i have chronic cluster headaches. as in there is no remission or off period.  i'm 22 years old and only recently discovered they were cluster headaches.  my mom just always called them migraines so thats what i called them.  i've had them for probably 15 years.  ive never seen anyone have a head ache like i do.  they are the most horrible thing and have almost ruined my life.  i saw a doctor who finally found a medicine that worked 6 months ago, indomethacin. it helps with some i still get daily headaches but its a miracle drug compared to where i was at.  do other people have this kind of pain? i feel like i'm dying and it hurts so bad please just someone tell me you know what i'm talking about. no one understands how bad it hurts someone here has to.  these things caused me to drop out of college, i'm back in now and a junior majoring in biochemistry just for the purpose of finding a cure for these headaches, thats my mission.  but it hurts soooooooo bad i just wanna rip my eye out. doctors look at you like your just trying to get pain medicine. wish they could just have one of the headaches i have. the doctors i see now tho he's cool. he gets it.  just someone say you know what i mean, ive never talked to someone who has these kinds of headaches.

This Topic was moved here from Supporter's Corner by Mrs Deej.

Perhaps there is a misunderstanding about what Indomethacin is?

Marc

those quotes someone put on here i guess for the reason of trying to make me look stupid were from a post where people were saying narcotic pain relievers don't work for cluster headaches.  they do work for me.  i take indomethacin as a preventive medication, but it doesn't stop all of the usual daily headaches.  i started takin a narcotic about the same time as the indomethacin.  before all this happened about 6 months ago, there was nothing that helped. i was taking 6-10 BC powders a day 2 at a time.  when i was 13 i had taken so much headache medicine i gave myself peptic ulsers. they busted a blood vessel over night and i almost died.  at that time i was taking aleve, which have naproxen in them, an NSAID. thats why i got my stomach ulsers because i was takin about 10-12 of those a day.  Now all i have to take is the indomethacin 3 times a day, its an NSAID too, gotta be careful, and about 1-3 painkillers a day.  1-3 painkillers is better than 10 BC's any day.  I was getting mad at those people talkin about pain medicine because it does work for CH's.  and trust me if you have had these all your life, everyday, no remission, you would be screaming at doctors for some kind of relief, all ive ever known is cluster headaches since i was  a kid.  i will take relief in whatever form i can find.

Brandon,

Please follow the link below to learn more about what a few of us have mentioned. While you may find narcotics effective in pain treatment, you also have already experienced side effects and you mentioned disruption in life. 

Oxygen can change that for you, and this information can be shared with your neuro.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Hope it helps.

there pure cluster headaches.  when i started that indomethacin, 3 times a day, it took 10 days before i could tell the difference, but after about a month the 4-8 headaches a day, went to like 1 or 2 on a average day, none on a good day, and sometimes there was a bad day but not very often.  I'm pretty sure there clusters. i dont take the indomethacin as an abortive medication, but daily to prevent them.  i know that its no pain to all the pain in the world in 5 minutes.  its just to prevent, and ive taken a laundry list of medicines and this one works. i am going to look into this O2 because it seems to have some back behind it.

From the Medical Info link at the upper left:

Quote:


There are a few folks on this board with PHC. Maybe they'll pipe up.