
Quote:
Monty
:  hit manopause
   Grin

I am Lactose intolerant too, needless to say milk products are not high on my menu. 

As far as my sugar intake I have about 4 cups of coffee per day (large ones) with 1 to 1/2 teaspoons of sugar per cup(large one) aside from that I don't eat sweets very often maybe a piece of cake or brownie now and then, but definitely not daily.  I try to eat right without adding sugars or fats to my diet.  Mostly because I prefer my love handles to be on my chest not my waist.   Grin 



Sweet!

Nope, it's not a sugar thing for me. I really believe diet has nothing to do with my Ch's. Been fit and roughly the same shape since I can remember.
Back to top
  

" It's been my experience that people who have no vices have very little virtues."
 
IP Logged
 
JustNotRight
CH.com Sponsor
***
Offline


CH version 15.0.8 member
since 2005 aka GingerS224


Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female
Re: Question about sugar and CH
Reply #8 - Aug 28th, 2009 at 11:12pm
 
LOL thought someone would get a kick out of that Cheesy
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going
WWW JustNotRight gngr.stewart GingerS224  
IP Logged
 
Callico
CH.com Hall of Famer
*****
Offline


Author of "Stranded at
Romson's Lodge


Posts: 4916
Aurora IL
Gender: male
Re: Question about sugar and CH
Reply #9 - Aug 29th, 2009 at 1:49am
 
JeffB wrote on Aug 28th, 2009 at 11:09pm:
JustNotRight wrote on Aug 28th, 2009 at 9:52pm:
Quote:
Monty
:  hit manopause
   Grin

I am Lactose intolerant too, needless to say milk products are not high on my menu. 

As far as my sugar intake I have about 4 cups of coffee per day (large ones) with 1 to 1/2 teaspoons of sugar per cup(large one) aside from that I don't eat sweets very often maybe a piece of cake or brownie now and then, but definitely not daily.  I try to eat right without adding sugars or fats to my diet.  Mostly because I prefer my love handles to be on my chest not my waist.   Grin 



Sweet!

Nope, it's not a sugar thing for me. I really believe diet has nothing to do with my Ch's. Been fit and roughly the same shape since I can remember.



I'm with you Jeff.  I've stayed in shape too.  Round is a shape! Grin

Jerry
Back to top
  

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
Jerry Callison  
IP Logged
 
black
CH.com Old Timer
****
Offline


I Love CH.com!


Posts: 347
Greece,Athens
Gender: male
Re: Question about sugar and CH
Reply #10 - Aug 29th, 2009 at 5:56am
 
i don't think it's sugar.I love sweets and i haven't considered sugar as a problem at least till now.
Even though some times i like drink diet coke(in the past a glass almost every day!) but i think it is a trigger so i now i do this rarely.Maybe this substitute of sugar?who knows..

On the other hand i read your other post and there are some of us,including me, who take vitamin D and we have seen good from it(maybe from it).I ve been much better since February
when i found out a D-defficiency i had and started taking these supplements with the exception of the last twenty days where things seem to get rougher.
So i don't really Know too what happens. Cheesy
Back to top
  

Oh come on!it's just water.It can't be that bad!
 
IP Logged
 
OllyJay
CH.com Newbie
*
Offline


Powered by Pain.


Posts: 14
Gender: male
Re: Question about sugar and CH
Reply #11 - Aug 30th, 2009 at 12:51am
 
Hey,

Ok i cant say what or how but i KNOW that sugar has something to do with my attacks.....

I am a total sugar junkie and i find that when i make a concerted effort to cut back on sweets, chocolate, fizzy drinks and cakes that the attacks really reduce in frequency after a while, and if i can stay off the sugar i find my periods of remission are longer too.

But as i forget the pain i get back on the sugar and sooner or later im back where i started....

I am not saying that sugar is the only variable that causes my attacks, but i think its in MY PERSONAL top 10 of triggers.

But understand im talking about the amount of sugar that most cant handle without jumping off the walls, im a sugar junkie and have an extremely fast metabolism. and strangely always a perfect blood suar level (i got into checking it when i first thought it was a trigger)

However im more sure that my overall digestive/metabolism system is involved in triggering as hunger is my number 1 Trigger, and so i always try to have something in my sthomache digesting.

Good hunting and PFDs

OllyJay
Back to top
  
 
IP Logged
 
Layla328
CH.com Hall of Famer
*****
Offline




Posts: 804
Boston
Gender: female
Re: Question about sugar and CH
Reply #12 - Aug 30th, 2009 at 9:14pm
 
Thanks for all of the replies, it was interesting reading them especially those who WERE convinced yes or no--lets me see it from both angles.
The neuro who told me take magnesium, C and E every day also told me to NEVER skip a meal, because she said if blood sugar drops that can be a trigger.  Don't know if it's true, but i don't want to tempt fate.
Well, when I look at it, a person has more sugar fluctuations in general if they eat sugar throughout the day, so maybe cutting down on sugar could have beneficial effects.
Also, I credit magnesium and melatonin. 
Either way I have cut down on sugar since my last cycle so enough time to have an effect.
Also, regular sleep habits, I've been a lot stricter about that.
Who knows, I will keep everyone posted, like I said longest remission since I was 14 (now 35) so if I can offer anything useful I will try.
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Question about sugar and CH
Reply #13 - Aug 30th, 2009 at 9:35pm
 
Layla328 wrote on Aug 30th, 2009 at 9:14pm:
Thanks for all of the replies, it was interesting reading them especially those who WERE convinced yes or no--lets me see it from both angles.
The neuro who told me take magnesium, C and E every day also told me to NEVER skip a meal, because she said if blood sugar drops that can be a trigger.  Don't know if it's true, but i don't want to tempt fate.
Well, when I look at it, a person has more sugar fluctuations in general if they eat sugar throughout the day, so maybe cutting down on sugar could have beneficial effects.
Also, I credit magnesium and melatonin. 
Either way I have cut down on sugar since my last cycle so enough time to have an effect.
Also, regular sleep habits, I've been a lot stricter about that.
Who knows, I will keep everyone posted, like I said longest remission since I was 14 (now 35) so if I can offer anything useful I will try.

So, you knew all this before you posted your question?
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Ken_DFA
CH.com Junior
**
Offline




Posts: 33
Normal, IL
Gender: male
Re: Question about sugar and CH
Reply #14 - Aug 31st, 2009 at 4:01pm
 
To me, sugar helps as an abortive.  Don't know why, but it does.  When I get hit, my upper left teeth start to ache and feel like they are made out of bitter-tasting plastic.  I find that popping a hard candy helps reduce this discomfort.  On the other hand, the candy does nothing for the pain in my left eye socket - it only works on my teeth.   

Like I said, I have NO idea why this happens.  Regardless, my special abortive kit that goes with me everwhere includes painkillers, hard candy and my "stretched-out gym sock of salvation" (for tying around my head during a hit).

-Ken
Back to top
  
 
IP Logged
 
Callico
CH.com Hall of Famer
*****
Offline


Author of "Stranded at
Romson's Lodge


Posts: 4916
Aurora IL
Gender: male
Re: Question about sugar and CH
Reply #15 - Aug 31st, 2009 at 5:11pm
 
Ken_DFA wrote on Aug 31st, 2009 at 4:01pm:
To me, sugar helps as an abortive.  Don't know why, but it does.  When I get hit, my upper left teeth start to ache and feel like they are made out of bitter-tasting plastic.  I find that popping a hard candy helps reduce this discomfort.  On the other hand, the candy does nothing for the pain in my left eye socket - it only works on my teeth.   

Like I said, I have NO idea why this happens.  Regardless, my special abortive kit that goes with me everwhere includes painkillers, hard candy and my "stretched-out gym sock of salvation" (for tying around my head during a hit).

-Ken


Pain killers?  I hope you are referring to something like Trex or another abortive, and not a narc or nsaid or something like that.  Not attacking, but you worry me.

Jerry
Back to top
  

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
Jerry Callison  
IP Logged
 
Layla328
CH.com Hall of Famer
*****
Offline




Posts: 804
Boston
Gender: female
Re: Question about sugar and CH
Reply #16 - Aug 31st, 2009 at 9:13pm
 
Brew,

Knew all what?  Only thing I knew is that a neuro told me never to skip meals b/c that can cause low blood sugar.  Noone (including her) ever recommended cutting down on or eliminating sugar or made any mention of the act of consuming sugar itself.
That's why I was asking about sugar and CH.
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Question about sugar and CH
Reply #17 - Aug 31st, 2009 at 9:30pm
 
It seemed like you asked the question, but by the end of the thread, it seemed like you already knew the answer before you asked it.

Misinterpretation on my part. Sorry.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Ken_DFA
CH.com Junior
**
Offline




Posts: 33
Normal, IL
Gender: male
Re: Question about sugar and CH
Reply #18 - Sep 1st, 2009 at 3:36pm
 
Callico wrote on Aug 31st, 2009 at 5:11pm:
Ken_DFA wrote on Aug 31st, 2009 at 4:01pm:
To me, sugar helps as an abortive.  Don't know why, but it does.  When I get hit, my upper left teeth start to ache and feel like they are made out of bitter-tasting plastic.  I find that popping a hard candy helps reduce this discomfort.  On the other hand, the candy does nothing for the pain in my left eye socket - it only works on my teeth.   

Like I said, I have NO idea why this happens.  Regardless, my special abortive kit that goes with me everwhere includes painkillers, hard candy and my "stretched-out gym sock of salvation" (for tying around my head during a hit).

-Ken


Pain killers?  I hope you are referring to something like Trex or another abortive, and not a narc or nsaid or something like that.  Not attacking, but you worry me.

Jerry


Yeah.  I mean nsaids.  Immitrex makes me puke.  My insurance won't cover O2.  I deal with hits the same way I have since I was 11 - otc painkillers, pacing + swearing a lot.  Why does that "worry" you? 

-Ken
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Question about sugar and CH
Reply #19 - Sep 1st, 2009 at 4:07pm
 
Ken - Have you investigated welder's oxygen? It's 100% the same stuff as medical grade. You need to be a little more proactive in obtaining it - you need to find a welding supply house, tell them you'll be welding with it, find the fittings so you can attach a regulator to it, etc., but many on this board do it, and it's way cheap.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Callico
CH.com Hall of Famer
*****
Offline


Author of "Stranded at
Romson's Lodge


Posts: 4916
Aurora IL
Gender: male
Re: Question about sugar and CH
Reply #20 - Sep 1st, 2009 at 4:47pm
 
Ken,

It worried me on two counts, overuse of OTCs (which I have experienced) and addiction to narcs which a number of us have dealt with.

Nsaids do little for CH with the exception of persistent shadows because they are to slowly absorbed and they don't attack the source of the pain.  Also, prolonged or overuse of Nsaids have detrimental effects on the liver and the kidneys.  Of course occasional use is not a problem, but if you are getting hit numerous times a day and dosing numerous times a day you can get into probs.

May I suggest an energy drink slammed at the beginning of an attack in lieu of O2?  Of course, you don't want to overdo them either, but they can often break an attack for me when I can't us O2 for one reason or another.  I do try to limit myself to no more than two a day, andtry not to do that everyday.  I'm not sure of the long term implications of them, so I may be a little more cautious than necessary.

I second Brew's suggestion of welder's ox.  It is the same stuff as the medical variety.  Also, if you are having trouble getting it approved by Ins PM Chuck or Batch for help.  They can recommend ways of getting it.  I know Batch had an excellent posting on that a while back, but I'm not sure where to find it.  You might want to do a search or one of they others who's memories were not wiped out might help.

Jerry
Back to top
  

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
Jerry Callison  
IP Logged
 
Layla328
CH.com Hall of Famer
*****
Offline




Posts: 804
Boston
Gender: female
Re: Question about sugar and CH
Reply #21 - Sep 1st, 2009 at 10:00pm
 
Brew,

No need for apologies, I do tend to talk myself in circles, it is the Irish in me I am guessing Wink
Back to top
  
 
IP Logged
 
RareBird
CH.com Junior
**
Offline


CH survivor since 1992
(13 yo then)


Posts: 32
Egypt.
Gender: male
Re: Question about sugar and CH
Reply #22 - Sep 3rd, 2009 at 11:59am
 
I have personally never experienced any correlation between sugar and CH. Ch, however, is weird, so may be sugar triggers it for 'some' people, but personally it never did for me. Chocolate IS a trigger though, by the way.
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!