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The day I’ve been dreading is finally here (Read 9355 times)
flipperlips
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Re: The day I’ve been dreading is finally here
Reply #25 - Jul 18th, 2011 at 9:58am
 
Well crap  Sad

That's too bad that he didn't get to see your neuro.  Some docs are just complete and total A-holes (don't we all know that).  I don't get given the history why they would go that route of treatment first.  So they don't want him to use the O2 so he can "experiment" with this beta blocker.  What kind of doc wants the patient to suffer? 

I can't believe that they never called in the script.  WTH is that all about???  Is there anyway that you or your son can get in phone contact with your neuro to get this straighten out?

This just really sucks, I can understand how this would leave him confussed.

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MITYRARE
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Re: The day I’ve been dreading is finally here
Reply #26 - Sep 9th, 2011 at 10:35am
 
this makes me so sad to read.

I really hope you can get him into another doc and get on a path to find the right solution for him... can you get your GP to order a hormone blood test...since it has helped you perhaps it may also help your offspring.

Geez..i hope he gets a doc that understands soon.

The MRI is a good first step to rule out the nasties...but you know what you are looking at..

so sorry to hear.

Paul
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B.Baer
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Re: The day I’ve been dreading is finally here
Reply #27 - Sep 10th, 2011 at 12:38am
 
Dennis my heart goes out to you...

Sucks indeed, You have EXPERIENCE , once properly diagnosed, you can be of great help.

Good luck and keep us posted, he's built of stout stuff I'm sure, we've all had to deal with it, and with your help, he will too.

I've just come upon this post and wish you all well, I fear for my own children as well regardless of the genetic predisposition or lack thereof....

Baer
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« Last Edit: Sep 10th, 2011 at 12:40am by B.Baer »  
Barry Baer  
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Re: The day I’ve been dreading is finally here
Reply #28 - Nov 28th, 2011 at 1:20am
 
Oh jeez, and I can just imagine his wife probably feels like crap for it.....I sure hope he gets the help he needs and I am so glad he has you to look to....I know that means alot to him
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Beth E
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Re: The day I’ve been dreading is finally here
Reply #29 - Feb 9th, 2012 at 6:10pm
 
Dennis...my heart breaks for you as I read this.  It is scarey for me too.  My CHer doesn't even know how to help himself let alone guide any of his sons through it.  This has been a fear of mine as well.  We have three sons; grown; 23, 24, & 26.  The 23 yr old had horrific childhood migraines! He learned what signs to look for and most of the time was able to abort them before he was knocked out for the day. As he has been slowly outgrowing them, gets a few during changes in weather sometimes. He asked me if there was a chance for him to get what his dad has.  I was honest at the time and told him I didn't know.  What I DO know, is that our sons talk with mom a lot!! Smiley And I would let them know everything I have learned so far, & get them a support group like you all! I will be praying for you and your family Dennis.  Hope by now, if nothing else, the beast has been corralled and under control.  God Bless!
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DennisM1045
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Re: The day I’ve been dreading is finally here
Reply #30 - Mar 19th, 2012 at 1:50pm
 
I just realize I never circled back on this thread. Sorry for waiting so long to do so.

His MRI found nothing, which is as close to a confirmation of CH as we can get.  He went back on Monday and got everything straightened out and eventually found a prevent that is working well enough for him.  His first cycle ended and he has since suffered through a 2nd, though with much better results this time.

-Dennis-
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Where there is life, there is hope.
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Guiseppi
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Re: The day I’ve been dreading is finally here
Reply #31 - Mar 20th, 2012 at 9:22am
 
I said it before Dennis, if you have to have CH, what a blessing to have an old man who has already blazed the trail for you. Smiley

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Tussilago
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Re: The day I’ve been dreading is finally here
Reply #32 - Jun 10th, 2012 at 1:11pm
 
Hoping he'll get a very very long pain free period. I'm putting in an order for one lasting... let's say 60 years?

:S
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