Be sure to read the "oxygen info" information in order to get the maximum benefit.

Just read your post/s Grace.  I can definitely relate.  The best way for me to describe it is a feeling of unreality.  I have had to deal with anxiety disorder for a couple of decades now, independent of my CH's cycles.  Have had the anxiety under control for many years  but there was a time when I would experience what is called "free floating anxiety".  It is a terribly uncomfortable feeling with no apparent relief.  At times, I felt I had to grab the nearest thing to me because it felt like I was going to fall off the face of the earth.  Blurred vision,  vertigo, ringing in the ears, extreme fatigue were all part of it.  Looking back, I believe this was originally triggered by a very long extended period of stress in my life.  Incidentally, I had a few weeks of that constant, uncomfortable feeling during my last cluster cycle which I totally blame on the stress a new cycle brings into my life.  Does any of this sound familiar to you?  Hope this helps.

Sounds like we are very similar Grace.  The "outside edge" analogy really struck a chord with me.  You are definitely experiencing the same thing.  You seem to have the necessary, take control, attitude required to get back on track with a normal life.  Or as normal as can be expected given the circumstances.  For me, there was no miracle doctor, drug, or religion that helped.  In the end, it was a combination of "all of the above".  Self education, tons of reading, seeking out & speaking with others in the same boat, seeing different specialists, trying different drug therapies, practicing relaxation techniques, massage therapy.  There was no magic, just allot of determination, trial & error, & hard work to get back to a state of relative peace.  This web site has helped me a great deal.  It's comforting just to know it is here.  Hang in there Grace, you will succeed.

Joni...Did you have an MRI of your brain? Sorry if you've mentioned it before and I missed it...I just wasn't sure.  Glad you're stopping the Zyprexa...that sounded like scary stuff.  As for Verapamil and it being a blood pressure med...my BP is really low.  Sometimes 90/60, 80/40.  Had this checked as well and was told I would probably live longer than most unless I was run over by a bus.  Really..that's what the specialist said. So I don't know if a BP med would be appropriate.  What are RC seeds?  I've also considered having my Neuro ordering an MRI for my neck/sinuses/carotids, whatever.   I also sent you a message which I don't know if you got because I'm computer challenged as well sometimes, but I mentioned menopause.  I noticed you're 55 and I'm about to be 57 and have been going thru menopause for 11 years.  Someone mentioned to me that Ch's often come at the end of menopause.  Have you ever heard  anything like this?  Also, and I know I'm jumping from topic to topic, but it's because there are so many questions I want to ask...but do you ever have trouble with your eyes...not the droopy eyelid thing, but almost like your vision isn't quite acute as it normally is.?  Also, have you tried the kudzu/melatonin? Last night I took the kudzu before bed, but the beast came knocking on my door.  Didn't quite get all the way in but all night I had some degree of pain.  I fell asleep finally with an ice bag on my head.   Also I am a smoker, which probably doesn't help matters, but sometimes it's the only thing that keeps my nerves in check. OK, I'm rattling on like a broken chatty Kathy, so I'll stop bombarding you with questions for now.  I'm so glad you got back to me tho.  Please keep me posted on your progress as well.

Randy...Thanks for the encouraging words.  It is really great to have you all to talk to.

It is a relief, isn't it, just to know someone else is feeling this weird crap.  I can't thank Joni and Randyvv enough..they don't realize the extent to which they've helped me.  Because of them, I'm coping with this oh so much better.  At least I know I'm not going crazy, altho that might be debateable.  However, it helps to know you're not alone.  But once you recognize it for what it is, it's actually easier to control.  So hop on in this boat Gary...there's always room for more.

Good to hear from you too, Joni.  Sorry you're having trouble with the lingering effects of Verapamil, but it's wonderful that your clusters are gone for now.  My kudzu and taurine seem to be doing something because my headaches are changing ...less severe and less often.  I guess if you can go from episodic to chronic, you can also go from chronic to episodic...you think?  All I know is that I'm not having them every night like I was.  I do get this funny feeling in the back of my head like porcupine needles, but I don't know if it's related to clusters.  It's nothing I can't handle, it's just annoying. But my painic attacks seem to have vanished and I have you all to thank for that. 
My best friend was an airline flight attendant and she was having all these changes occur...cognitive issues, periodic blindness, muscle weakness, etc.  She went to 7 doctors before she was properly diagnosed with MS.  She always told me that the scariest thing about going thru this was not knowing what was wrong...once it was diagnosed, she could deal with it to the best of her ability.  She has since passed away, but she gave it a good fight.  But I know what she means...when I was going thru all that weirdness, feeling like I was on the outside looking in, woozy and unsteady....I thought...what the hell is wrong with me?  Is there more going on than Clusters?  I had almost convinced myself that I was going crazy or dying, or both.  But you all put a name to it, and then I knew I wasn't the only one experiencing these horrible feelings.  I think I was so afraid that I put myself into painic mode.  So everything was compounded.  Now I have a handle on it and I'm going to be fine. I think everyone on this site has helped someone in some way, and isn't that rewarding?  My husband and I both agree that this site is the best thing that has happened to me!  So Joni...enjoy your cluster-free days but stay close...someone here always needs you.