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Can CHbe passed on to children? (Read 15412 times)
kaz93
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Can CHbe passed on to children?
Sep 8th, 2009 at 6:38am
 
Hi all, I am new here and not sure if I am even posting this in the right area.

My partner has suffered with CH since he was 19 years old, he is now 39. I have been with him for 4 and a half years and in that time thankfully he has only had a couple of mild bouts.

However, recently they have started to come back every night, always at the same time.

My question is this, we have an 11 month old baby boy and I was wondering what the chances are of him developing CH?

I didnt want to ask my partner as I dont want to worry him about it, as dealing with it himself is enough for him right now.

I am going to read all through this site now as already I am finding out new things. I want to support my partner as much as possible, which in his case, is mostly leaving him alone to get through it.

I will admit I am quite worried that our baby will develop CH's in the future.

Sorry if this has already been discussed.

Thanks
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Re: Can CHbe passed on to children?
Reply #1 - Sep 8th, 2009 at 1:48pm
 
Hi there, I'm sure someone will come along behind me with some info, but yes, we do have multi-generational sufferers, although I believe it is a smaller incidence. It is heart-breaking for the parents who have children that suffer, I guess because they KNOW the pain.

LeLimey and her son Jasper are a mother/son team of sufferers, but I think there are others.
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Re: Can CHbe passed on to children?
Reply #2 - Sep 8th, 2009 at 9:13pm
 
My father has it, I have it and my son is already showing occasional signs of CH.

I'm not sure of the ratio or if there have been many studies on heredity and CH but QnHeartMM is right there are a few of us here who do have it in multi-generations of family members. 

It also may depend on if there are histories of migraines or other severe headaches on your side of the family as well.  I would ask family members on both sides about this, just for future reference.

On both sides of our family mine and my ex-husbands there was/is a history of CH or Migraines.

Keep an eye on your little one, my son developed Migraines at a very young age 2 to be exact actually younger he wasn't diagnosed until he hit 2 years of age.  Now he's almost 21 and has had a few incidents that would be considered Cluster headaches.  My heart aches for him, because I know what he may be in for.
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kaz93
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Re: Can CHbe passed on to children?
Reply #3 - Sep 9th, 2009 at 3:10am
 
Thankyou so much for your replies.

I am quite worried about it and I really dont want to speak to my partner about it while hes fighting the demon every night at the moment, hes got enough to deal with.

I myself have never had migraines and nor have anyone on my side of the family as far as I know, certainly not up to my Grandparents at least.

I also believe that on my partners side he is the only one to have ever had CH and nobody else suffers from Migraines.

So I am guessing its just a case of wait and see.....

Thanks again  Smiley
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Re: Can CHbe passed on to children?
Reply #4 - Sep 9th, 2009 at 6:04pm
 
You are quite welcome!

Don't let it worry you so, enjoy your little one and let him enjoy being a kid, so many of them grow up too fast these days.  Worrying is only going to give you a headache  Wink  no need for that, more than enough of those floating around.  It is good that you are aware of the condition so you know what you are looking for if your son ever starts sprouting symptoms.

Best wishes and prayers that the little one escapes the beast!



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Re: Can CHbe passed on to children?
Reply #5 - Dec 7th, 2009 at 6:29pm
 
Unfortunately, both my daughter-11, and son-8 exhibit symptoms of CH's. I'm like 99% sure they both have it. I also have a brother who gets them. Whereas some might say that it isn't hereditary, I most definitely think it is. That doesn't mean he will get it, just that the possiblity is there. Only time will tell, and let's just hope for his sake things turn out in his favor. In the mean time, try not to worry about it too much as it won't change anything. Best of luck.
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Re: Can CHbe passed on to children?
Reply #6 - Dec 8th, 2009 at 7:45am
 
I believe the increased chance of passing it along to one's children is something like 1.4% greater than nothing at all. So yes, there is a bit of a hereditary link, but it is very small.

In other words, it happens, but not very often.
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Re: Can CHbe passed on to children?
Reply #7 - Dec 8th, 2009 at 8:12pm
 
This subject is something that I wouldn't spend a lot emotional energy worrying about. As Brew indicated, yes it can happen - but not often.

My brother and I both have them, as did my Grandfather. My brother's youngest son (in his 20's) has had one cycle and one rouge hit so far.

Still, the odds are very slim. Go bet on the lottery for better odds.

Marc
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Re: Can CHbe passed on to children?
Reply #8 - Dec 9th, 2009 at 12:04pm
 
I have 2 sons, one has CH and the other does not (so far). Genetics is a strange thing you have to have just the right combination and the chances of that are slim.

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Re: Can CHbe passed on to children?
Reply #9 - Dec 11th, 2009 at 3:56pm
 
I have chronic ch.  I have identical twin boys both 24 now.  One has eposodic ch and the other one has no ha at all.  My third child gets migraines as do I also.  I heard what Brew posted before so I think he is right on with it is a very very small chance of having your child heredit ch.  I would not worry about it.  Just have comfort knowing we are hear to support you and the drs are finding out more and more info every day about this afliction.  Read up and gain knowlege so you can support your significant other and your child if need be.  Youll do great Im sure.
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Re: Can CHbe passed on to children?
Reply #10 - Dec 12th, 2009 at 4:13pm
 
Unfortunately my answer to you question is absolutely it can be passed on.  There have been 10 of us in my family affected in 5 generations.
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Re: Can CHbe passed on to children?
Reply #11 - Dec 13th, 2009 at 6:25pm
 
Joni wrote on Dec 12th, 2009 at 4:13pm:
Unfortunately my answer to you question is absolutely it can be passed on.  There have been 10 of us in my family affected in 5 generations. 

But Joni, your family is the exception rather than the rule. A very unfortunate exception, but it just doesn't happen that often statistically.
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Re: Can CHbe passed on to children?
Reply #12 - Dec 13th, 2009 at 7:27pm
 
So far, 7 of 10 people that have replied have multiple family occurrences.  Though that is certainly not  scientific, it is very interesting in such a short time and small number of people.  Time will tell.  I sure hope my children are not affected!
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Re: Can CHbe passed on to children?
Reply #13 - Dec 13th, 2009 at 9:33pm
 
Joni wrote on Dec 13th, 2009 at 7:27pm:
So far, 7 of 10 people that have replied have multiple family occurrences.  Though that is certainly not  scientific, it is very interesting in such a short time and small number of people.  Time will tell.  I sure hope my children are not affected!

There are over 7,000 members of this website.
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Re: Can CHbe passed on to children?
Reply #14 - Dec 13th, 2009 at 11:43pm
 
Brew wrote on Dec 13th, 2009 at 9:33pm:
Joni wrote on Dec 13th, 2009 at 7:27pm:
So far, 7 of 10 people that have replied have multiple family occurrences.  Though that is certainly not  scientific, it is very interesting in such a short time and small number of people.  Time will tell.  I sure hope my children are not affected!

There are over 7,000 members of this website.



You are right, Brew.  That's why I said it was a small number, yet still 7 out of the first 10 that replied which surprised me.  I would love to hear from others, not that it would be scientific, either...but I'm curious.  It is interesting, isn't it?  Wish we could take a poll.
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Re: Can CHbe passed on to children?
Reply #15 - Dec 13th, 2009 at 11:45pm
 
Brew wrote on Dec 13th, 2009 at 6:25pm:
Joni wrote on Dec 12th, 2009 at 4:13pm:
Unfortunately my answer to you question is absolutely it can be passed on.  There have been 10 of us in my family affected in 5 generations. 

But Joni, your family is the exception rather than the rule. A very unfortunate exception, but it just doesn't happen that often statistically.


I know!  That's what the doctors tell us...wish someone would study us!
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Re: Can CHbe passed on to children?
Reply #16 - Dec 21st, 2009 at 9:28pm
 
Joni:
Quote:
You are right, Brew.  That's why I said it was a small number, yet still 7 out of the first 10 that replied which surprised me.  I would love to hear from others, not that it would be scientific, either...but I'm curious.  It is interesting, isn't it?  Wish we could take a poll.



I'm the first and only in my family.  I imagine the people who reply will be weighted towards those that think 'yes' because 'no' people have really nothing to say except 'no'.

Your family are so unlucky Joni, Sad.  Really sucks.
I hope your little boy turns out to be non-clusterheady, Kaz!  Good luck and don't worry! Smiley
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Re: Can CHbe passed on to children?
Reply #17 - Jan 7th, 2010 at 7:55pm
 
First of all - if you ask a question like you asked it - you are going to get more answers from those who do have a familial connection with CH. Those of us who do (like me) see the question and automatically want to give input. I don't want to scare anyone but it can happen. As to God's involvement, even though I have great faith, I'm copping to the idea that this kind of thing is outside of his day-to-day involvement. It just happens. My faith helps me get through. But I don't buy into divine retribution or any other concept along these lines.

So love your child. The tools available today for people to cope and live life more fully with CH are like night and day from what was widely known and available even 10 years ago. Who knows what another ten years will bring? Worry less - love more.

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Re: Can CHbe passed on to children?
Reply #18 - Jan 19th, 2010 at 11:28am
 
My grandmother had migraines, my father had clusters, I am the lucky one who hit the hereditary jackpot and gets BOTH!! Yay me! My brother gets neither, poor him missing out on all this FUN!!

Interestingly enough, my father, who suffered from clusters his entire adult life had to have his teeth pulled and get dentures back in the mid 90's due to gum disease (also apparently genetic- boy I hope I got that gene too), anyhoo, since he got the dentures he has not had a single attack. over 15 years PF. I don't know what the connection is but there ya go.
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Re: Can CHbe passed on to children?
Reply #19 - Feb 1st, 2010 at 5:40pm
 
Joni - Brew's son (who is also MY son) does not have CH.  Doesn't mean he can't develop it, but as of 18, he's shown no sign.
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Re: Can CHbe passed on to children?
Reply #20 - Feb 1st, 2010 at 10:43pm
 
Mosaicwench wrote on Feb 1st, 2010 at 5:40pm:
Joni - Brew's son (who is also MY son) does not have CH.  Doesn't mean he can't develop it, but as of 18, he's shown no sign.


I sure hope he doesn't start them! 

I was 30 before I started them and until then, we all felt sure I had passed the age since most in my family started young.  I have 2 daughters, ages 23 and 26 that show no signs, but I know that it is just a game of Russian Roulette.  Of course, I tell them they probably won't get them, but I don't know that.  I also remind them that even if they do, things have come a long way in treatment and they will be fine.  One of my daughters is a pharmacist with interest and experience in neuropharmacology, so if I'm not around, she can take over.  As my mother always said to us, "The only thing I could have done was just not have children."  Haha.
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Re: Can CHbe passed on to children?
Reply #21 - Feb 16th, 2010 at 12:17am
 
I'm adopted and have no idea of my biological medical history.  My CH's began at 11 yrs old immediately following a tragic closed head injury.  I've suffered 30 yrs with episodic CH's.  I am now a proud father of my 9 yr old son and GOD FORBID he inherits this living nightmare!!!
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Re: Can CHbe passed on to children?
Reply #22 - Feb 16th, 2010 at 2:07pm
 
i have 3 beautiful kids oldest of which is 8..no signs yet,,my father was adopted and no history on my mothers side so i think im the first,,the point i wanna make is if you worry about it and let it comsume you then doesnt that mean the beast has won before he even showed up?life is to short,,whether my kids get it or not we are gonna keep on living life and loving one another,,the show must go on(says the guy with toxic lithium levels:)
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Re: Can CHbe passed on to children?
Reply #23 - Feb 16th, 2010 at 4:50pm
 
Tar-heel, I like your positive attitude!
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Re: Can CHbe passed on to children?
Reply #24 - Feb 16th, 2010 at 5:12pm
 
The only positive spin on your kids becoming CH'ers is this: They'll have an expert around to show 'em how it's done. Anything beyond that is needless worry.
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