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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › I'm new to the board, but not to clusters

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I'm new to the board, but not to clusters (Read 1045 times)

outtatown

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I'm new to the board, but not to clusters
Sep 14^th, 2009 at 12:11am

I'm the wife of a cluster sufferer, I found this board three years ago, he has them every third year and today he had his first shadow...it happens in the fall every three years like I said. Wondering if anything new has happened since three years ago...treatment, preventative etc. He had a shadow tonight earlier and I gave him a glass of strong, cold coffee...not sure that will work though. He's still in the shadow phase, we'll see if it starts again for sure. I can't even begin to think of what we'll go through for the next 8 weeks or so. Somehow I thought maybe it would pass, that my every three years predication would be wrong. I'll check back later. I am so sorry for all of you who suffer, as I've seen it first hand for every three of the last 20 years with my husband.

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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: I'm new to the board, but not to clusters Reply #1 - Sep 14^th, 2009 at 6:05am Quote: I'll check back later. Please do...! Lefty..!
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outtatown CH.com Newbie Offline I Love CH.com! Posts: 3	Re: I'm new to the board, but not to clusters Reply #2 - Sep 14^th, 2009 at 8:00am Well, he didn't have one last night (they usually happen around 1 am.). We'll see if he has another shadow today. That's how it starts with him...he shadows for a few days then works his way into them full bore.
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Bob Johnson

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Re: I'm new to the board, but not to clusters
Reply #3 - Sep 14^th, 2009 at 8:06am

Would be worth considering starting a preventive med now rather than waiting to see if a full blown cycle is about to begin.

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Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
================
Michigan Headache & Neurological Institute for another list of treatments and other articles:

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Bob Johnson

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Callico

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Re: I'm new to the board, but not to clusters
Reply #4 - Sep 14^th, 2009 at 9:07am

Ive had really good success with Kudzu as a prevent, and without the side effects of Verap and Lithium. I'm with Bob though, it's time to get one started. Also, I would look at the oxygen info on the left. The usage of it has changed somewhat in 3 yrs, in particular going to 25 lpm or higher. Also, the O2ptimask is a great improvement over the old non-rebreather.

Jerry

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: I'm new to the board, but not to clusters Reply #5 - Sep 14^th, 2009 at 10:09am What Jerry said! All the best
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outtatown CH.com Newbie Offline I Love CH.com! Posts: 3	Re: I'm new to the board, but not to clusters Reply #6 - Sep 14^th, 2009 at 11:43am Thanks to all...I will print this out and take to the Dr. when we go tomorrow.
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RichardN CH.com Hall of Famer Offline Posts: 963 x1\|Crossville\|USA,Tn Gender:	Re: I'm new to the board, but not to clusters Reply #7 - Sep 15^th, 2009 at 1:54am How did things go with the doc? Were you able to acquire a script for 02? Other abortives? Preventatives? Hoping your doc is knowledgeable of CH . . . or at least amenable to new information. Be Safe, PFDANs Richard
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