Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
I Have Been Gone For Awhile, But Not The Headaches (Read 1231 times)
jhgnopain
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 18
x0|Oakland|USA||0|0|CA,California
Gender: male
I Have Been Gone For Awhile, But Not The Headaches
Oct 13th, 2009 at 10:54pm
 
This year (2009) has been a long one in terms of CHs.  I had a cycle in March and thought it was over in late May/early June.  Then I had a couple of what I called isolated attacks (that I have never experienced in my nearly 30 years of dealing with the Demon).  Then attacks started again in August and I went back to the neurologist.  He put me back on Verapamil.  Thank heavens for injectible Imitrex!  I have had four attacks since Saturday morning and have been having shadows nearly all day today.  The Dr. increased my Verapamil from 480 mg to 720 mg (after an EKG).  I am hoping this works.  While my attacks are not as severe as they were prior to Verapamil, they are still CH attacks and I am feeling much older than my 43 years at present.  I am clueless of what may be triggering these--have not had a drink in a very long time, try to watch from overheating (2 definite triggers for me).  The Dr. told me that cycles can "hick-up" so to speak.  I am venting here, but am open to any suggestions anyone might have in terms of triggers I am not aware of...  John
Back to top
  
 
IP Logged
 
bejeeber
CH.com Hall of Famer
*****
Offline




Posts: 1359
Gnashville
Gender: male
Re: I Have Been Gone For Awhile, But Not The Headaches
Reply #1 - Oct 14th, 2009 at 1:10am
 
I'm not aware of any triggers that can make an entire cycle hiccup and then start right over unexpectedly.

Makes me wonder if it's not so much a trigger issue, but just the beast doing his not always predictable thing, this time with some stoopid hiccuping thrown in for sadistic measure.  Angry

Sorry to hear about this long year of CH for you - I'm sure that's the last thing you needed.  Sad
Back to top
  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
IP Logged
 
maryo
CH.com Veteran
***
Offline


Johnny & Roy puzzle where
to apply the O2 mask


Posts: 171
x1|Little Deer Isle|USA|usa|536|53|ME,Maine
Gender: female
Re: I Have Been Gone For Awhile, But Not The Headaches
Reply #2 - Oct 15th, 2009 at 12:04pm
 
I agree with bejeeber. The beast loves to change things up. I've had one or two years with -- what did that doc call them, hiccups? -- which I thought was the CH trying to branch out from episodic to chronic as they do with post-menopausal women. Just keep in mind that there's rarely any rhyme or reason to these buggers and keep experimenting! Best of luck.
Back to top
  
 
IP Logged
 
maryo
CH.com Veteran
***
Offline


Johnny & Roy puzzle where
to apply the O2 mask


Posts: 171
x1|Little Deer Isle|USA|usa|536|53|ME,Maine
Gender: female
Re: I Have Been Gone For Awhile, But Not The Headaches
Reply #3 - Oct 15th, 2009 at 12:06pm
 
I agree with bejeeber. The beast loves to change things up. I've had one or two years with -- what did that doc call them, hiccups? -- which I thought was the CH trying to branch out from episodic to chronic as they do with post-menopausal women. Just keep in mind that there's rarely any rhyme or reason to these buggers and keep experimenting! Best of luck.
Back to top
  
 
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: I Have Been Gone For Awhile, But Not The Headaches
Reply #4 - Oct 15th, 2009 at 12:15pm
 
It's one of his ugliest faces...the ability of the beast to constantly morph. You didn't mention oxygen in your arsenal. We've seen a lot of refinements in its use in the last 2 years, dramatically increasing its effectiveness. Read the link on your left, "oxygen info" and give it a shot. I abort in 6-8 minutes,.....without the "trex hangover."

Joe
Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
Marc
Ex Member
****




Gender: male
Re: I Have Been Gone For Awhile, But Not The Headaches
Reply #5 - Oct 15th, 2009 at 1:52pm
 
maryo wrote on Oct 15th, 2009 at 12:06pm:
......... which I thought was the CH trying to branch out from episodic to chronic as they do with post-menopausal women.............


First time I've heard that about Clusters Headaches.

Can you point me to a source?

Thanks in advance,

Marc
Back to top
  
 
IP Logged
 
jhgnopain
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 18
x0|Oakland|USA||0|0|CA,California
Gender: male
Re: I Have Been Gone For Awhile, But Not The Headaches
Reply #6 - Oct 17th, 2009 at 2:30pm
 
Thanks for your replies.  I tried many tx within the past ten years...Sansert, Depakote, Prednisone, O2, a couple of other meds whose names escape me at present.  The Verapamil seems to have been most effective for me in terms of prevention.  My attacks are far less severe than they used to be.  Looking back on it, I wonder how I managed from age 14 until 30 something with no tx at all--Thanks to neurologist, Dr. Sydney Bender in Livingston NJ for the formal diagnosis!!!

I report with some trepidation that I am experiencing day FOUR--PF!!!  It is going to have to last considerably longer before I believe that the Beast is sleeping (or hopefully DEAD)!
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!