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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › What makes members decide to stay?

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What makes members decide to stay? (Read 6477 times)

Lawrence

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What makes members decide to stay?
Sep 11^th, 2009 at 6:41pm

Hey guys....just wondering....I see so many posts from people who have lurked, or once joined......read a few posts, got help or something, whatever they needed.....then just vamped....
I am guilty of this myself......
just wondering.....the people here on the board....the "regulars".....what made you stick around during your pain-free months?

I see many posts from people who chime in maybe once or twice to get some answers then once they got what they need they're "BYE-BYE BABY" Cheesy

I was guilty of this....and MY REASONS for doing such was ignorant....i used to think that not thinking about CH or reading about it would make me forget about it--and they would "go-away"...so-to-speak.......I didnt want to be reminded of the pain when I was pain free.....(talk about being in denial)....
Being a man and stepping up to the plate, facing the music...the ugly truth is that i'm either gonna have CH, or not....and being an active member here won't have anything to do with it....i'm either gonna have pain, or NO-PAIN. My thoughts were irrelevant.

I'm sticking around...... Cool

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Marc Ex Member Gender:	Re: What makes members decide to stay? Reply #1 - Sep 11^th, 2009 at 6:44pm It depends upon what they are made of.
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MattyAA

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Re: What makes members decide to stay?
Reply #2 - Sep 11^th, 2009 at 6:47pm

Depends, people that got CH for first time or second are probably having bad memory of this malady and just stay away from the topic. Others feel they got helped and will repay that or just feel comfortable/accomodated in here, because it feels like second family, or because they might want to help others.

Venting is another reason too.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: What makes members decide to stay? Reply #3 - Sep 11^th, 2009 at 6:50pm There are takers, and there are givers. We all have to do both, but hopefully each of us gives a little more than we take.
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Linda_Howell

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Re: What makes members decide to stay?
Reply #4 - Sep 11^th, 2009 at 7:18pm

Quote:

the "regulars".....what made you stick around during your pain-free months?

Personally, I have no pain-free months. I stick around because when I first came here I was helped. I want to give back.

Charlie hasn't been hit for over 10 yrs. jimi Hendrix also. DJ himself hasn't been hit in a while. THEY would have to answer your questions...but I suspect it is because somewhere along the way we all became family. We met each other face to face. We got to know and understand each other and helping a newcomer who has no clue became important to them, me , us. We needed to share with them and let them know they are not alone. That we c are very deeply.

Linda

Hurt people.....hurt people. Think about it.

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Patrick S. CH.com Newbie Offline Its all in my head! Posts: 21 Connecticut Gender:	Re: What makes members decide to stay? Reply #5 - Sep 11^th, 2009 at 7:55pm I used to come on here years ago when I 1st started getting ch.Was about 34 years old,learned about oxygen and neuros and without realizing forgot the help i got,not that im much assistance anyhow but should have been more of a supporter in my PF times,but again,i hate to read PF posts when im hurtin! just me tho
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jon019

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Re: What makes members decide to stay?
Reply #6 - Sep 11^th, 2009 at 9:20pm

Because...you don't abandon FAMILY (says the man who once did...a bonehead decision I can no longer even recall why?) I learned....

Because... no one else understands like this FAMILY...or knows more about ch than ANYONE...
"you can check out, but you can never leave"...you are not allowed...YOU'RE FAMILY...and some day... should you need it... this FAMILY will still be here...better to still be on board...

Because...this FAMILY couldn't give a damn what your problems are...you are FAMILY...like myself...diagnosed with a condition totally unrelated to ch...I asked for help...haven't cryed because of the condition...but the overwhelming support and care and love I have received...well, more than a few tears there...

Because...this FAMILY is funnier than shit...

Because....this FAMILY performs miracles on a regular basis with their prayers, thoughts and vibes...

Because...this FAMILY cares about your OTHER FAMILY...

Because...this FAMILY is available 24/7...

Because this FAMILY would tear a shirt, a regulator, an e tank, a facemask, a triptan, a marrow donation, whatever... off their back or out of their stash for YOU...and may not have even met you...and couldn't care less (or REALLY...MORE!)

Because....even the Pittsburgh Pirates once understood what "We are FAM-I-LEE" means..."Pops" Stargell woulda been proud of THIS FAMILY (and Joe, I'm still thinking of you brother)...

Because...it has been said by FAMILY members...."grab an oar and row...nobody rides for free"..it's a long and tough journey...ALL hands are needed.

Because...because...because...........FAMILY! That's what I'm thinking anyway.....

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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Lawrence CH.com Veteran Offline There WILL be a cure Posts: 163 Merrillville, Indiana Gender:	Re: What makes members decide to stay? Reply #7 - Sep 11^th, 2009 at 9:41pm WOW Jon
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: What makes members decide to stay? Reply #8 - Sep 11^th, 2009 at 9:51pm YEAH...wow hunh? Blows my mind, every day...glad you are on board...
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JustNotRight

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Re: What makes members decide to stay?
Reply #9 - Sep 11^th, 2009 at 10:37pm

Hmm Lets see...

I don't get pain free months Embarrassed

Nobody understands like the people here do Cheesy

They all have a Great Sense of humor

Everyone here is always ready to reach out a helping hand.

If you are down and really suffering they go the extra mile and pick up a phone or if near by come over to help you.

They offer better advice than any money can buy.

We all keep odd hours due to hits so someone is almost always here.

Awe heck I just plain like it here Wink

Could do without the beast tagging along everywhere I go though Sad

PFDAN TO ALL!!

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If you are going through hell...Just keep going

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RichardN

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Re: What makes members decide to stay?
Reply #10 - Sep 11^th, 2009 at 10:58pm

Nice post Jon

I am (finally) back after a year absence, not because I was pain-free, but because my head has been in a bad place and I have become somewhat reclusive (a plethora of reasons). That is normal for my wife who is agoraphobic . . . but NOT me. Both daughters have forwarded facebook invites to at least 25 former friends (mostly actors/theater friends) . . . I have yet to respond . . . though I intend to.

This Family, now that I'm back . . . will help me get out of the funk I've been in. One, because I have a life-long need to learn/share . . . two, the need to assuage the guilt I've felt for not being here for all those newbies that came here as I did more than eight years ago, thinking I was alone with this horror we call the beast. Three, I've missed all of you . . . I've missed me.

I never learned to be as succinct as Jonny, so you'll still have to put up with my sometimes overlong posts.

I'm back

Be Safe,

   PFDANs


   Richard

I can live with the beast as long as I don't have to "dance" with the bastard.

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: What makes members decide to stay? Reply #11 - Sep 11^th, 2009 at 11:21pm I stay because maybe, just maybe something I do can make difference in the quality of someone's life. There are not many places I go that I can say that's a possibility. That....and I kinda like it here.
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: What makes members decide to stay? Reply #12 - Sep 12^th, 2009 at 12:24am RichardN wrote on Sep 11^th, 2009 at 10:58pm: I'm back Be Safe, PFDANs Richard And I am delighted...you were missed. YOUR oar is there...still shiney from use..your seat is still warm.... Best, Jon
Back to top	The LARGE print giveth....and the small print taketh away. Tom Waits IP Logged

Emma_s CH.com Junior Offline Wishing PF time for everyone x Posts: 65 United Kingdom Gender:	Re: What makes members decide to stay? Reply #13 - Sep 12^th, 2009 at 5:30am As I am fairly new, I am lurking at the moment more than posting. I don't feel I can contribute to a lot of topics at the moment, because I am still learning about this beast, but when I do I will be joining in to help anyone with questions I stay because everyone here understands eachother
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stevegeebe CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1687 Mandeville, LA Gender:	Re: What makes members decide to stay? Reply #14 - Sep 12^th, 2009 at 7:27am I found this place because something is wrong with me. I stay because something is wrong with me. Steve G
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Lefty

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Re: What makes members decide to stay?
Reply #15 - Sep 12^th, 2009 at 9:00am

Quote:

Because...this FAMILY is funnier than shit...

I don't know about that Jon...

I was erecting scaffolding once in the banking district of London and I witnessed a pinstripe suit wearing banker shouting down his phone slip on a wee curly poo and land flat on his arse.

That wee curly shit still makes me laugh today... Grin

I agree with Jon though, I think we are all family and these guys helped me so I thought I would stick around and help others.. It's that simple.. Wink

Lefty..!

« Last Edit: Sep 12^th, 2009 at 9:03am by Lefty »

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DennisM1045

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One wave at a time!

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Re: What makes members decide to stay?
Reply #16 - Sep 12^th, 2009 at 10:58am

In no particular order...

Because no one understands like the people here.
Because I have knowledge of my CH and what works for me and I need to pass on what I know.
Because I was helped so much by this family and that help gave me my life back.
Because Doctors don't always have all the answers.
Because I log on every day with the hope that I'll learn better ways to treat and cope with this pain from the vast experience of others.
Because I've come to care deeply about people I've never met face-to-face; my cluster-family.
Because my Son just started his first cycle

-Dennis-

Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: What makes members decide to stay? Reply #17 - Sep 12^th, 2009 at 11:14am Quote: Because I've come to care deeply about people I've never met face-to-face; my cluster-family. Again, Dennis nails it on the head. This is the essence of why people choose to stay. Never send to know for whom the bell tolls; it tolls for thee.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: What makes members decide to stay? Reply #18 - Sep 12^th, 2009 at 12:13pm Racer1_NC wrote on Sep 11^th, 2009 at 11:21pm: I stay because maybe, just maybe something I do can make difference in the quality of someone's life. There are not many places I go that I can say that's a possibility. That....and I kinda like it here. yup
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: What makes members decide to stay? Reply #19 - Sep 12^th, 2009 at 1:28pm Because DJ gave me a home and saved my life. I got a lot to repay. Jerry
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Lawrence CH.com Veteran Offline There WILL be a cure Posts: 163 Merrillville, Indiana Gender:	Re: What makes members decide to stay? Reply #20 - Sep 12^th, 2009 at 4:34pm Callico wrote on Sep 12^th, 2009 at 1:28pm: Because DJ gave me a home and saved my life. I got a lot to repay. Jerry this board has saved my life to.... I left alone as hell in the world before I found this place.
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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: What makes members decide to stay? Reply #21 - Sep 12^th, 2009 at 8:28pm I stay because there is new information here all the time I've come to love everyone here, those I've met and those I've yet to meet. *regardless of our political or other life views, this is a family and we can count on each other for support or a swift kick in the ass when either are needed.
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black CH.com Old Timer Offline I Love CH.com! Posts: 347 Greece,Athens Gender:	Re: What makes members decide to stay? Reply #22 - Sep 13^th, 2009 at 7:15am where the hell is the logout button...I am looking for it since February..I know i saw it somewhere..damn where is it..what the hell are all these buttons for...it's like star trek in here...
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JustNotRight

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Re: What makes members decide to stay?
Reply #23 - Sep 13^th, 2009 at 10:49am

black wrote on Sep 13^th, 2009 at 7:15am:

where the hell is the logout button...I am looking for it since February..I know i saw it somewhere..damn where is it..what the hell are all these buttons for...it's like star trek in here... Cheesy

It's like the Eagles song "Hotel California" Black once your here "you can never leave" Grin

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going

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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: What makes members decide to stay? Reply #24 - Sep 13^th, 2009 at 8:14pm I was alone. I was welcomed by those I've never met. I was not judged. I was educated. I feel safe. I was given hope. I force on.
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