Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Pages: 1 2 3 4 
Send Topic Print
The CH cure? (Read 19844 times)
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #50 - Oct 27th, 2009 at 2:27pm
 

Our bodies usually produce large amounts of vitamin D3 (cholecalciferol), the most bioactive form, when our skin is exposed to sunlight. Obviously in winter, especially in very northerly or southerly latitudes, our exposure to sunlight is very low as we wrap up in thick clothing and hide away indoors where it's warm. As a result our vitamin D production can drop to almost zero and deficiencies become a problem. Vitamin D deficiency has been implicated in a number of serious illnesses, from osteoporosis to cancer and high blood pressure. Vitamin D deficiency can also have a marked effect on mood, with studies showing that people with low vitamin D levels are far more likely to suffer from depression than those with higher levels.

The fat soluble vitamin D is confusingly named, as it is actually a powerful hormone. It has a major role in the conversion of the amino acids to neurotransmitters , tryptophan to serotonin, and tyrosine to dopamine and norepinephrine. It performs this role within the brain, and in the adrenal glands. Much of this is performed through vitamin D's close relationship with calcium, as calcium literally controls the communication between neurons (brain cells). This relationship with calcium is also why vitamin D is important for bone health. The neurotransmitters
serotonin
, dopamine, and norepinephrine have a huge impact on mood,
so if vitamin D is deficient and they are not produced in sufficient amounts
, the result is depression. Since sun exposure and vitamin D production are much lower in the winter, most vitamin D deficiency related depression is in the form of SAD.

Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: The CH cure?
Reply #51 - Oct 27th, 2009 at 2:30pm
 
Bob P wrote on Oct 27th, 2009 at 1:56pm:
Quote:
However, there are natural alternatives to drug use for helping get rid of headaches. In one study, eight patients with chronic tension-type headaches and low vitamin D levels were put on a vitamin D and calcium regimen. All eight patients reported significant lessening of their headaches after supplementing with calcium and vitamin D. It appears that vitamin D and calcium can also help people with migraine headaches, including women who are in the postmenopausal phase of their lives. Several different hormonal changes accompany both menopause and its aftermath, post-menopause. These two changes in a woman’s life can result in many different ailments, including migraine headaches. In a small study, treatment with vitamin D and calcium dramatically reduced both the frequency and duration of migraine headaches within two months of starting the supplement therapy.

Looks like it may help tension and migraine headaches but no mention of clusters.  Is it safe to say if vitamin D helps, you don't have clusters?

    Bingo. We have a winner!

            Potter
Back to top
  
 
IP Logged
 
thebbz
Ex Member



Re: The CH cure?
Reply #52 - Oct 27th, 2009 at 2:33pm
 
Your convinced. "I think therefore I am". The hypothalmus is the problem not vitamin deficiency.
IMHO
Huhthe bb

Edit:
Try taking vitamin-D and get your blood level up between 50-80 ng/ml. It will regulate your testosterone, serotonin and melatonin level to normal.

The hypothalamus does the regulating not vitamin D.
Back to top
« Last Edit: Oct 27th, 2009 at 2:47pm by N/A »  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: The CH cure?
Reply #53 - Oct 27th, 2009 at 2:33pm
 
Niels wrote on Oct 27th, 2009 at 1:49pm:
I'm definitely convinced that it won't.

Why do I get the distinct feeling that we'll never know?
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
thebbz
Ex Member



Re: The CH cure?
Reply #54 - Oct 27th, 2009 at 2:36pm
 
Why do I get the distinct feeling that we'll never know?


Great minds think alike.  Shocked
the bb
Back to top
  
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #55 - Oct 27th, 2009 at 2:50pm
 
Quote:
The hypothalmus is the problem


Yes, you’re right. The biological clock is located in the hypothalamus, where vitamin-D receptor is most abundant. The biological clock don't work properly if there’s not enough vit-D to connect the receptors.

Niels

Back to top
  
 
IP Logged
 
thebbz
Ex Member



Re: The CH cure?
Reply #56 - Oct 27th, 2009 at 2:56pm
 
The biological clock don't work properly if there’s not enough vit-D to connect the receptors.

The clock does not work properly because of a malformed hypothalamus, vitamin d levels are regulated by the hypothalamus as well. Roll Eyes
the bb
Back to top
  
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #57 - Oct 27th, 2009 at 3:09pm
 
Quote:
vitamin d levels are regulated by the hypothalamus


No it doesn't.
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: The CH cure?
Reply #58 - Oct 27th, 2009 at 3:20pm
 
I'm out of this circle jerk.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
thebbz
Ex Member



Re: The CH cure?
Reply #59 - Oct 27th, 2009 at 3:21pm
 
Whatever you think thats gotta be it. If it were that simple I think Goadsby would have been on it.
Yep your convinced.
the bb
we disagree Wink
Back to top
  
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #60 - Oct 27th, 2009 at 4:32pm
 

Yes, it's so simple that we didn't pay it any attention.

Some Med’s and PhD’s who don't get paid by the medical industry believe that in a period of 10 years half of the industry worldwide have to shut down due to the result of the vitamin-D research.

Niels
Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: The CH cure?
Reply #61 - Oct 27th, 2009 at 5:22pm
 
Brew wrote on Oct 27th, 2009 at 3:20pm:
I'm out of this circle jerk.

  I'm  done with this .  Looks like niels is jerkin on his own now.

        Potter
Back to top
  
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #62 - Oct 27th, 2009 at 5:33pm
 
Quote:
I'm  done with this

Thanks Potter. WinkYou have only contributed with some stupid comments in this thread. IMHO very childish.  Roll Eyes
Back to top
« Last Edit: Oct 27th, 2009 at 5:36pm by Niels »  
 
IP Logged
 
Marc
Ex Member
****




Gender: male
Re: The CH cure?
Reply #63 - Oct 28th, 2009 at 3:17pm
 
Niels,

I suspect that your exuberance at being Cluster Headache free is clouding your ability to think critically. Re-read these statements that I have copied from your comments in this thread. Can you not see reasons for people to challenge you?



Niels wrote on Oct 11th, 2009 at 6:48pm:
Maybe I'm the first one. Smiley I haven't had any CH period the last 8 months after my VitD level reached 50 ng/ml.


Niels wrote on Oct 12th, 2009 at 2:45am:
............. I am absolutely convinced that vitamin-D deficiency is the main cause of CH ...................


Niels wrote on Oct 27th, 2009 at 1:49pm:
Quote:
I don't want you to be too surprised or disappointed if your CH returns

I'm definitely convinced that it won't. Vitamin-D is acting the same way as the drug sumatriptan (imitrex) by regulating the serotonin level. Thats a fact.
Best, Niels


Do you really think that you are first one to try this? Do you really believe that you are ahead of the very talented researchers working on this problem for years?

I sincerely hope that your remission continues, whatever its cause.

But coming here making outlandish claims that you "know" the main cause of CH's and that you are sure that you have cured yourself - then complaining about "stupid comments" and calling people childish - just doesn't help give you any credibility.

Please note I'm not here to argue with your success, just making an observation.

Marc
Back to top
« Last Edit: Oct 28th, 2009 at 4:14pm by Marc »  
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #64 - Oct 28th, 2009 at 5:13pm
 
Hi Mark,

The reason why I started this tread was to tell your all what I have experienced by taking Vitamin-D. I have tried to figure out what’s the cause of CH the last 10 years and have finally found something that works for me. I started researching  Vitamin-D and have found that it’s very important for all our cells and hormones in our body to work properly.

Quote:
Do you really think that you are first one to try this?


No, there’s another one on this forum:

Started by loads | Post by loads

Just wondering whether anyone on this site who suffers from CH has ever checked their Vitamin D and Calcium levels.

I am a long term (25 year, 2 cycles p.a lasting about 2-3 months per cycle) episodic CH sufferer and insisted on a medical last year.

Bloods revealed virtually no Vitamin D, inability to absorb calcium as a result, which has lead to Osteopaedia, due to an inability to absorb fat all as a result of an inefficient pancreas.

I am now on Creon (pancreas extract) and 3 monthly Vitamin D boosts. I am only 43 y.o and the 25% loss of height in my vertibrae (spine) suggests I have had this deficiency most of my life.

The good news is I have not had a CH for over a year now. A first for me in 25 years.
Perhaps Vitamin D deficiency has something to do with it or perhaps I am only hoping? Also have saved $5000 on Imigran (Imitrex) injections over last 12 months!


Quote:
Do you really believe that you are ahead of the very talented researchers working on this problem for years?


Yes I believe that, because the talented researcher’s haven’t paid vitamin-D any attention in their research of CH, yet.

I think that one of the issues is that when your suffer from a rare disease like CH, your also expect that the cause is something rare and special. But still I’m convinced that the main cause is low level of Vitamin-D. Just wait and see.

Best
Niels
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: The CH cure?
Reply #65 - Oct 28th, 2009 at 5:44pm
 
Quote:
I have tried to figure out what’s the cause of CH the last 10 years and have finally found something that works for me.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Kevin_M
CH.com Sponsor
***
Offline


withered branches grow
green again.


Posts: 8754
Michigan, USA
Gender: male
Re: The CH cure?
Reply #66 - Oct 28th, 2009 at 5:53pm
 
Niels wrote on Oct 27th, 2009 at 5:09am:
Hi

Some new info about Vit-D.

Headaches Can Be Relieved With Calcium And Vitamin D
Dr. Richard Jensen, a San Diego holistic nutritionist, finds that using nutritional supplements can help relieve headaches without drugs.

FOR IMMEDIATE RELEASE

PRLog (Press Release) – Oct 20, 2009 – Headaches are...


Having been through the stock market's .com boom and bust of the late 90's, there was a distinguishing aspect to news labeled PR, which was corporate promotional and to be noticeably wary of its foundation.

PR releases were tools used by companies as mouthpieces, launching opportunities to build a market, create visibility, support activity, drive traffic as direct to consumer vehicles.


The article seems sourced from a compiling site, yes, and yet as you indicate, under a tab that says press release, but at the very top of the site, this is their little message:


Promote Everything About Your Business on PR.com


Promote, as in "self promote". 

In this creating of "word of mouth", today there is sometimes the retweeting "mommy blogger", which may "coincidentally" happen somewhere in a thread, too.

Things may not have really changed much in ten years.




Back to top
  
 
IP Logged
 
MattyAA
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 242
Poland, EU
Gender: male
Re: The CH cure?
Reply #67 - Nov 1st, 2009 at 9:12am
 
Well there might be something into vitamine D, as in perhaps Hypothalamus is main cause but by using vit D we can activate something or reduce through feedback.
Back to top
  
 
IP Logged
 
monty
CH.com Hall of Famer
*****
Offline




Posts: 1056
The Swamp, Florida
Re: The CH cure?
Reply #68 - Nov 4th, 2009 at 6:16pm
 
What about this one?

Quote:
Headache. 1994 Nov-Dec;34(10):590-2.
Alleviation of migraines with therapeutic vitamin D and calcium.

Thys-Jacobs S.

Department of Medicine, Mount Sinai Hospital, New York, NY 10029.

Two postmenopausal migraineurs who developed frequent and excruciating migraine headaches (one following estrogen replacement therapy and the other following a stroke) were treated with combination vitamin D and calcium. Therapeutic replacement with vitamin D and calcium resulted in a dramatic reduction in the frequency and duration of their migraine headaches.


Fifteen years ago, there were some promising case studies. Since then, no one has bothered to look at whether vitamin D can help.  Instead, the money goes to developing yet another triptan which can be sold for $40 a pop.

Hypothalamus, schmipothalamus ... sure, it is involved. But there are a ton of chemicals that people take that can prevent or abort ... does oxygen fix the hypothalamus? Triptans? Lithium? Kudzu? Olanzapine? Histamine desensitization? Verapamil? Cluster busters?  Melatonin? Magnesium?  Taurine?

Who is to say that vitamin D won't someday be added to the list?
Back to top
« Last Edit: Nov 4th, 2009 at 6:29pm by monty »  

The outer boundary of what we currently believe is feasible is far short of what we actually must do.
 
IP Logged
 
thebbz
Ex Member



Re: The CH cure?
Reply #69 - Nov 4th, 2009 at 10:20pm
 
Who is to say that vitamin D won't someday be added to the list?
If it works for anyone that's a good thing.
Smileythe bb
Back to top
  
 
IP Logged
 
Gonzalo
CH.com Junior
**
Offline


I Love CH.com!


Posts: 43
Re: The CH cure?
Reply #70 - Nov 4th, 2009 at 11:59pm
 
Niels wrote on Oct 27th, 2009 at 1:49pm:
I'm definitely convinced that it won't. Vitamin-D is acting the same way as the drug sumatriptan (imitrex) by regulating the serotonin level. Thats a fact.

Just a remark. Sumatriptan does NOT regulate serotonin level in any way. It just acts like serotonine acts against some receivers. It's a so called "selective agonist" of serotonin.

Regards.

Back to top
  
 
IP Logged
 
Joni
CH.com Old Timer
****
Offline


Knowledge is Power


Posts: 476
Gender: female
Re: The CH cure?
Reply #71 - Nov 5th, 2009 at 12:25am
 
Neils-
You have already lost all credibility with your assertive, defensive comments in which you portray yourself as a doctor or pharmacist.  It could be confusing to some people as they may be unaware of your false statements.  I would have thought by now, you could recognize the negative feedback coming your way.  This is a wonderful site that you may need someday for support and you are shooting yourself in the foot.  Chill.
Back to top
  

Experience:  That most brutal of teachers.  But you learn, my God do you learn.  -C. S. Lewis
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #72 - Nov 5th, 2009 at 6:25pm
 
Quote:
Just a remark. Sumatriptan does NOT regulate serotonin level in any way. It just acts like serotonine acts against some receivers. It's a so called "selective agonist" of serotonin.

In general, low brain serotonin levels are associated with increased sensitivity to pain, and chronic pain sufferers appear to have reduced serotonin functioning. Serotonin is known to have an effect on pain awareness, in part by controlling the release of a pain-signalling brain chemical called substance P. Sumatriptan acts the same way.

Niels
Back to top
  
 
IP Logged
 
thebbz
Ex Member



Re: The CH cure?
Reply #73 - Nov 5th, 2009 at 6:31pm
 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
The more you know
the bb
Back to top
  
 
IP Logged
 
Niels
Ex Member
*


I Love CH.com!


Re: The CH cure?
Reply #74 - Nov 5th, 2009 at 6:48pm
 
Quote:
You have already lost all credibility with your assertive, defensive comments in which you portray yourself as a doctor or pharmacist.  It could be confusing to some people as they may be unaware of your false statements.  I would have thought by now, you could recognize the negative feedback coming your way
Roll Eyes
I can’t take your comments serious. You simply can’t understand the subject in this thread.   Smiley

Back to top
  
 
IP Logged
 
Pages: 1 2 3 4 
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!