Hey guys,

Was wondering......when it comes to having to work a 9-5 job....what is your tolerance level as far as working goes?......How many headaches per day can you tolerate before you have to go on "sick-leave"?

I guess i'm asking how much is too much for you, before you have to stop working

I had to go on sick leave when I was having 4-5 HA's a day.....and they were all around the K6 or above level....
so..... 

DennisM1045 wrote on Sep 10^th, 2009 at 3:36pm:



wow. thanks Dennis......you are in a great position....
I'm down to one CH a day ....and it usually comes from waking from sleep.....thinking about getting my butt back to work now....one hit day I can deal with...

I've not taken sick leave because of CH's.

I've always just hunkered down and dealt with the hits with O2 and/or Zomig NS, then gotten back to work.

Been late and have left early, but always busted my rear end to more than make up lost time.

Marc

I work with special needs kids who display challenging behaviours, so I need to be alert at all times. When I'm getting hit my colleagues are effectively one staff down and this is no good for the kids or them.

Unfortunately, I can get whacked anything from 5 hits up per day. The only up side to this story( if there's such a thing) is that I have a permanent contract and work for the Government, therefore I'm encouraged to take time off so staffing levels are at full compliment at all times.


Lefty..!

Some of you guys work in an office-setting type of environment....thats great.
I work in a blast furnace.....so when I get multiple hits a day I have to leave...not just for me....but for the safety of others....I'm a crane-operator, and an iron casting coordinator....its a dangerous environment.....most of my co-workers are cro-magnon type of guys who never heard of clusters.....if I get hit at work I have my injections.....now I also have Zyprexa

I work at home as sort of a sub-contractor, so I'm clearly very lucky in that regard to have the M tanks and what not right by my side.

Not quite as lucky is that I have hard deadlines and a host of others I work with that depend on me completing tasks, so there's been no taking off from work. Pretty understanding guy I work for though, who realizes I'm not firing on all cylinders during my now rare episodes.

When I was out in the workforce I would lug an E tank to work when I could, or when the modern age came to be, I would have my trex injections. 

Lawrence wrote on Sep 10^th, 2009 at 4:45pm:


I am both fortunate and unfortunate to have ownership of my business and find myself working regardless. Even when being hit 8-12 times per day. I can without great repurcussions hide out or escape when needed. Even still I have to perform 10 times harder when in deep cycle
I am often in similar situations as you and simply turn the task over to others and get out of the way.

I think when like Lawrence and in dangerous environments where a wrong move can cause injury or death and you are a critical part of the operations than by all means see if there is a less demanding temporary position available first or temporary remove yourself.
Swinging 2000 degree iron over others is not the place to get distracted with a hit.

once i took a load of lumber up to fon du lac and brought back a load of hay in green bay that went down to mayesville kentuckey back in december of '08. at that time i was in high cycle  (kip8s and 9s) and i had the stomach flew ta boot. i dropped off my load in fon du lac around 10 am. sleep deprived and week as i was i still had to drag my tarps off my load and roll them up and put them back on the truck. took about 2 hours. then i crawled back behind the steering wheel and drove up to green bay stopping 4 or 5 time for hits to a sloppy muddy hay farm. took the rest of the day to get loaded and get my load tarped and tied down in that cold ass rain. but the physical activity kept me from getting hit.
        i pulled out of the farm about 10 pm and parked on a ramp and attempted to go to bed. woke up to an attack. after the attack i sat there looking at the traffic for about 2 hours. no hit. i got got out walked around the truck got back in dropped er down in 3rd and away i went. got a few kip5s between there and milwaukee but i could handle it. just north of chicago i got hit hard. had to stop. i took off again and between there and gary i stopped 7 or 8 times. full blown hair ripping screamers as traffic wizzed by as i sat on the narrow shoulders of the chicago freeways.         
    lawrance buddy i've seen trucks blow of the road in front of me out across wyoming, i've seen trucks jackknife, motorcyclists brains scattered out on the road, i've driven the rockys in white out conditions hell i've even driven through arkansas in an ice storm, but driving through chicago with the beast was the scariest goddamn ride i have ever had. no shit man. i got back home and took 10 days off. stick me with a frickin fork i was done.
    to me it was much better to suffer through financial hardship than to kill somebody trying to stay on top of my bills.
   before i went back out i had a couple o2 bottles strapped to the sleeper walls.

I'm a TV weatherman. So far, I have received good compassion for my condition and have been allowed to keep O2 in the office. But my cycles have been 2 years or more apart. That helps them forget  Been lucky there.
It does get interesting when I am in cycle though. There have been plenty of times I've had to do the weather with an ongoing K 7/8. The great thing is I only have to expose myself on the air for 3 minutes at a time. I can make it that long. Not much choice really!

This topic is a reminder of how important the 2 pronged approach is to CH. My abortive is oxygen and the occasional imitrex jab. Just as important is my prevent, lithium. I'm episodic, when a cycle starts I ramp upthe lithium to 1200 mg a day. Once it's been in my system for about 10 days it blocks 70% or more of my attacks.

I keep an 02 tank in the cruiser while on cycle, beat partners have always been understanding when I log off unavailable for a bit! Fortunately for me, the lithium keeps those to a minimum.

Joe

-johnny- wrote on Sep 15^th, 2009 at 1:11pm:



I hear ya man. What you just wrote is inspiring.

Guiseppi wrote on Sep 16^th, 2009 at 3:03am:

theres another good point.when your trying meds, give it a week or 2 before you decide its not going to work. and don't overdo your meds out of frustration and desperation. if you need to overdo something make it o2. the more the better and it won't rot out your innards.

one point i wanted to make to lawrance was that you seem to be doing well with this. you really have to become obsessively fascinated by this condition in order to defeat the beast. ch is a wicked ruthless game of strategies and angles. its good that your getting on here and posting questions.  i've been pf for almost 2 years now and i still get on here and post questions.

-johnny- wrote on Sep 16^th, 2009 at 12:39pm:



thanks