Gee Willikers I'm gonna run out and get me some flu then!!

Actually I just started feeling pretty flu like about an hour ago and went and doused myself with all my strongest flu fighting remedies. This flu feeling could just be a drug side effect though of course.

Maybe I won't be so concerned about contracting a bit of the shweet influenza if it's a trade for HC! 

So Kim, 2 preventative ideas I'd have would be;

1) Rivea Corymbosa Seeds ("RC"). Discussed some here on this site and focused on over at clusterbusters.com.

2) Neurontin. Currently works better than any other preventatives for me and the same for some other CH folk. Then there are the others it doesn't work for at all. Side effect for me: A lil' bit stoned at first. Subsides after awhile. You were a heavyweight stoner in high school so this is nothing, you can handle it easy. Oh wait a minute, that was me. 

So the reason would be, some antigens produced naturally by body also affect CH? Or some chemistry changes in body, perhaps high tempreture or way the virus affects our system? Hmm so much to pick from.

Kim P wrote on Sep 22^nd, 2009 at 6:54pm:


Whoa! Be careful with that please!!   

Maybe the flu isn't so bad after all ... may have second thoughts about that flu shot??

Hope it killed the episode for you.

As for prevents -- topamax has been working well for me for about 10 years (keeps me sane - I'm chronic) - I was in "really" bad shape when I got on it - now I'm just in "fairly" bad shape.

Bejeebe, glad neurotin works for you - it almost killed me - the side effects were gruesome, but that's me - (my husband took it for years with no side effects, so go figure). There's a lot of info on this board about it, but for the most part it hasn't worked on many. You're one in a few, but that's the nature of this beast - what works for one of us doesn't help another.

Kim, have you gone the O2 route yet? Most of us (about 70%) use it as an abort around here. High flow rate (15-25 lpm) with a non rebreather mask works for most of us to abort a hit really fast.

And happy birthday - hope you get to have that adult beverage...

Hugs BD

Biological clock does not shut I believe, and CH is very hard to understand, why Oxygen, Hallucinogens, Hormone Therapies stop headache is mystery but sure there is some connection through chemical and biological interactions.

Mostly it will be migraine-alike, that it is just some brain malfunction in neural processing or either neuro-hormonal processing. Though I am not genius, I just theorise, but makes me wonder why Oxygen/Hormones/Prednisone/Hallucinogens put such big emphasis on lots of us, but then not all.

I had the flu last June that was immediately followed by the first cycle I've had in 6 years.

Seems the flu triggeredCH for me.

So flu on average lasts 1-2 weeks, how long are you guys pf? when you count days?

Clusterheads in Poland for example cannot get fast visit at neuro office either but war veterans and crippled people can get to doc outside of queue even when they havent registered, all they have to do is to walk to hospital or office and show papers and they get right after the already-in patient leaves, even if there is 8 people waiting in queue already.

I wonder.. isnt someone in heavy chronic or episodic but big pain considered crippled in a way? I am crippled to think properly when in pain and to act in social norms, as I will be raging pacing and rocking and I need immediate help.