A questionnaire specifially for you hot rodders on here with the high flow regulators, but I'd also love to hear from anyone who is having results with O2:

Do you hyperventilate the O2?

Do you use any other special breathing technique (e.g., taking deep breaths)

What flow rate are you using?

How long on average do you breathe the O2 when aborting an attack?

Approximately what percentage of hits are you able to successfully abort with O2?

Can you actually abort a wake up from a deep sleep K7+ hit with O2?

Do you experience rebounds? If so, about how soon after aborting an attack?

Do you remove your mask (or mouthpiece) for each exhalation?

Thanks!

bejeeber wrote on Sep 1^st, 2009 at 1:37am:

bejeeber wrote on Sep 1^st, 2009 at 1:37am:

Quote:

Your choice of words is very questionable…..
disrespectful… and very patronizing……
you should look at your post and maybe
re-consider your choice of words…….

Michael

wildhaus wrote on Sep 1^st, 2009 at 10:21am:

Dude - lighten up a little.

bejeeber wrote on Sep 1^st, 2009 at 1:37am:

bejeeber wrote on Sep 1^st, 2009 at 1:37am:


NOT O₂ evangelist just a fukkin pagan

bejeeber wrote on Sep 1^st, 2009 at 1:37am:

Bejeeber,

You’re right… the colloquialisms and attempt at kitsch/humor not only got lost in translation, they hit a nerve that already has an electrified probe implanted within it to stimulate my clusters to a stand-still, so it was doubly sensitive.

Part of my initial reaction to your post is simple.  O2 therapy is a serious subject.  We have too many CH’ers now who don’t use O2 for one reason or another and it’s easy to see, at least to me, that some of your colloquialisms and attempt at kitsch/humor could provide yet another reason. 

I’ve seen too many CH’ers that have become so lax and so accustomed to instant gratification reach for an injection rather than take the disciplined approach of 3 to 5 minutes of properly administered O2 therapy to achieve an abort to the same pain free state.  Ask yourself what is the difference between these two methods of intervention and you’ll see why I take this topic so seriously…

The other part of my reaction is based on the fact that we just concluded one of the most extensive and comprehensive cluster headache surveys ever conducted.  This web-based survey consisted of 187 questions covering epidemiology, demographics, diagnostic, therapeutic, insurance and other factors including virtually every aspect of oxygen therapy.  1,134 cluster headache sufferers completed this survey making it the largest of its kind. 

Having assisted Royce Fishman, Dr. Todd Rozen, and Pete in the development and promotion of this survey and having seen some of the compiled results, I’m struck by the irony of your well-intended attempt to gather information on a topic that was covered so thoroughly with scientific precision.   However, when an offer was made to present these results at a recent gathering of CH’ers, the offer was dismissed…  Figure that one out…   

We know that knowledge is power and knowing there’s a better more cost effective and safer method of aborting our attacks with no side effects empowers us.  That’s what makes the fact that the offer to present this information was refused so frustrating.

Fortunately, we will be able to make some of the cluster headache survey results available for posting here on CH.com and OUCH and other websites, once Dr. Rozen presents them at the IHC 2009 14th International Headache Congress in Philadelphia some time on the 11th or 12th of this month.  Pete is already scheduled to meeting with Dr. Rozen and other noted neurologists in Philadelphia so there may be other more specific information on oxygen therapy available for release.

Linda,

I believe I belong to the group that not only puts a button on his posts to promote O2, but does even more…  a lot more...  And like you, much of this continues to be accomplished behind the scenes and out of public view. 

We are well aware of, and commend the outreach you provide in Family Services, but you are not alone in doing so...   And, as there are so many CH’ers in need, more than any one of us can reach as individuals, Pete and I along with other enlightened oxygen therapy users, provide a similar outreach and have continued to do so since we started the O2 User’s Group over two years ago.
We also continue to do much more…

Michael

Thanks Batch for clearing up Michael's comment.....again.

bejeeber wrote on Sep 1^st, 2009 at 1:37am:

A questionnaire specifially for you hot rodders on here with the high flow regulators, but I'd also love to hear from anyone who is having results with O2:

Do you hyperventilate the O2? 

Do you use any other special breathing technique (e.g., taking deep breaths)?  

What flow rate are you using? 

How long on average do you breathe the O2 when aborting an attack? 

Approximately what percentage of hits are you able to successfully abort with O2?

Can you actually abort a wake up from a deep sleep K7+ hit with O2?

Do you experience rebounds? If so, about how soon after aborting an attack? 

Do you remove your mask (or mouthpiece) for each exhalation? 

Thanks!

The real question here is: Who has an extra 25 LPM regulator they can send Pixie-elf ?

Pixie I apologise in advance for taking this liberty with your post but someone must have a spare they can send you.

I've had a some people help me out with this current cycle and someone will come along and help you out as well. You know why?

Because once you get beyond the thin skin and ultra sensitive easily offended individuals thats what this website is really all about.

Helping a fellow sufferer.