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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Please Respond.....

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Please Respond..... (Read 5078 times)

Jeremys Dad

CH.com Newbie

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How did I get lucky enough
to deserve them?

Posts: 10
Ottawa, Canada
Gender: male

Re: Please Respond.....
Reply #25 - Oct 19^th, 2009 at 5:46pm

Medications

Prophylactic doses
Verapamil: 480 mg AM (2 X 180 + 1 X 120)
Topomax: 100 mg bedtime

Abortive doses
Imitrex nasal : 20 mg allowed twice daily

Also use O2 at 15 lpm (highest regulator we can get here in Ottawa)

Number/Intensity per day

2-3 Kip 4/5 right now after nearly 12 weeks. By random chance, I had a Kip 7 in the GP's office last week during a follow up which really opened her eyes Wink

Dearly hoping I'm on the end of this cycle as I'm running out of sick leave and getting really antsy that I may be heading into chronic Cry

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ClusterChris CH.com Old Timer Offline Damn Head! Posts: 334 Welland, Ontario Gender:	Re: Please Respond..... Reply #26 - Oct 20^th, 2009 at 3:19pm Thanks guys and Gals Please keep them coming I know there is alot of you that can take a minute to respond. Chris Jeremy's Dad, I think the same thing when my cyles go longer then normal. Don't worry about it I just had my longest cycle to date and am all good now. 17weeks
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: Please Respond..... Reply #27 - Oct 20^th, 2009 at 3:32pm Whilst in cycle I can get anything from 6 hits or more per day. Medication...I'm not on any preventative meds. I do the usual Prednisolone taper and then its on to my abortives like 02 and imigran injections. Good luck with the survey and please let us know how it went...! Lefty..!
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shanny CH.com Newbie Offline I Love CH.com! Posts: 2	Re: Please Respond..... Reply #28 - Oct 20^th, 2009 at 5:02pm Currently taking verapamil.. on my way off of it on to lithium. And I get one headache a day usually
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Joni

CH.com Old Timer

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Knowledge is Power

Posts: 476
Gender: female

Re: Please Respond.....
Reply #29 - Oct 20^th, 2009 at 5:17pm

Would you like and answer from my sister that is not on this site? She gets 1-2 headaches per day and takes nothing but Imitrex injections. Since she started this, she has no shadows or clusterbrain feelings and her cycles are shorter. She has the worst Clusters in our family...since she was 16 and is now 62. She says she doesn't even dread them anymore and it was truly a disability most of her life that she constantly feared. She had them twice yearly for 6 weeks, but much shorter now.

Joni

Experience: That most brutal of teachers. But you learn, my God do you learn. -C. S. Lewis

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CC2004 CH.com Alumnus Offline Posts: 100 x0\|wellington\|New_Zealand\|\|0\|0\| Gender:	Re: Please Respond..... Reply #30 - Oct 28^th, 2009 at 4:31pm no meds, waterx3, awaiting O2 - 5 to 6 hits every day from 1 hour after bed through to late morning, getting worse, lasting much longer, week 5 now... RC seeds on order
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Please Respond..... Reply #31 - Oct 28^th, 2009 at 5:50pm 1) 2 613mg Kudzu x3 a day O2@ 25 lpm for breakthroughs 2) 0 hits if I don't miss dosages (usually) shadows (k3-k4) 2-4 times/day
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