ClusterChris wrote on Sep 30^th, 2009 at 8:04pm:


Do you use the trex tip?

Patrick S. wrote on Sep 12^th, 2009 at 12:25pm:


I know exactly what you mean...Don't let anyone tell you what's right or wrong...Sometimes you just need to see you are tough enough to take it and not just that headache but tough enough to take the condition. As far as drinking, its hard not to live a normal life and have this pain. I didn't drink for the longest and I still got it at the same time. That could also be cause I'm chronic. Everyday, no matter what. Sometimes I think chronic is easier. I know what I'm in for...I think you get a little more used to the pain and I am lesss worried about triggers

I guess "play" is what I did when CH started for me in the mid 80's until I found Imitrex in 96. In that interim 10+ years I tried enderal, lithium, amytriptaline, noritriptaline, depakote, cafergot, and whatever the anti seizure med is that they prescribe for tic de la ru (tri geminal neuralgia), all to no avail.  The only thing that I had that worked in that time period was extremely hot, constant comment, orange spice tea which I would hold to my lips and blow on which sent steam into my eyesocket area.  This would usually knock out a hit that didn't get above a K6 in 10-15 minutes, anything over that and I was relegated to dancing with the beast for 30 - 45 minutes.

In 1999 I got my first O2 script but it was only for 7 lpm so naturally that didn't work.  Then I found this place in 2005 I think and got a new script for 15lpm with non rebreather which works well for me.

I'm now in week 10 of a cycle after almost 4 years in remission and up to 4 - 6 hits a nite and 1 - 3  during the day. Thus far I have aborted all but 4 with O2 and knocked out those 4 with Trex injections that expired in 2006 but still work fine.

My wife is a nurse so we experimented with the "Making the most of  Imitrex Tip by emptying a stat dose syringe into a sterile container and then drawing it up into Diabetic syringes in 2, 3 ,and 4 ml doses but the reduced amount didn't seem to work as well for me.

I am now waiting on RC seeds so I can try that therapy which so many on here seem to have great success with and come spring time, you'll find me trekking the cow pastures of East Texas and S E Oklahoma in search of "Teonacatl", to pick, dry and store for next time.

I guess my biggest fear today is that after having CH for so many years that they will become chronic but I try not to dwell on that thought.

OK, I've rambled enough.  Wishing PFDAN's to all

Dallas Denny