Click this link to read a post I like on the clusterheadaches.com message board...

davidg

CH.com Newbie

Offline

We are in this together

Posts: 14
x1|Park Ridge|USA|usa|497|108|NJ,New_Jersey
Gender: male

O2 at 5 LPM? Any success?
Sep 21^st, 2009 at 9:05am

I am finally driven to get an O2 tank...I don't know why I waited so long. I read the O2 tab on the left and see that 15 LPM is the suggested flow amount. I just spoke to the place near my home and the woman said they only have regulators at 5 LPM.

I am going to my Dr. to get the prescription and will go on ebay and find a new regulator...I just can't imagine waiting any longer to relieve myself. Has anybody had any luck with 5 LPM? Thanks.

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

MPMIII CH.com Veteran Offline Posts: 112 Alabama Gender:	Re: O2 at 5 LPM? Any success? Reply #1 - Sep 21^st, 2009 at 9:22am Nope. I Need at least 15 lpm.
Back to top	IP Logged

davidg CH.com Newbie Offline We are in this together Posts: 14 x1\|Park Ridge\|USA\|usa\|497\|108\|NJ,New_Jersey Gender:	Re: O2 at 5 LPM? Any success? Reply #2 - Sep 21^st, 2009 at 9:25am I live 20 miles outside on NYC and I can't find anyplace that sells regulators. I will go on ebay soon...
Back to top	IP Logged

Chad

CH.com Hall of Famer

Offline

Posts: 738
Emmaus, PA
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #3 - Sep 21^st, 2009 at 11:22am

davidg wrote on Sep 21^st, 2009 at 9:05am:

I am finally driven to get an O2 tank...I don't know why I waited so long. I read the O2 tab on the left and see that 15 LPM is the suggested flow amount. I just spoke to the place near my home and the woman said they only have regulators at 5 LPM.

I am going to my Dr. to get the prescription and will go on ebay and find a new regulator...I just can't imagine waiting any longer to relieve myself. Has anybody had any luck with 5 LPM? Thanks.

I had the same response from my supplier just 5 minutes ago. The guy got on with and was pretty nice and said his local clusterheads usually have results with 8-10 LPM. I said about 15 and he said you're really not getting anymore O2 than you would by 8 LPM. He said that bag needs to be filled and that's the key. I need to read up on the flow rate again so I have good comeback. I'm still getting the high flow regulator for my self

I'm very new at this and very close to getting it. It's the "script" and "new neuro" (next appointment in December) part that is holding me back. I'm going to see if the neuro would write a script w/o seeing me.
It's worth a shot.

Back to top

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!

IP Logged

itotka CH.com Old Timer Offline Oxygen Posts: 465 Budapest\|Solar System Gender:	Re: O2 at 5 LPM? Any success? Reply #4 - Sep 21^st, 2009 at 2:51pm Normal respiratory rate is 7-8 LPM (16x0.5 liter) 5 LPM not enough to remove the CO2. Ebuy (eBay) a 15+ reg.
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: O2 at 5 LPM? Any success? Reply #5 - Sep 21^st, 2009 at 2:59pm itotka wrote on Sep 21^st, 2009 at 2:51pm: Normal respiratory rate is 7-8 LPM (16x0.5 liter) 5 LPM not enough to remove the CO2. Ebuy (eBay) a 15+ reg. Thanks a bunch. Now I have my answer to reply to the med supply company on "why" the flow rate has to be so HIGH.
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

joboofish

CH.com Newbie

Offline

I love YaBB 1G - SP1!

Posts: 16
x0|Hamburg|||0|0|NY,New_York
Gender: female

Re: O2 at 5 LPM? Any success?
Reply #6 - Sep 21^st, 2009 at 3:19pm

I used to have success at 8 LPM, but nothing lower. This cycle 8 is not working at all. The advice I got from the wonderful people on this site was to get my own regulator for higher flow. I got one that goes to 15 LPM on Ebay and now the O2 seems to be working 40-50 % of the time (which is great compared to not at all!). Now I am considering upgrading to a 25LPM regulator, but I'm not sure if I can even breath more that what my 15 provides. Anyone have thoughts on this? I do not fully deflate the bag at 15 LPM, will 20 or 25 make a difference? Anyway, my thought is that 5 would not be enough.

Back to top

IP Logged

bejeeber

CH.com Hall of Famer

Offline

Posts: 1359
Gnashville
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #7 - Sep 21^st, 2009 at 5:42pm

I'm no O2 expert Jobofish, whereas some on here are much more knowledgeable, but I'm wondering do you breathe rapidly/deeply or even hyperventilate?

Those are techniques used by people on here who get good results, and from my limited experience, that's what empties the bag faster/requires higher liter flow.

I suppose one advantage the ladyfolk may have over the menfolk here is smaller lung size, not as much need for the higher LPM (???)

Back to top

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

IP Logged

Aussie6330

CH.com Junior

Offline

I Love CH.com!

Posts: 49
Western Australia
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #8 - Sep 21^st, 2009 at 8:02pm

As an alternative to e-bay, rather than piss around with sending...waiting etc, try your local dive shop (SCUBA) tanks use high flow regs as well and may be able to supply. Over here in Australia I used

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Have a look you will se what I mean.

Cheers

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: O2 at 5 LPM? Any success? Reply #9 - Sep 21^st, 2009 at 8:15pm 5 LMP not a chance! I have a 15 LPM and that is not enough. Problem is my o2 supplier will not let me buy my own regulator. The technician has to switch the regulator from an empty tank to a full one. If I want a second M tank at home I must rent another regulator. F.....king neanderthals
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Skyhawk5

CH.com Alumnus

Offline

I love YaBB 1G - SP1!

Posts: 1320
Ypsilanti, Mi. USA
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #10 - Sep 21^st, 2009 at 9:11pm

Yes I have had limited success with 5lpm, 20 yrs ago. With a NON-REBREATHER mask it aborted 25-30% of my attacks. But I was having up to 10 hits a day and when I didn't abort the hits lasted from 1 to 2 hours.

Doctors and O2 suppliers in most cases are not up on modern understanding of CH O2 use. We've had to learn this ourselves. Get the O2 and educate yourself as to the best use.

Most Dr's have little headache training so be prepared for them not to understand what you learn from this site. If they do, great. Be prepared to take action for yourself.

If you can get a script for 15lpm and the supplier won't get it for you, either find one that will or get your own. A NON-REBREATHER mask the one with a bag is required no matter what the lpm.

The most up to date (with fellow CH'rs) is hyperventalation is the fastest way to abort a CH hit. If you can empty the bag during breathing then you don't have a high enough regulator.

Although rare, I have aborted a hit just by hyperventalating alone. I always thought breathing hard and fast would make it worse. Just the opposite for me and many others.

Get the best O2 setup you can afford, even if you don't need higher flow, you can turn it down. Any size regulator has the lower setting also.

Don

Back to top

« Last Edit: Sep 21^st, 2009 at 9:18pm by Skyhawk5 »

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

IP Logged

bejeeber

CH.com Hall of Famer

Offline

Posts: 1359
Gnashville
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #11 - Sep 21^st, 2009 at 9:25pm

Iddy wrote on Sep 21^st, 2009 at 8:15pm:

...my o2 supplier will not let me buy my own regulator. The technician has to switch the regulator from an empty tank to a full one. If I want a second M tank at home I must rent another regulator...

Can you just wait until the Neanderthal technician leaves and then switch out their worthless regulator for a good one that can be purchased online? Then after draining the tank(s) you put theirs back on before the tech returns.

That's the way I roll. Grin

Back to top

« Last Edit: Sep 21^st, 2009 at 9:27pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

IP Logged

Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: O2 at 5 LPM? Any success? Reply #12 - Sep 21^st, 2009 at 9:35pm Ditto Beejeeber !!! Don
Back to top	Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not. IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #13 - Sep 21^st, 2009 at 11:55pm

5 lpm? Do you have COPD or CH? (No, I'm not attacking, I'm being sarcastic) I had little success with 15 lpm, and thought O2 didn't work for me. Went several yrs w/out, but after the OUCH convention this summer I bought the O2ptimask (the only way to fly IMHO) and got a 25 lpm regulator. I can now knock out a hit in 5-8 mins, depending on how quickly I get to it. I still can suck the bag flat when getting hit hard. I know I'm about done when the bag stays better than half full. My recommendation is to get a 25 LPM regulator and experiment with the flow rate you need. If you only need 10-15 great, but if you need more you have it. The extra cost is negligible when you look at it in the long term.

Jerry

Back to top

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

Skyhawk5

CH.com Alumnus

Offline

I love YaBB 1G - SP1!

Posts: 1320
Ypsilanti, Mi. USA
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #14 - Sep 22^nd, 2009 at 12:41am

Trying give more understanding. Cluster Headaches is a VERY RARE condition. Dr's see few if any CH patients. Dr's current knowledge in the U.S. only allow them to Rx 15lpm max of O2.

If they actually do research the condition for a patient they may read info that is way outdated. Meaning well but learning little. They don't have the time or the "patients" to do more.

Once we recognize these things it becomes a question of ethics. Should I go beyond my Dr's care, is it legal to get my own regulator? Yes it is.

If you find a regulator supplier that requires a Rx there are many more that don't. There is no law against it.

If you read a lot around the site you will find several regulator suppliers. I have used Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

for a 25lpm. For made to order reg's in any size (including Demand valves) I use Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

. There are others to be found on this site.

Lower O2 flow can and does work for some, but CH research has shown 15lpm to be todays minimum. But with hyperventalation and strong lungs 25lpm+ is the newest minimum.

The above is not common knowledge to most Doctors so don't expect them to agree.

Shoot me,
Don

Back to top

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

IP Logged

BarbaraD

CH.com Alumnus

Offline

Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: O2 at 5 LPM? Any success?
Reply #15 - Sep 22^nd, 2009 at 6:30am

I use the deman valve and swear by it (it goes up to 60 liters per minute). I can't imagine getting by on 5 lpm.

If you're going on e-bay go ahead and get the 25 lpm regulator. And be sure you get the right mask (you can order one from the ch.store right here on the left). Get the CO2 out and breathe pure O2 and it should make a BIG difference in the abort time.

I just went thru this with a resp. therapist in the hospital last week. She couldn't understand why I had O2 ordered PRN (my doc didn't argue with me) and came in to take my O2 stats (of course it was HIGH). She got a course on CH and didn't come back.

She just never heard of THAT!!! Imagine that????? Undecided

Ya gotta be a little assertative in your treatment. That's how you get relief. It's just a sad fact that the medical profession doesn't see enough of us to keep up on what works...

Hugs BD Kiss

Back to top

What don't kill ya, Makes ya stronger!

IP Logged

-johnny-

CH.com Sponsor

Offline

theres no smoking on the
dock

Posts: 1642
fayette county ohio
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #16 - Sep 22^nd, 2009 at 9:17am

Aussie6330 wrote on Sep 21^st, 2009 at 8:02pm:

As an alternative to e-bay, rather than piss around with sending...waiting etc, try your local dive shop (SCUBA) tanks use high flow regs as well and may be able to supply. Over here in Australia I used

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Have a look you will se what I mean.

Cheers

thats a pretty good idea. people have claimed great success with the on demand valves as opposed to the re breather mask. you don't have to have it touching your face and you get a higher flow rate. my reg goes up to 25 lpm. i wouldn't recommend any less. the more the better Wink

Back to top

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

IP Logged

Click Here to visit the CH.com Facebook page!

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: O2 at 5 LPM? Any success? Reply #17 - Sep 22^nd, 2009 at 7:31pm Thanks Bejeeber and Don. I'm going to do just that! Thank you much for the simple reminder that we must do what is nessesary for us as those who think they know the most don't know as much as they think! Gratful, Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: O2 at 5 LPM? Any success? Reply #18 - Sep 23^rd, 2009 at 7:16am I'm 6'4", 230 lbs. and have always had success with 7-8 lpm flow rate.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

MattyAA CH.com Veteran Offline I Love CH.com! Posts: 242 Poland, EU Gender:	Re: O2 at 5 LPM? Any success? Reply #19 - Sep 23^rd, 2009 at 9:20am Because you are prince Clusterhead Bob P tickles
Back to top	IP Logged

Marc Ex Member Gender:	Re: O2 at 5 LPM? Any success? Reply #20 - Sep 23^rd, 2009 at 11:42am Bob P wrote on Sep 23^rd, 2009 at 7:16am: I'm 6'4", 230 lbs. and have always had success with 7-8 lpm flow rate. And that's a truly wonderful thing.
Back to top	IP Logged

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: O2 at 5 LPM? Any success? Reply #21 - Sep 23^rd, 2009 at 2:05pm I agree with Marc! Wondering about you breathing technique? Only because I can suck back a bagful in less than one full breath at 15lpm. I use breathing techniques learned from Yoga and Meditation. Ever curious ,Iddy Smaller in size and stature.
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Marc Ex Member Gender:	Re: O2 at 5 LPM? Any success? Reply #22 - Sep 23^rd, 2009 at 2:43pm Bob kinda forgets to breathe now and then. I'll probably do the the same thing when I get as old as he is
Back to top	IP Logged

Bob P

CH.com Hall of Famer

Offline

Shut up Bob!

Posts: 4573
Clio,California
Gender: male

Re: O2 at 5 LPM? Any success?
Reply #23 - Sep 24^th, 2009 at 7:46am

My technique resembles what I learned in the 60's sucking on doobs. I take a slow, deep breath, hold it for a couple of seconds to let my body absorb the O2 from my lungs, and then fully exhale.

Usually aborts in 7-10 minutes. The 1 1/2 hour after I fall asleep attacks sometimes take a little longer.

However, being the open minded, liberal thinking person I am, I plan on trying the hyperventillating technique if I ever have another cycle. I have a 25 lpm regulator and the same mask Marc uses.

Back to top

Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!"

IP Logged

Brew

CH.com Sponsor
CH.com Alumnus

Offline

Posts: 14163

Re: O2 at 5 LPM? Any success?
Reply #24 - Sep 24^th, 2009 at 8:03am

Bob P wrote on Sep 24^th, 2009 at 7:46am:

My technique resembles what I learned in the 60's sucking on doobs. I take a slow, deep breath, hold it for a couple of seconds to let my body absorb the O2 from my lungs, and then fully exhale.

Usually aborts in 7-10 minutes. The 1 1/2 hour after I fall asleep attacks sometimes take a little longer.

However, being the open minded, liberal thinking person I am, I plan on trying the hyperventillating technique if I ever have another cycle. I have a 25 lpm regulator and the same mask Marc uses.

Commie.

Back to top

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!