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Niels Ex Member I Love CH.com!	The CH cure? Oct 11^th, 2009 at 5:55pm Hi I want to hear your opinion and experiences about D-vitamin subliment. Are there some CH patient who have been cured by taking D-vitamin? How many of you have tried or takes a dose in the range of 100-150 ug daily to get a blood level between 50-80 ng/ml (125-200 nmol/L?
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Weatherman CH.com Veteran Offline Beat the Beast! Posts: 159 Charlotte, NC Gender:	Re: The CH cure? Reply #1 - Oct 11^th, 2009 at 6:30pm I've never heard of a CH sufferer being "cured" by...........anything.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: The CH cure? Reply #2 - Oct 11^th, 2009 at 6:33pm Be extremely careful using the "C" word. It pushes buttons.
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Niels Ex Member I Love CH.com!	Re: The CH cure? Reply #3 - Oct 11^th, 2009 at 6:48pm Maybe I'm the first one. I haven't had any CH period the last 8 months after my VitD level reached 50 ng/ml.
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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: The CH cure? Reply #4 - Oct 11^th, 2009 at 6:52pm I haven'y had a Ch episode in the last 3 1/2 years, because I'm old. Does that mean I'm cured?
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: The CH cure? Reply #5 - Oct 11^th, 2009 at 6:58pm Correlation does not equal causation.
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: The CH cure? Reply #6 - Oct 11^th, 2009 at 7:01pm I'm also cured... Well to Feb 2011 at least.. Lefty...!
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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: The CH cure? Reply #7 - Oct 11^th, 2009 at 7:30pm Got milk ?
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Marc Ex Member Gender:	Re: The CH cure? Reply #8 - Oct 11^th, 2009 at 8:37pm Bob P wrote on Oct 11^th, 2009 at 6:52pm: I haven'y had a Ch episode in the last 3 1/2 years, because I'm old. Does that mean I'm cured? You're old?
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MattyAA CH.com Veteran Offline I Love CH.com! Posts: 242 Poland, EU Gender:	Re: The CH cure? Reply #9 - Oct 11^th, 2009 at 9:14pm Lefty wrote on Oct 11^th, 2009 at 7:01pm: I'm also cured... Well to Feb 2011 at least.. Lefty...! Shit, shit, how do you do this??? :p On more serious note, I red somewhere about vitamin D ceasing Cluster Headaches and not only, Hemicrania, SUNCT, Migraine.
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ClusterChris CH.com Old Timer Offline Damn Head! Posts: 334 Welland, Ontario Gender:	Re: The CH cure? Reply #10 - Oct 11^th, 2009 at 10:30pm I told my wife that sex has been known to cure clusters. Worked like a charm! shhhhhhhh Chris
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Barry_T_Coles CH.com Alumnus Offline Posts: 2073 Karratha\|,West_Australia Gender:	Re: The CH cure? Reply #11 - Oct 11^th, 2009 at 11:17pm Bob P wrote on Oct 11^th, 2009 at 6:52pm: I haven'y had a Ch episode in the last 3 1/2 years, because I'm old. Does that mean I'm cured? Nah your just like me, OLD Original Lovable Dude Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Charlotte CH.com Alumnus Offline Posts: 2385 Patterson,California Gender:	Re: The CH cure? Reply #12 - Oct 11^th, 2009 at 11:24pm Niels, forgive us for our attitude. I am happy something has helped you. Go for it. Many things do help us in different ways, and some seem quite odd, like kudzu, a rampant weed in parts of the US. I think of it as a remission, and I hope it last a lifetime for you. Charlotte
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Guiseppi

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Re: The CH cure?
Reply #13 - Oct 11^th, 2009 at 11:58pm

They're having a little fun at your expense...but it's all in fun! Wink

We don't use the word CURE here as it's terribly misleading. I have substantially reduced the frequency and intensity of my cycles by taking a daily combo of Magnesium, Vitamin D, Calcium, and Vitamin B-2. I'm never entirely sure how much it helps, or what specific part of it does the most good, as the beast is known to morph so often. As long as it seems to help me...I ain't messing with it!

If you have found something that works, for heavens sake stick with it. Just understand if you truly have CH, you can't cure it. You can mask it's symptoms and prolong remission periods. Some get lucky and just outgrow it. People like you have turned us on to numerous alternative treatments which have proved succesful for many sufferes. Do post of your continued epxerience.........you might have stumbled onto something.

Joe

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Niels

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Re: The CH cure?
Reply #14 - Oct 12^th, 2009 at 2:45am

Thanks for the comments, especially the funny ones but also the serious ones. Wink

The last 4 months I have spend almost all my time reading/researching about Vitamin-D and found some very interesting links between CH and vitamin-D deficiency. Today we don’t know the cause of CH, but we know that CH suffers have lower levels of serotonin, melatonin, testosterone and magnesium during CH periods. I am absolutely convinced that vitamin-D deficiency is the main cause of CH because:

1. Vitamin-D regulates the serotonin level. Low vitamin-D = low level of serotonin = low level of melatonin.
2. Vitamin-D regulates the hormone testosterone.
3. CH is more common in northern latitude.
4. Vitamin-D lowers the blood pressure.
5. Vitamin-D increases the magnesium level.
6. Finally my own experiences. 8 months without CH. The first for me in 17 years.

Vitamin-D deficiency is one of the major causes of almost every known disease ex. cancer, diabetes, heart diseases, etc.

Vitamin-D researchers have concluded that the optimal level of Vitamin-D has to be in the range of 50-80 ng/ml. It’s the same level as the primates living in the free sunny nature and the level humans had in the past.

Regards
Niels

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Guiseppi

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Re: The CH cure?
Reply #15 - Oct 12^th, 2009 at 3:37am

No questioning you've done your homework on this. Check out the thread in this same area, about 10 threads down, "Why don't we pay attention to this?" another theory about a deficiency that's apparently helping a lot of people with CH. I'm one of those who is convinced CH is probably about 20 or more closely related problems. That'd explain why meds that work so well for some, seem worthless for others. just Joe's theory! Wink

Joe

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MattyAA CH.com Veteran Offline I Love CH.com! Posts: 242 Poland, EU Gender:	Re: The CH cure? Reply #16 - Oct 12^th, 2009 at 8:25am That is interesting info Niels, I will read about it myself too a bit as I want to try all possible treatments, and will do a blood-work on vit D levels and report back in week or so.
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: The CH cure? Reply #17 - Oct 12^th, 2009 at 9:51am ClusterChris wrote on Oct 11^th, 2009 at 10:30pm: I told my wife that sex has been known to cure clusters. Worked like a charm! shhhhhhhh Chris Good one!!
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Gonzalo

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Re: The CH cure?
Reply #18 - Oct 12^th, 2009 at 9:29pm

Niels wrote on Oct 12^th, 2009 at 2:45am:

Vitamin-D deficiency is one of the major causes of almost every known disease ex. cancer, diabetes, heart diseases, etc.
Vitamin-D researchers have concluded that the optimal level of Vitamin-D has to be in the range of 50-80 ng/ml. It’s the same level as the primates living in the free sunny nature and the level humans had in the past.

Hello everybody (again) from Spain

What about the CH sufferers that don't have vitamin-D deficiency? if there is (CH) people with right levels, the D vitamin will not help them. This is the same for B-complex, magnesium ,etc..

Are we all in right levels of D vitamin? can someone say with facts he/she has right levels? Sure, I can't, but i will look for this information.

Thank you very much for your share, I take good note of.

Best regards.

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« Last Edit: Oct 12^th, 2009 at 9:32pm by Gonzalo »

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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: The CH cure? Reply #19 - Oct 12^th, 2009 at 9:57pm WHATEVER works for you....that's great. For other reasons, I take large amounts of D3 (the active form)...it seems to help those conditions. As for ch...no dice... Best, Jon
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: The CH cure? Reply #20 - Oct 12^th, 2009 at 10:47pm JustNotRight wrote on Oct 12^th, 2009 at 9:51am: ClusterChris wrote on Oct 11^th, 2009 at 10:30pm: I told my wife that sex has been known to cure clusters. Worked like a charm! shhhhhhhh Chris Good one!! My bad letting my wife on the board...I tried that line..she didn't buy it......
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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: The CH cure? Reply #21 - Oct 12^th, 2009 at 11:11pm I ain't touchin this thread. Potter
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Niels

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Re: The CH cure?
Reply #22 - Oct 13^th, 2009 at 1:37am

Quote:

What about the CH sufferers that don't have vitamin-D deficiency? if there is (CH) people with right levels, the D vitamin will not help them. This is the same for B-complex, magnesium ,etc..

In Denmark 5% of the population have a vitamin-D level between 50-80 ng/ml late summer and only 2 % in the late winter period. I will be very surprised if there are any CH suffers in this part of the Danish population.

Quote:

WHATEVER works for you....that's great. For other reasons, I take large amounts of D3 (the active form)...it seems to help those conditions. As for ch...no dice...

Hi Jon

How much D3 vitamin do you take and have you got a blood test? I'm taking 140 ug (5600 IU) as a daily dose year round

Regards
Niels

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: The CH cure? Reply #23 - Oct 13^th, 2009 at 6:42am Quote: In Denmark 5% of the population have a vitamin-D level between 50-80 ng/ml late summer and only 2 % in the late winter period. So then 95%-98% of them have cluster headaches?
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jon019

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Re: The CH cure?
Reply #24 - Oct 13^th, 2009 at 11:00am

[/quote]

Hi Jon

How much D3 vitamin do you take and have you got a blood test? I'm taking 140 ug (5600 IU) as a daily dose year round

Regards
Niels [/quote]

Howdy,

1000-2000 iu/dy (depending on remembering dosing schedule....prefer divided doses of most meds/supplements as it is a personal belief that the body can only absorb so much at a time).

Best,

Jon

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The LARGE print giveth....and the small print taketh away. Tom Waits

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