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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New and need to share

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New and need to share (Read 714 times)

hannahgittle

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New and need to share
Sep 7^th, 2009 at 9:06am

Hi, I am new to this site. Just wanting to share my experiences. No need to go into the pain and frustration, as you all know it Cry

I have tried healers, acupuncture, chiro, herbs etc.etc. I refused all meds. I have oxygen tanks everywhere

I travel and can not take my tanks and sadly have to suffer thru my attacks. After so many years of the pain....I gave in to Western Meds and starting taking Neurontin. Kicking and screaming, yet just wanted the pain to GO AWAY!!!! Happy to report it has been 6 weeks and aside from a few "twinges" I have been pain free!!!!!!! Side effects have been minimal. I take my largest dose right before bed time. Yes, I am feeling a bit spacey, however spacey better than in pain.
I hope to wean off within the next month once I know cycle has been broken. Will keep you posted.

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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: New and need to share Reply #1 - Sep 7^th, 2009 at 1:59pm Hello and Welcome to the board hannahgittle I'm glad you found something to help with the pain, we all know how awful it is. Have you looked into smaller tanks to take with for for travel? If nothing else ask your doc maybe he will prescribe a smaller on for travel occasions.
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kika CH.com Veteran Offline I Love CH.com! Posts: 122	Re: New and need to share Reply #2 - Sep 15^th, 2009 at 11:45pm I am a big supporter of alternative therapies, but have yet to hear of any modalities that can manage this kind of pain. Glad you found something that worked.
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OmG.it.Hurts CH.com Newbie Offline The young one. Posts: 14 Toronto, Canada Gender:	Re: New and need to share Reply #3 - Sep 16^th, 2009 at 12:09am Great stuff! I hope this works in the future for you too. I don't use oxygen, because it's kinda expense for me.. as I don't have alot of money.. :-\ But, hope everything turns out well.
Back to top	"It feels like... Mike Tyson is here, giving me right hooks to my eye, while a jackhammer is chipping away at the top of my head.. Oh, and to top it off, my neck feels like it's in a huge vice grip." IP Logged

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