One patient.

Doesn't make my nipples hard.

I read about a similar study several years ago involving complex types of migraines.

The older study alluded to a possible connection with CH's, but I wasn't convinced that the subjects in the test really had CH's. Don't know the details of this study.

I've been blasted on this board many times times for saying this, but I'll say it anyway: I have seen a dramatic increase in CH being diagnosed when the doc simply doesn't understand the condition.

I've suffered with many doctors as a kid (most of them were professors unfortunately) who diagnosed it as migrane. One of them even -and I will never forget this - told me: "You have nothing, just some headache, c'mon deal with it!!!" and I cried as soon as I got out of his practice, but my mother comforted me and told me that she believes me there is something too extreme. This was like in 1990 or 1991.

I visited MANY other doctors during the years that followed, until my good doctor "who lectures in Switzerland, U.K, U.S.A, India, and Finland" and who is now the dean of the faculty of medicine in Alexandria, told me: "What you have is not a common thing, this is PURE SADNESS."

And I still remember his words until today. However, I was so glad while he was asking me questions, that someone FINALLY seems to understand what I am talking about, and since that day my proper treatment has started.

Brew wrote on Sep 2^nd, 2009 at 8:16pm:

     


Viral?  Hmm what does that do to the fact that in some it's hereditary ?          

seaworthy wrote on Sep 2^nd, 2009 at 9:07pm:


Coincidence? or no?

Even if a trigerminal nerve inflamation caused CH in this guy it appears that it went away after the infection subsided.

So even if we accept that it did cause him a CH attack, it does not seem to be a good possible cause for CH. Since CH is episodic I would find it extremely rare that some of us get Parainfluenza every October or every 3 years and so on and so forth.

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Title: "Cluster Headache Mimics"--useful article. Post by Bob_Johnson on Jul 30th, 2004, 2:04pm
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This is an important article to obtain and take to your doctor if you are having a difficult time getting a diagnosis of the type of headache problem you have and/or finding medications which give consistent relief for cluster. It is a technically difficult read for someone not educated in medicine. Its value is in providing case studies about uncommon conditions which appear to be cluster headache but which are, in fact, not.

Broad signs which may signal that the problem being treated is a cluster mimic are: having made a diagnosis of cluster, the standard medications do not work OR they work for an episode or two and then stop being effective. Second, if the diagnostic signs differ in important ways from the standard signs for cluster (and this is a subtle issue which requires a physician with sophistication).

One of the striking findings reported: Cluster can arise from head trauma as long as 30-years after the trauma!

Some conditions which can mimic primary cluster headache:

Infections
     Aspergillus
     Inflammatory disorders
     Wegener's granulomatosis
     Orbital myositis
     Plasmacytoma
     Multiple sclerosis
Head trauma
Vascular abnormalities
     Arterial dissections
     Arteriovenous malformations
Neoplasms
     Pituitary tumors
     Metastases
Other trigeminal autonomic cephalgias: SUNCT syndrome; Paroxysmal hemacrania; Hypnic headache

"Cluster Headache Mimics", Dale M. Carter, M.D.. CURRENT PAIN AND HEADACHE REPORTS, 2004, 8:133-139.
(Take this citation to your public library and they can order a copy of the complete article for you.)
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Pixie-elf wrote on Sep 3^rd, 2009 at 6:25am:

41-60.

Lawrence wrote on Sep 3^rd, 2009 at 7:54am:


I am not saying that is the definate reason I got CH - my Neuro only thinks it may have played a part in it only because I have flu around the same time. There is no knowing really, but in my case it might have been played a part. Who knows!

Hope that makes sense!! Sorry if I wasn't clear in my post To be honest I am glad my Neuro knew about CH he told me to OUCH and get as much info as possible so I understand as much as I can from other sufferers.

Well said Lawrence.
   My cycle started early this year(2 mo's) and I have been wondering why...I speculate that before this I went on a trip to France, and learned then about melatonin.  So I had taken it for a week or so after the trip, then quit.  I wondered if that little adjustment could have triggered it to come early.
    Just speculation of course,  any one else feel like something they took or a change in rhythms or routines may have triggered them to start a cycle early, or otherwise?  ???

Lawrence wrote on Sep 2^nd, 2009 at 11:09pm:


In that we are discussing Ch then the answer would be yes/no/maybe